Hypermobile Ehlers-Danlos Syndrome (a.k.a. Ehlers-Danlos Syndrome Type III and Ehlers-Danlos Syndrome Hypermobility Type): Clinical Description and Natural History Brad Tinkle, Marco Castori, Britta Berglund, Helen Cohen, Rodney Grahame, Hanadi Kazkaz, Howard Levy PMID: 28145611 DOI: 10.1002/ajmg.c.31538 Abstract The hypermobile type of Ehlers-Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue. It has been described largely in those with […]
Lena Dunham revealed on Instagram this weekend that she has been dealing with a flare-up of Ehlers-Danlos syndrome (EDS), a continual sickness that weakens connective tissues and impacts the pores and skin, joints and blood vessel partitions. The Golden Globe-winning actress made her revelation alongside a paparazzi picture which captured her strolling to a automotive […]
For a very long time, young Herefordshire filmmaker Ashleigh Harley kept the fact that she lives with a rare incurable condition hidden. Source: Brave Ashleigh stages online gig | Ledbury Reporter
CHILDREN suffering from chronic pain are not getting adequate care because Ireland has no paediatric pain consultant. Last week the Limerick Post revealed how two young girls from Bruff have been waiting in agony for six months to see a paediatric pain consultant, following the resignation of the country’s only paediatric pain consultant. Ten-year-old Leah O’Leary […]
This article was first published in November 2019. Dawn Craig pats the surface of the reservoir, breaking the ice ahead of her so she can walk in. The edges are sharp, but the cuts and scratches are barely felt as the water is so numbingly cold. She runs her hands under the ice and […]
Ehlers-Danlos syndrome (EDS) is a condition you are born with, it may take many years (or decades) before you are diagnosed. During childhood, it might just seem like you’re more flexible or prone to sprains and injuries than the other kids. Doctors might assume your discomfort is just a result of “growing pains.” It […]
When Colleen Duffy woke up partially paralyzed back in July 2014, she knew things would never be the same. Wheelchair-bound at first, the Devil Doll singer returned to her hometown of Cleveland for medical attention, spending the next few months moving from tests and procedures, and receiving multiple diagnosis, before learning the main culprit of […]
