Autism Speaks Co-Hosts Autism Insurance Implementation Workshop at APBA Conference in Boston | April 2, 2011 #AutisticHistory #BanABA


[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]

Autism Speaks Co-Hosts Autism Insurance Implementation Workshop at APBA Conference in Boston

April 01, 2011

BOSTON (April 1, 2011) – On March 31, 2011, the Autism Speaks government relations team joined the Association of Professional Behavior Analysts (APBA) in hosting an Autism Insurance Implementation Workshop. Held in Boston in conjunction with the APBA first annual convention, the day-long Implementation Workshop was sold-out at 125 attendees. The day began with Lorri Unumb, Senior Policy Advisor and Counsel, presenting an overview of autism insurance reform, including arguments typically made against such coverage. The rest of the morning was devoted to a panel discussion on “Obtaining Health Insurance Coverage of ABA Intervention for Autism” with Dr. Gina Green of the Association of Professional Behavior Analysts; Dr. Eric Larsson of the Lovaas Institute Midwest; Billy Edwards of Behavioral Innovations; and Dr. Bryan Davey of the Arizona Centers for Comprehensive Education and Life Skills.

The afternoon focused on “Implementing Autism Insurance Laws.” Special guests Kevin Beagan and Nancy Schwartz of the Massachusetts Division of Insurance shared insights from a regulator’s perspective. Dr. Green then spoke on anticipating and appealing denials of coverage of ABA treatment, followed by Bryan Davey of Arizona, Billy Edwards of Texas, and Susan Butler and Ann Eldridge of South Carolina sharing lessons they’ve learned as three early enactment states. Finally, Dan Unumb, Director of Litigation for South Carolina Legal Services, closed the day with a lawyer’s perspective on enforcing autism insurance mandates – what to do when insurers fail to comply with the new laws.

The Autism Community Is Not The Autistic Community

* The “autism community” is not the Autistic Community. The autism community was created by non-Autistic led organizations and includes mostly parents, professionals and their friends. Most of what the world knows about autism is sourced from the non-Autistic “autism community.”


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism.

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