Autism Speaks | Feds Grilled On Autism Research Spending, Priorities | May 20, 2014 #AutisticHistory #EndAutismSpeaks #BanABA


[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]

Feds Grilled On Autism Research Spending, Priorities

May 20, 2014

WASHINGTON, DC (May 20, 2014) — A House committee closely questioned federal officials today about the prioritization of genetic over environmental research on autism, as well as the controls in place to assure research dollars are spent most effectively. Members from both parties of the House Oversight and Government Reform Committee, however, made clear they were not interested in cutting federal funding for autism research.

Rep. Bill Posey (R-FL), left, cited criticism from Sallie Bernard, president of SafeMinds and an Autism Speaks board member, that genetic studies over the past five years have been funded at five times the level recommended by the Interagency Autism Coordinating Council (IACC), while environmental studies have been funded at just 20 percent of their recommended level. IACC was created to coordinate autism research undertaken by various federal agencies.

See video of the hearing below

“By ignoring the environmental component to autism, the government and scientific community have made a massive strategic error, wasting enormous amounts of money and time in mostly fruitless genetics-only research that has not helped us stop new cases of autism or helped people living with severe autism,” Posey quoted Bernard.

IACC Chair Tom Insel, right, who heads the National Institute of Mental Health, said the funding comparison was somewhat misleading as more than half of genomic research in fact involved studies exploring genetic-environmental linkages. Insel said lung cancer and asthma are two diseases strongly influenced by environmental factors, yet much of the research is genomic which delivers “faster, better results.”

Posey also renewed a plea for a “credible, transparent study” into linkages between vaccines and autism. “I have talked to hundreds of mothers who said my child, usually a boy, was absolutely perfectly normal until the day after he got his vaccinations,” Posey said.

“There has been an enormous amount of focus on this subject over a period of time,” Insel said. “Another meta-analysis came out today of 10 studies and again comes up empty handed.”

The bulk of the hearing focused on a General Accounting Office (GAO) report issued last November that concluded that 84 percent of the 1,206 autism research projects funded by the federal government between 2008 and 2012 “had the potential to be duplicative.” Under intense questioning by Rep. Gerald Connolly (D-VA), Marcia Crosse, the GAO’s health director, emphasized that the finding only cited a “potential” for duplication, rather than actual duplication in research.

 “We did not say the dollars spent on autism research were wasteful,” Crosse said.

Connolly (D-VA) blasted the GAO report as irresponsible. 

“84 percent is a pretty explosive charge, it plays into a narrative in (Congress) that could affect legitimate research,” he said. “I’m really bothered by this report because I believe it plays into the wrong narrative, particularly when something as important as autism research is involved.”

Rep. John Mica (R-FL), who chaired the hearing, said fears of cutting autism funding were misplaced.

“I don’t want anyone to think this hearing was organized to cut funding for autism,” Mica said. “We want every dollar to be used as effectively as possible. This isn’t an attempt to cut funds or do away with research that is needed.”

The Autism Community Is Not The Autistic Community

* The “autism community” is not the Autistic Community. The autism community was created by non-Autistic led organizations and includes mostly parents, professionals and their friends. Most of what the world knows about autism is sourced from the non-Autistic “autism community.”


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism.

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