[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Governor Markell Makes Delaware 32nd State to Reform Autism Insurance
August 13, 2012
NEWARK, DE (August 13, 2012) – Autism Speaks, the nation’s leading autism science and advocacy organization, today applauded Delaware Governor Jack Markell for signing legislation that makes Delaware the 32nd state to enact autism insurance reform. The new law, signed at Autism Delaware’s Newark office, requireGov. Jack Markells private health insurance plans to cover the diagnosis, testing and treatment of autism spectrum disorders for children and young adults up to age 21.
Sponsored by Senators Liane Sorenson and Catherine Cloutier, S.22 requires up to $36,000 in coverage for Applied Behavior Analysis (ABA), an evidence-based, medically necessary autism therapy. The law takes effect in four months as each state-regulated health plan is renewed or offered.
“Governor Markell has demonstrated leadership on an issue of critical concern to thousands of Delaware families,” said Lorri Unumb, Esq, Autism Speaks vice president for state government affairs. “His leadership is also now being felt nationally as chairman of the National Governors Association (NGA) through his support for expanding employment opportunities for the disabled.
Gov. Markell with State Senator Sorenson“We also thank Senators Sorenson and Cloutier, Representative Quinton Johnson and Autism Delaware for securing this victory,” Unumb said. “With autism now affecting 1 in every 88 American children, including 1 of every 54 boys, Delaware’s political leaders recognized that doing nothing in the face of an epidemic was no longer an option.”
A number of states have yet to require private insurance companies to cover even essential autism treatments and services. In the absence of coverage, families often pay as much as they can out-of-pocket for services that can cost upwards of $50,000 per year. In the process, many risk their homes and the educations of their unaffected children – essentially mortgaging their entire futures.
At the NGA conference last month in Williamsburg, Va, Markell unveiled his chair’s initiative, A Better Bottom Line: Employing People with Disabilities, announcing that he plans to convene governors, businesses, disability leaders and other thought leaders throughout the year to share ideas and move forward with support for Americans with disabilities. A major emphasis of the NGA initiative will be on people with significant intellectual and developmental disabilities who may require supports such as job coaches or personal attendants in order to live and work in the community.
In addition to Delaware, Michigan and Alaska have enacted autism insurance reform laws this year, while Louisiana, Vermont and Rhode Island have strengthened their existing laws. California’s new law went into effect July 1 and New York’s law becomes effective Nov. 1. About 75 percent of the U.S. population now lives in a state with an autism insurance reform law on the books.
The Autism Community Is Not The Autistic Community
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.