[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Utah Adds Another 35 Slots in ABA Lottery Program
June 18, 2013
SALT LAKE CITY (June 18, 2013) — The state of Utah, which has the highest autism rate in the nation, will add 35 slots to a Medicaid-funded ABA program offered through a lottery, according to The Salt Lake Tribune. The Utah Autism Coalition has estimated over 18,000 children in the state have been diagnosed with autism.
The pilot program was enacted in 2012 after the Legislature abandoned an autism insurance reform bill. Because the pilot program was slow to start, funding became available to provide for the 35 additional slots. In addition, the age of eligibility was raised from 5 to 6.
The 35 slots will be distributed statewide on the basis of population and chosen through a lottery, rather than first-come, first-serve basis.
Utah kids get a second chance at free autism therapy
By Kirsten Stewart The Salt Lake Tribune
Published June 18, 2013 8:42 am
Lottery will decide next 35 patients of a pilot Medicaid program.
Children who lost out in the first lottery have a second chance at free autism treatment, or applied behavior analysis (ABA) therapy, paid for by a pilot program under Medicaid.
The Utah Department of Health has openings for 35 children and is taking applications through July 12. The slots will be assigned to different regions of the state based on population and filled via a lottery, not on a first-come, first-served basis.
The pilot is one of three testing the benefits of ABA; advocates hope it will sway insurers to cover therapy.
It ended the year with extra money because it took about six months to get providers enrolled, said health department spokeswoman Kolbi Young.
To avoid children aging out of the program before receiving a full year of therapy, the Legislature extended it to 6-year-olds. The two-year pilot was originally designed to serve children through age 5.
The extension has eased frustrations for Cami Egelston, whose son turns 6 this summer.
“We’ve just been grateful from the get-go to have treatment, so we’ve tried to be patient and careful about getting all the paperwork in on time so we could start therapy as soon as possible,” said the South Jordan mom.
Egelston describes her son as high functioning. This year he enrolled in kindergarten and received speech and occupational therapy through the public school system.
He started his 12 hours of weekly ABA therapy in February and has made significant gains in four months, she said. “He had some fine motor struggles and was wanting to write more, which he’s doing now because he has the confidence. He’s off the charts in reading now and learning to control some of his anger and outbursts.”
The program pays for therapy and respite care for families.
To be eligible, a child must be a Utah resident with a date of birth between January 1, 2007 and July 31, 2011.
Unlike with traditional Medicaid, there is no income test. But to qualify, a child may not have assets (such as a bank account or trust fund) of more than $2,000 in his or her name.
Children enrolled in traditional Medicaid are not automatically eligible for the program and need to apply.
Applications must be received by Friday, July 12. Parents can apply online at health.utah.gov/autismwaiver. Or they can print the application and send it by fax to 801-536-0153 or by mail to: UDOH, P.O. Box 143112, Salt Lake City, UT 84114.
The Autism Community Is Not The Autistic Community
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.