[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
NY Clears Roadblock to ABA Insurance Coverage
July 31, 2013
ALBANY (July 31, 2013) — After months of pressure from the state’s autism community and Legislature, the Cuomo administration has dropped a regulatory requirement that has blocked families from gaining the insurance coverage for applied behavior analysis (ABA) they were promised under New York’s 2011 autism insurance reform law.
“The road is now clear for thousands of New York families to finally afford ABA treatment for their children with autism,” said Lorri Unumb, Autism Speaks vice president for state government affairs. “Autism Speaks commends Governor Cuomo and our legislative champions, Assemblyman Joe Morelle and Senator Chuck Fuschillo, for working with New York families to overcome this impasse.”
ABA, an intensive one-on-one treatment, can cost tens of thousands of dollars a year, a crushing financial burden for families in the absence of insurance coverage.
The issue involved regulations issued last November just as the state’s autism insurance reform law took effect. The state Department of Financial Services (DFS) required that ABA practitioners obtain a state license in order to qualify for insurance reimbursement under the new law. New York has no ABA license.
Autism Speaks, through its Legal Resource Center, urged the state agency to drop the licensing requirement earlier this year, arguing it was in clear violation of the 2011 law which specified that national certification by the Behavior Analyst Certification Board (BACB)would be sufficient for ABA practitioners to provide services in New York.
When DFS proceeded with the regulations, Autism Speaks and other advocates, such as the New York State Association for Behavior Analysis (NYSABA) worked with Morelle and Fuschillo to introduce legislation creating a New York ABA license. The two lawmakers managed fast passage of the licensing bill through both houses of the Legislature in June.
With the licensing bill about to be presented to Governor Cuomo, DFS, which had continued working with Autism Speaks and other advocates, issued a new regulation making clear that BACB certification, as specified under the original 2011 law, would now be sufficient. The new regulations took immediate effect, enabling families with state-regulated health insurance coverage to now access affordable ABA care for their children with autism.
The Autism Community Is Not The Autistic Community
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.