Autistic & Ally Voices: “I Will Die On This Hill” To Therapies That Actually Help Autistic Children | August 2022


WHICH THERAPIES ACTUALLY HELP AUTISTIC CHILDREN?

By Shannon Des Roches Rosa

Thinking Person’s Guide To Autism

At two-and-a-half, my autistic son spoke more words than many other autistic kids in his early intervention speech therapies group. At the time I knew very little about how varied autistic traits could be, so I assumed this pattern would continue. Yet, two years later, several of those same kids were talking non-stop, whereas my son continued to speak only occasionally, and mostly kept his own counsel.

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Meghan Ashburn & Jules Edwards – I will die on this Hill

Aucademy

Book review by Katie Munday (they / them)

Written by Meghan Ashburn and Jules Edwards, I will die on this Hill looks at the struggle between Autistic people, ‘autism parents’ and the children who often get caught in the middle.

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Book Review: I Will Die On This Hill

Gold Infinity symbol on a black odd shaped-background

By Autistic Science Person

This is a book review for I Will Die On This Hill by Meghan Ashburn and Jules Edwards, which is set to come out on January 19th, 2023. This book talks about autism from a myriad of perspectives: autistic people, non-autistic parents of autistic people, autistic parents of autistic people, etc. There are also many other autistic people who contribute chapters to this book as well.

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TALKING WITH ASIAN AMERICAN AUTISTIC AUTISM RESEARCHER JENNY MAI PHAN

By Shannon Des Roches Rosa

Thinking Person’s Guide To Autism

Jenny Mai Phan is an incredible person and advocate in our community: She’s an Asian American autistic autism researcher, an Interagency Autism Coordinating Committee (IACC) member, and the mother of four children, two of whom are autistic. She also does research into adolescence and sexuality for autistics, which is topic that really needs more focus and resources. We talked with Jenny recently about her experiences, and her work.

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Vice President Harris invites AWN’s Lydia X. Z. Brown to speak at disability and reproductive rights roundtable

Autistic Women & Non-binary Network

AWN: https://awnnetwork.org/

July 26, 2022 marked the 32nd anniversary of the Americans with Disabilities Act’s signing into law. To commemorate the occasion, Vice President Kamala Harris invited Lydia X. Z. Brown, AWN’s Director of Policy, Advocacy, & External Affairs, to speak at a roundtable discussion about disability and reproductive rights at the White House. 

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Everyone Deserves to Make Their Own Choices: A plain language statement about abortion rights and reproductive freedom

The Autistic Women & Nonbinary Network (AWN), the Autistic People of ColorFund (APOC), and the National Women’s Law Center (NWLC) believe that all people should have control of their bodies. 


Neuroqueer: Depathologising psychiatric “conditions”

Rainbow Infinity Symbol with text: Emergent Divergence

This article was co-authored by David Gray-Hammond and Katie Munday

Neuroqueer theory evolved out of the neurodiversity paradigm. It was a logical progression in the field of depathologising natural variations in the human bodymind. This concept appreciates the neutrality of neurodivergence, as neither good or bad, it simply is.

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Safety First: A quick start guide for parents working to keep their kids safe from restraint, seclusion, suspension, and expulsion

Alliance Against Restraints & Seclusion

By Lisa Nieman

When I held each of my two kids as newborns, I promised to keep each of them as safe as possible. I know that the world isn’t fair and that no parent can (or should) shield their children from all of life’s difficulties, but I thought that since I had a relatively safe childhood, I could keep both my kids safe from abuse and trauma as elementary school students. 

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How To Bond With Your Autistic Child Through Your Special Interests

Neuroclastic: https://neuroclastic.com/

By Terra Vance

Parents of autistic children often feel like bad parents. This is because their instincts and what is “normal” often fail to get expected results.

Don’t think of this slideshow as a perfect formula that will always work. Think of it as an opportunity to troubleshoot when your attempts aren’t getting the results you’d like.

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Important New Guidance on the Rights of Students with Disabilities

Autistic Self Advocacy Network (ASAN)

ASAN

The Autistic Self Advocacy Network applauds the Department of Education’s release of new, critical guidance to help ensure students with disabilities are not discriminated against when they are disciplined in schools. The guidance comes from two agencies within the Department of Education: the Office for Civil Rights, and the Office of Special Education and Rehabilitative Services. There are three documents, a letter, and a fact sheet that helps explain one of the documents. 

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Co-creating a Centre of Autistic Culture in Auckland, Aotearoa

Autcollab.org

By Jorn Bettin

The Autistic / ND whānau concept and Autistic / ND communities are important and essential building blocks of a new emerging reality. The social model of disability applies. We need to actively encourage environmental engineering, and we need to push back against toxic social expectations, and equip future generations of Autistic people with the tools and Autistic peer support that allow them to co-create healthy ecologies of care around them.

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STIM4STIM: AN AUTISM PODCAST YOU SHOULD FOLLOW

Thinking Person’s Guide To Autism

By Shannon Des Roches Rosa

If you’re looking for a podcast by autistic adults and also for autistic adults, we very much recommend Stim4Stim. Hosts Zack Budryk and Charlie H. Stern are “real live autistic people talking to other autistic people about dating, sex, love, BDSM, friendships, religion, death, and meaning.”

We chatted with Zack about how Stim4Stim came to be, why it’s so important to have an autism podcast that is not parent-centered, and how there isn’t one human pace for development—plus how autistic people can contribute to the podcast, and how anyone can support Stim4Stim.

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Understanding Non-Autistic Social Skills

Gold Infinity symbol on a black odd shaped-background

By Autistic Science Person

had an insightful twitter conversation with an allistic (non-autistic) person recently (@noidd on twitter) and I think sharing this conversation about social interactions between allistic and autistic people will help us understand each other a bit better.

I used the term “social skills” in the title, but what I really mean is understanding non-autistic subconscious social processing.

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Ending Seclusion: Lessons in advocacy from our friends in New Hanover County, North Carolina

By GUY STEPHENS

Alliance Against Restraints & Seclusion

When asked how to be an effective advocate, I have several suggestions I typically share. My first suggestion is to do your research. If your child or a child you represent has been restrained or secluded, you need to understand what your state/provincial/local law says about the use of restraint and seclusion. Is there data? Does your state report restraint and seclusion data?

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Disability Organizations Respond to the Overturning of Roe v Wade

Autism Women & Non-binary Network

AWN.org

The undersigned disability organizations are outraged and gravely concerned by today’s Supreme Court decision. The Dobbs v. Jackson Women’s Health Organization decision issued today will have devastating consequences. 

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Noncompliant Podcast: Is there an Autism Industrial Complex? Interview with Professor Alicia Broderick

With Anne Borden King

Podcast

My guest this episode is Alicia Broderick, author of the new book The Autism Industrial Complex:  How Branding, Marketing, and Capital Investment Turned Autism Into Big Business. Her book traces the cultural, political, and economic history of autism. We talk about the history of autism services, how industry greed often gets in the way of useful approaches that can help families and some advice for families of newly diagnosed kids on how to find the best approaches and sift through all the hype.

Listen to the podcast >>


Missed in Childhood: Nearly All Autistic and ADHD Women

By Ryan Boren

Stimpunks

Our results indicate that there may be a substantial group of patients with ASD and other NDDs that are missed in childhood

This paper on diagnosis of neurodivergence offers shocking confirmation of what neurodiversity communities have been saying: we’re missing a whole lot of people. Particularly women.

We are missing nearly all Autistic and ADHD women.

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“REAL AUTISM” ADVICE FROM A REAL AUTISTIC PROFESSIONAL

Thinking Person’s Guide To Autism

By Ann Memmot

I want to talk about people who insist that “real autism” is a thing, and who wander about saying things like:

“Those autistic people who are against extreme control of autistic children—they have no idea what a Real Autistic Child is like and how much damage they can do to themselves and others—we’re only being kind.”

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Research that dishonours and harms autistic people

Infinity symbol in rainbow spectrum of colors.

By Ann Memmot (June 2022)

This week, thousands of autistic people witnessed a research team describing us as risks, as deficits, as disordered.   Parents of our loved children and young people were described as “Parents of ASD cases”.  The research team were very excited to write this research paper, they explained.

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Autism & Vocalizations – My Autistic Experience with Echolalia, Palilalia, and Verbal Stimming

Neurodivergent Rebel: Rebelling against a culture that values assimilation over individuality. White text on black background.

By Lyric

Though each and every single Autistic Person is different, many Autistic People make different noises, repeat sounds, or make other vocalizations.

If you would like to know more about what this is like for me, as an Autistic Person who experiences all of this, please do stay tuned.

Tune-in Here >>


Talking about Covid, monkeypox, health disinfo & “the 2022 effect” with virologist Alex Greninger

Rainbow Infinity Symbol

With Anne Borden King

I had an amazing conversation with University of Washington virologist Dr Alex Greninger, whose team innovated one of the earliest Covid tests. We talked about how they developed the test; public health policy; the current monkeypox crisis; other viruses & “the 2022 effect”; and the virological and sociological implications of the pandemic since 2020.

Listen to the podcast here >>


Neurodiversity Libraries, activism & community-building: Interview with Lei Wiley Mydske

With Anne Borden King

In this episode I speak with the amazing
Lei Wiley Mydske, founder of the neurodiversity library movement and creator of the Neurodivergent Narwals. We talk about neurodiversity libraries (including how to start one!), community-building, disability justice, activism, hope and more.

Listen to the podcast here >>



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