My Autistic children and I don’t need a cure. We need real and actual Autistic healthcare. | #AutisticHistory #StopBigAutism


,

Autistic people don’t need a cure. We need acceptance plus real and actual Autistic healthcare.

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Image description:

Square image divided. Left side features blue background and an image of a man with some hair wearing a blue shirt and jacket. A blurred background of a laboratory is behind him.

Quote: “The goal is to put ourselves out of business and cure autism – not in a week or a month or whenever the scientists can get around to it – but NOW!”

— Daniel Geschwind
UCLA Associate Professor & Director of the neurogenetics program.
October 2000

Other half of the image is white and gray with red text, plus a photo of a pale woman with pink hair wearing a multi-colored scarf:

“My Autistic children and I don’t need a cure. We need real and actual Autistic healthcare.”

— Eve Reiland, 

#ActuallyAutistic vintage ’72
& Parenting Autistics Since ’93


Rather then wait helplessly, Shestack and Iversen started CAN. They also started their own gene bank, called the Autism Genetic Resource Exchange (AGRE). The group gives away DNA samples from people with two or more autistic children, as long as the research conducted is shared with other scientists.

“This strategy is unbelievably effective and has motivated dozens of researchers who otherwise would not have studied autism,” reports Dr. Daniel Geschwind, associate professor and director of the neurogenetics program at UCLA.

As a result, genome scans have already narrowed the search for the elusive genes that cause autism. “There was nothing two years ago,” adds Geschwind. “Now I would optimistically predict that in two years we will have some of the autism genes identified.”

But according to a light-hearted Edwards, research still isn’t moving fast enough. “As I always joke with Jonathan, the goal is to put ourselves out of business and cure autism — not in a week or a month or whenever the scientists can get around to it — but NOW!”



More With Daniel Geschwind

Cure Autism Now Board Of Directors, Honorary Board, AGRE Steering Committee & More | 2000 #AutisticHistory

DIRECTORS THE CAN BOARD OF DIRECTORS  Portia E. Iversen  President (parent)  Jonathan Shestack Vice President, Treasurer (parent)  Ricki Robinson, M.D.  Medical Liaison (parent)  Ellen Bolte  Secretary (parent)  Sallie Bernard   Board Member (parent)  Andrea Bertrand  Board Member (parent) Anthony Edwards  Board Member  Elizabeth Emken  Board Member (parent) Nanci Fredkin  Board Member George Jones  Board Member (parent)  Jonathan Kaunitz, M.D.  Board Member (parent)  Marianne Lynch  Board Member (parent)  Jerome Shestack, […]

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More With AGRE

Cure Autism Now | The Autism Genetic Resource Exchange | August 1996

The Autism Genetic Resource Exchange A time for work, a time for hope, a time for gathering together Some little known facts about autism: Autism is not rare. Autism is the third most common developmental disorder. Two out of every 1000 children born in the US will be on the autistic spectrum. Autism currently effects […]

Cure Autism Now: The Advancement in Pediatric Autism Research Act | 1999

S.2263HR.4203 This historic legislation is designed to greatly increase funding and awareness of autism, a severe neurological disorder that currently affects over 400,000 individuals in the United States alone, and one in every 500 children born today, at an annual national cost of over $13.3 billion dollars. Sponsored by: The main points of the legislation: […]

Families Make the Critical Difference in the Pace of Autism Research | March-April 1997 

Families Make the Critical Difference in the Pace of Autism Research  The Advocate March-April 1997  by: Portia Iversen & Jonathan Shestack    Families of people with autism have taken the lead in genetic research by forming AGRE, the Autism Genetic Resource Exchange. This is the world’s first truly collaborative gene bank for autism. It is administered with […]

Cure Autism Now(CAN) Funds research in search of answers | Fall/Winter 1997

Cure Autism Now(CAN) Funds research in search of answers COSAC Outreach, Fall/Winter 1997  by Jon Shestack     The Cure Autism Now (CAN) foundation was established in California almost two years ago by a group of parents, clinicians and researchers. In looking for answers for their own children and patients, they were shocked to find how little […]

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More With Cure Autism Now

Cure Autism Now: POLITICAL ACTION ALERT | May 13, 2001

POLITICAL ACTION ALERT – Sunday, May 13, 2001 We need the immediate help of everyone in the developmentally disabled community! A group of families have recently begun an effort to get some tax relief for the more than three million families in the US who have children with developmental disabilities. The basic idea is to […]

Cure Autism Now: Antibiotics for Autism | December 2000

Antibiotics for Autism Ivanhoe Broadcast News December 2000 Antibiotics for Autism Antibiotics for AutismTelevision News Service/Medical BreakthroughsIvanhoe Broadcast News, Inc. December 2000 (Ivanhoe Newswire) — According to the National Institute of Mental Health, about 1 in every 500 people has autism — a developmental disorder that affects language and social skills. For years it’s been largely […]

Cure Autism Now Parent Advisory Board as of June 1996

The CAN Parent Advisory Board The CAN international parent board will monitor research efforts from around the world, circulate the latest findings among the scientific work group, and coordinate fundraising. CAN believes that it is the interaction between concerned parents and researchers in the field that will help keep motivation high and the pace of […]

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Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.



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