[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
What Is Your State Doing About Autism?
July 08, 2014
ROCKVILLE, MD (July 8, 2014) — Federal officials today presented the first state-by-state autism guide on insurance and Medicaid coverage, service delivery, transition services and more. The guide represents a 2012 snapshot of autism in each state, but does not evaluate or compare the quality of services between states or identify best practices.
Read the report below.
At a meeting of the Interagency Autism Coordinating Committee, Sonya Bowen with the Centers for Medicare & Medicaid Services (CMS) said the report took about three years to complete and set out to answer three questions for each state:
- What are states and/or local government doing to provide services for people with ASD?
- What are the types of services and supports that a person with ASD can access?
- How are these supports and services funded?
“Prior to this report, there hasn’t been a compendium of information across the states,” Bowen said. “It’s a starting point for where the states have gotten to.”
Bowen said there is currently no funding to update the report and noted that researchers identified many gaps in information, particuarly with regards to adult and transition services:
- What are the ASD-specific services adults need? States cite a lack of available services and supports for this cohort.
- What activities and tools are in place to support seamless transition(s) from school to adult services (e.g., vocational rehabilitation, employment, other educational opportunities, tracking service history)?
- How does transition from waiver services happen (for ASD-specific waivers and other waivers)? What is needed to ensure continued support for persons that have aged out of a waiver (e.g., continued case management)?
- What options are available for those on the waiting list for waivers?
- How do states with ASD-specific waivers ensure provider availability and access (e.g., applied behavior analysis therapists)?
- Do all states with a private insurance mandate have providers who will accept private insurance? Is there language in any mandates that might make it prohibitively difficult for people to obtain covered services?
- What are best practices for serving and transitioning those with ASD across the lifespan?
The Autism Community Is Not The Autistic Community
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.