Autism Speaks | MedClaims Liaison, Autism Speaks Survey Reveals Key Insurance Reimbursement Challenges Facing Families Seeking Autism Care | March 1, 2012 #AutisticHistory #BanABA


[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]

MedClaims Liaison, Autism Speaks Survey Reveals Key Insurance Reimbursement Challenges Facing Families Seeking Autism Care

March 01, 2012

HAWTHORNE, NY (March 1, 2012) –  MedClaims Liaison (MCL), a leading national patient advocacy company, and Autism Speaks, the world’s largest autism science and advocacy organization, released the results of a joint survey demonstrating families seeking autism-related care are bewildered by the myriad challenges they face obtaining proper insurance reimbursement.

The survey was initiated in December 2011, when over 28,000 requests for participation were sent to advocates who have registered to receive alerts from Autism Speaks in six states where autism insurance reform laws have been enacted – California, Texas, New York, Pennsylvania, New Jersey and Connecticut.

Survey Highlights

·A majority of respondents indicated their confusion around their own state’s law and how it impacts their coverage:   
   o   26% responded “I don’t know” when asked if they lived in a state that has passed autism insurance reform unaware that in fact laws were in place
   o   68% said they lived in a state that had passed reform, but 53% did not know how their own particular health insurance policy was regulated by the law
A majority of respondents (54%) characterized the quality of coverage for autism-related services provided under their policy as “poor” or “unacceptable”; more than half obtained services from healthcare providers who do not accept their insurance
77% of respondents are frustrated by the process of dealing with medical bills and reimbursements

   o   47% say the amount of time they have had to spend on claims and reimbursements has conflicted with work
   o   55% are having trouble affording their medical expenses
The lack of understanding is severely impacting access to reimbursements as 40% of respondents said they “never” submit claims if they do not think the treatment will be covered by their policy
“While it is well known that this patient population suffers from acute financial burdens and a stressful reimbursement landscape,” said Mitch Kaye, CEO of MedClaims Liaison, “the survey revealed challenges even greater than we had anticipated. Most troubling is the number of families – 86 percent — who would utilize more necessary care for their children if some of the difficult reimbursement issues did not exist. MCL’s mission is to reduce this burden and improve the financial outcomes for the families – we are very committed to this community. ”

Autism Speaks participated in the survey to gauge the level of understanding within the autism community of insurance reform and how broadly coverage is being accessed.
“The results of this survey clearly indicate that passing autism insurance reform laws is just the first phase of helping families access the services and treatments their children need,” says Peter Bell, executive vice president of programs and services for Autism Speaks. “Once a bill is enacted, we must turn our attention to implementation and enforcement. We are committed to helping families understand how to take advantage of these laws once they become effective.”

For more information on Autism Speaks and autism insurance reform in the states, visit Autism Votes at For more information on the survey results or about MedClaims Liaison’s advocacy services, please contact Amy Ford Keohane, President & CMO, 914.593.1726.

Survey Methodology
The states surveyed were selected on the basis of either having an autism reform law in place (Texas, Pennsylvania, New Jersey and Connecticut) or because they had just enacted a law and were in the process of implementing it (California and New York). The survey was not intended to be scientific; participation was incentivized by offering a small donation from MCL to Autism Speaks for each completed survey. Almost 900 completed surveys were received.


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism.

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