[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Congress Hears Of Global Challenges, Advances In Autism
July 24, 2014
WASHINGTON, DC (July 24, 2014) — A House subcommittee heard expert testimony yesterday on the global challenges and advances occurring with autism research and services, with a special focus on the needs of individuals transitioning into adulthood. Michael Rosanoff, Autism Speaks’ associate director of public health research, briefed the members on the Global Autism Public Health Initiative launched by Autism Speaks in 2008.
The hearing was heldby a subcommittee of the House Foreign Affairs Committee chaired by Rep. Christopher Smith (R-NJ), who is sponsoring the Autism CARES Act to protect federal funding for autism research. Smith has long advocated for a global focus on autism.
“Autism is a growing health problem around the world,” said Smith. “With the ever-rising cost of care, it is imperative that people with autism have the opportunity to learn skills and earn a living so that they can control their own lives as much as possible.”
Rosanoff said Autism Speaks launched its Global Initiative with the goal of developing sustainable, broad-reaching, and culturally sensitive programs to expand capacity abroad for autism research and service delivery. Since 2008, Autism Speaks’ international team has logged more than one million miles and met with hundreds of affected individuals, parents, professionals, and government officials to advance the autism initiative.
“There is no single one-size-fits-all solution to improving lives of those touched by autism,” Rosanoff told the committee in his written testimony. “Autism is not simply a health issue, but also an education issue, a social welfare issue, and a human rights issue. The most effective strategies are those that are comprehensive and multi-sectorial.
“Approaches do, however, need to be tailor fit to different country contexts,” he added. “What may be an effective strategy in one country may simply not be feasible in another.”
Autism Speaks and the World Health Organization (WHO) have been developing an intervention guide and training program for community health workers to deliver autism services. The model is now being used in Ethiopia through an Autism Speaks-funded project.
“As a result of the initial success of this program,” Rosanoff said, “the Ministry of Health of Ethiopia has made autism and mental health in general, national priorities. They are currently organizing a conference on the scaling-up of mental health services in the country.”
Rosanoff cited employment programs in Bangladesh and Peru that are serving adults with autism and intellectual disabilities. Programs developed in India, South Africa and other African nations are also showing a promising start, he said.
“Worldwide, governments are listening and the commitment is there,” Rosanoff said. “However the knowhow and capacity are often not.”
The enactment of legislation does not always result in action, he noted.
“Many of the autism laws passed in recent months around the world are well-intentioned, but lack the strategy and resources to implement properly,” Rosanoff said. “In some cases, poor execution leads to unsuccessful programs that may actually hurt the chances for future support. More concerning is that hope can turn to helplessness for members of the autism community under these conditions.”
Rosanoff concluded with a call for immediate action utilizing available models that are working to improve access to services and by promoting community inclusion. “By working together, and learning from one another, we can change the future for all who struggle with autism worldwide,” he said.
The Autism Community Is Not The Autistic Community
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.