A Cautionary Tale For Any Autistic Diagnosed With Rheumatoid Arthritis | Eve Reiland

Recently it’s been confirmed (third time now actually) that I don’t have rheumatoid arthritis. It’s taken three for sure confirmations for me to believe I don’t have RA. I’ve been treated for it since I was a teen. Back then it was all about 800 mg Motrin 3 x a day. When I was 36, …

On A Personal Note: Since becoming disabled, I’ve learned how to adapt for cognitive fluctuations | Eve Reiland

https://www.facebook.com/546742822/posts/10158350330887823/ Since becoming disabled, I’ve learned how to adapt for cognitive fluctuations. A Good Day: Some days are far easier when my brain is ticking along and body parts are listening to what I tell them (kinda-mostly), thinking in language (words, English) and processing sensory information is far more synchronized and my speech is understandable. …

Chronic pain sufferer Daisy Hoskins finally gets diagnosis after decades of doubt

Daisy Hoskins lives with chronic pain and has spent her life trying to find out why. As a child, she would go to hospital with severe muscle soreness only to be told her pain was imaginary. Ever since, medical professionals have dismissed her suffering as a result of weight gain and poor mental health. One …

Lena Dunham had COVID-19 – and suffered a variety of complications

Lena Dunham has been open about her battle with the chronic illness Ehlers-Danlos syndrome. Now she's getting candid about her latest health struggle: COVID-19. The "Girls" alum, 34, revealed on Instagram Friday that she was diagnosed with COVID-19 in mid-March. Although she was "reluctant" to go public with her diagnosis, Dunham hopes detailing her "intense" experience with the virus will curb …

‘Fear of future outweighed the fear of Covid’ | Westmeath Independent

You will rarely see Ruby Morrissey (5) without her smile, a sparkly dress, heels, or her lipstick. But behind her sunshine exterior lies major medical challenges for the young Athlone girl, which her family now accept will not be treated in Ireland despite their best efforts. A recently set-up GoFundme page has already raised €4,231 …

The Ehlers-Danlos Society Announces New HEDGE Screening System | The Ehlers Danlos Society : The Ehlers Danlos Society

    To break down geographical barriers in research participation and to adapt to limitations on travel, The Ehlers-Danlos Society is delighted to announce a new screening and enrollment process for the Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE).  The exciting newly-established process will make it possible for individuals with hypermobile Ehlers-Danlos syndrome (hEDS) to enroll in …

HEDGE Study for EDS Will Enroll Patients Without In-person Visits

A new screening system will allow people with hypermobile Ehlers-Danlos syndrome (hEDS) to participate in the worldwide Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) study without an in-person visit, the Ehlers-Danlos Society announced in a press release. The changes will help “to break down geographical barriers in research participation and to adapt to limitations on travel,” according to the Society. hEDS is the most …