International Badass Activists
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It took 47 years for Brie Donahue of Michigan to get the proper diagnosis of Ehlers-Danlos syndrome, a rare genetic disease. Source: Ehlers-Danlos syndrome: My 47-year search for the right diagnosis
Andrew Higgins, 8, who enjoys video games, writing stories, and comics was diagnosed with Ehlers-Danlos Syndrome Source: Molly’s Kids: Meet 8-year-old Andrew Higgins
https://vimeo.com/296006042 A documentary created by Samantha Smith & The Standout Company to share her journey with EDS from pre diagnosis to how it affects her day to day. Samantha wants to continue to raise awareness for EDS and to fundraise in excess of £100,000 for her life saving near-surgeries. An extremely heartfelt insight into …
Although much of my research efforts to date have focused on the genetics of autism, over the last year or so I’ve turned a significant part of my attention to a particular group of connectiv… Source: Our Recent Study on the Overlap between Autism and Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorders | Science Over a Cuppa
The 27-year-old had a pioneering operation in Spain to fuse her skull to her spine. Source: Bedridden Melanie Hartshorn sits up for 'first time' - BBC News
A year-and-a-half ago Julie Staley’s two children, Logan and Layne, were leading healthy, happy, active lives.“My daughter was the type who would be cart-wheeling in front of the TV, always on the trampoline, loved gymnastics,” said Staley. In 2014 at Christmas time Layne fell ill. It was also around this time when she dislocated her …
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International Badass Activists 