[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Six-Year Quest For Kansas Autism Insurance Reform Ends in Victory
April 16, 2014
OVERLAND PARK, KS (April 16, 2014) — Governor Sam Brownback today signed legislation expanding autism insurance coverage beyond the state employee health benefit program, culminating a six-year campaign to enact more meaningful reform in Kansas. Enactment of the law also made Kansas the 10th state to amend its original autism insurance lawto make it stronger.
“Autism Speaks applauds Governor Brownback’s support of the autism community,” said Mike Wasmer, a Kansas resident who serves as Autism Speaks’ director of state government affairs. “This bill is an important step toward providing access to medically necessary treatment for all individuals with autism in Kansas.”
Sponsored by Rep. John Rubin (R-Shawnee), the new law, HB.2744, will require state-regulated large group and “grandfathered” small group individual health plans to cover medically necessary treatments, including applied behavior analysis (ABA), for autism for children up to age 12.
The bill as initially proposed by the House Insurance Committee would have limited ABA coverage to 10 hours per week, but was raised after vigorous opposition from the state’s autism community. As enacted, the new law allows for 25 hours per week of ABA for four years from the time of diagnosis and then reduces to 10 hours per week.
The new law is spearate from the state’s 2010 autism insurance reform law which applies only to state employees. The 2010 legislation when introduced would have covered the private market, but was amended into a pilot program limited to state employees to gauge the impact on health care costs. When the 2010 law was enacted, Wasmer, then president of the Kansas Coalition for Autism Legislation (KCAL), said, “This is not the end, but rather the start of getting autism treatment to all in need in the state of Kansas.”
After being judged a success, the program was made permanent for state employees, but Kansas lawmakers continued to resist efforts to expand the coverage to the private market. In 2012, efforts to force a bill out of a committee fell one vote shy of success.
After Rubin introduced a bill this year that would have provided broader coverage, the insurance lobby filed a second version with much more restrictive terms and would have cut back existing benefits for state workers. After heated opposition from the state’s autism community, HB.2744 was introduced as a compromise measure.
Wasmer said the new law marks a step forward, but that efforts will continue to provide the best coverage for the most children. The existing state employee autism benefit will continue unaffected by the new law.
The Autism Community Is Not The Autistic Community
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.