POLITICAL ACTION NEWS
Senate Children’s Health Bill – Senate Bill S2868
Friday, Sept 15,, 2000
It’s not time to declare victory yet, but we are closer to success than we have ever been before. The preconference between the House and the Senate to iron out the different versions of the bill has been successful, and the autism language has been preserved word for word.
It now looks like there will be a motion to pass this bill by unanimous consent in the Senate on Wednesday of next week. At that point, the new version will go back to the House for a vote. The House has already passed the first version 419 to 2, so it is very likely that it will pass it again. Then it’s off to the President’s desk.
Keep checking our website regularly, as we may put out an alert in the next 10 days asking for calls to your congressman. In the meantime, keep your fingers crossed! No other action is necessary at this time. The autism language is secured.
Cure Autism Now
YOU DID IT! UPDATE!! UPDATE!! UPDATE!!
You did it!! All those calls, visits, faxes and action alerts have payed off in a huge way. The Senate passed the Children’s Health Act of 2000, S.2868, by unanimous consent–that means 100 in favor, 0 against! On Tuesday October 17, 2000 President Clinton signed the Children’s Health Act into Law!!!
We cannot thank the families enough. Everyday we have to be physicians, caretakers, educators, and for the last three years, CAN has asked all of us to be political activists as well. But it looks like it was all worth it.
This bill will set up 5 national centers of excellence for autism research where families can also get clinical help. It will study epidemiology and hopefully establish once and for all the horrific increase in autism--and what is causing it.
It will support brain and gene banking, and it will fund a national education program for physicians so that kids get diagnosed immediately, instead of when they are 3-5 years old and precious time is lost. It’s a really good bill, and we should remember why– the first draft was not written by politicans, but late at night, after work, by the parents at Cure Autism Now. It has been an honor to work with all of you on this effort.
Jon Shestack, Cure Autism Now
Elizabeth Emken, Cure Autism Now
CURE AUTISM NOW (CAN) APPLAUDS SENATE ACTION ON CHILDREN’S HEALTH BILL
The United State Senate today passed by unanimous consent, the “Children’s Health Act 2000.” This bill, reflecting a consensus agreement negotiated over the last several weeks between the House and the Senate, is based upon H.R. 4365, passed by the House in April and S.2868, introduced by Senators Frist, Kennedy and others in July. The bill passed by the Senate today is expected to be taken up by the House, under suspension, before the end of the Congress. The first title of the bill is the “Pediatric Autism Research Act of 2000.” Jon Shestack, President and founder of Cure Autism Now (CAN) issued the following statement on the Senate action:
“The United State today, acting unanimously, spoke with compassion and vision for a large group of suffering Americans, many of whom literally cannot speak for themselves, in passing the “Children’s Health Act of 2000” which contains the “Pediatric Autism Research Act of 2000.” From the bottom of my heart and on behalf of more than 400,000 Americans afflicted with autism and the millions more who love them, I want to thank everyone involved in this truly wonderful gift to the nation which the Senate has today provided. Today the Senate has given the families of sick children real hope for a better future. The best scientists in the country tell us that treatment and a cure for autism is possible and now that process will begin in earnest.I would like especially to thank Senator Slade Gorton of Washington State, who originally introduced the Pediatric Autism Research Act more than 2 years ago. Senator Gorton, himself the proud grandfather of an autistic child, has a quiet and gentlemanly demeanor, but this belies a fierce commitment to fight for what he believes in.
Likewise, I wish to thank Senator Bill Frist of Tennessee, who promised CAN that the Public Health Subcommittee, which he chairs, would complete work on a children’s health bill during the 106th Congress and that our autism legislation would be included. Today, Senator Frist completed his fulfillment of that difficult promise. The country is well served by having a physician with Senator Frist’s record as the Senate’s key policymaker on public health.
Also owed an enormous debt of gratitude, in this bipartisan effort, are Senator Kennedy, the Ranking member of the Public Health Subcommittee, who has worked tirelessly to achieve today’s victory for America’s kids, and both Senate Majority Leader Trent Lott and Minority Leader Tom Daschle.
We are proud of the senators who took the time to meet with us, listen to our plea and then take up the struggle on our behalf. And we are also proud of our families. On a daily basis they must be physicians, caretakers, educators and advocates, and for three years we have asked them to become political activists as well. This is an incredible challenge, only made possible by the power of a family’s love for their child.
The autism title of the Children’s Health Act which was originally drafted by parents of autistic children, will correct 40 years of neglect on the part of the federal government and the biomedical research community on the subject of autism. It authorizes a comprehensive federal war on autism, including enhanced epidemiological work by the Centers for Disease Control, “centers of excellence” for research into autism under the auspices of the National Institute of Health, gene and tissue banking to facilitate research, and education programs on autism for both the medical community and the public at large. This bill could not come at a more critical time, as every state in nation is reporting an alarming increase in the incidence of autism that verges on epidemic proportions.
Many of us had normal happy children who suddenly seemed to disappear over the course of a few months time. They will probably never marry, have meaningful work or live on their own. Half of them will never learn to speak. We care for them and love them for who they are, but we also want more for them. For so many years we have put our hopes and dreams aside, but today we can begin to reclaim them. The best scientists in the country tell us that treatment and a cure for autism is possible and now we are on the road.
Cure Autism Now is delighted that the grass roots political activism of the autism community helped propel the passage of a bill in the Senate today which not only addresses the needs of families with autism, but also intensifies federal public health and research efforts on a large number of other health issues facing America’s mothers and children. These other provisions of the bill include titles concerning fragile X, juvenile arthritis, asthma, birth defects, hearing loss, epilepsy, and traumatic brain injury.”
The Autism Community Is Not The Autistic Community
More With Cure Autism Now
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.