[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Some progress, finally, in Annapolis’: Pathfinders for Autism
April 27, 2012
HUNT VALLEY (April 27, 2012) — The Maryland advocacy organization, Pathfinders for Autism, weighed in on the legislature’s efforts to address autism insurance reform: “While the Maryland legislature has indeed fallen behind the thirty other states that have passed meaningful autism insurance reform, it is important to note that after years of effort, some progress was finally made this session in Annapolis.”
Read more below.
Autism Insurance Reform Efforts
Friday, April 27, 2012
While the Maryland legislature has indeed fallen behind the thirty other states that have passed meaningful autism insurance reform, it is important to note that after years of effort, some progress was finally made this session in Annapolis. Alternative legislation that was actively championed by Speaker Mike Busch, Delegates Peter Hammen and Ariana Kelly and fully endorsed by the Secretary of the Department of Health and Mental Hygiene (DHMH), Josh Sharfstein, and passed unanimously in the House and Senate.
HB1055/SB744 requires the DHMH, in consultation with the Maryland Insurance Commissioner, to establish a Technical Advisory Group (TAG). This TAG, to be composed of individuals with expertise in the treatment of autism spectrum disorders, will be asked to determine the medically necessary and appropriate use of habilitative care (such as Occupational Therapy, Physical Therapy and Speech Therapy) for the treatment of autism. This approach utilizes the existing habilitative care mandate as a starting point and finally allows for the appropriate clarification of evidence-based treatments (like ABA/behavioral health treatment) through the promulgation of regulations.
The passage of this legislation was “step one” of a complicated journey. Pathfinders for Autism, along with Autism Speaks, is closely engaged in the process and is committed to work with the TAG to ensure that the resulting regulations will meet the needs of the Autism community. There are no guarantees with the regulatory process, but with the support of many of Maryland’s legislators, we hope to see Maryland families finally accessing meaningful autism treatment by the end of the year.
The Autism Community Is Not The Autistic Community
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.