[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Maryland again fails autism community’: Baltimore Sun OpEd
April 19, 2012
BALTIMORE (April 19, 2012) — The Baltimore Sun today published an OpED by Ian Paregol, executive director of Community Services for Autistic Adults and Children, critical of the Maryland Legislature’s efforts to improve autism insurance coverage.
“This week, Michigan became the 30th state to require insurance coverage for autism therapies. Meanwhile, here in Maryland, the General Assembly has for the fourth consecutive year failed families of children diagnosed with autism spectrum disorders — one of our most significant national health emergencies.”
The Autism Community Is Not The Autistic Community
Maryland again fails autism community
April 19, 2012
This week, Michigan became the 30th state to require insurance coverage for autism therapies. Meanwhile, here in Maryland, the General Assembly has for the fourth consecutive year failed families of children diagnosed with autism spectrum disorders — one of our most significant national health emergencies.
Autism is a complex neurological disorder that typically impacts an individual throughout his or her lifetime. It is found in all ethnic, racial and social groups, affecting a person’s ability to communicate and relate to others. Perhaps most disconcerting, the prevalence of autism is growing, up 78 percent over the last decade.
If we consider the number of children born in the U.S. in 2010 (4.05 million), allocate Maryland’s proportional share of those births (1.87 percent) and weigh those figures in light of the newly revised autism prevalence rate as determined by theU.S. Centers for Disease Control and Preventionof one child in 88 births, approximately 16 children will be born in Maryland each week — 832 each year — who will eventually be diagnosed with autism using the existing diagnostic criteria. These children will join the thousands who have already been diagnosed and who will not be afforded coverage for critical early intervention services through their health insurers — therapies that are mandated by legislation in 30 other states to be covered by insurers.
Why is early intervention important? Study after study has shown that providing a child diagnosed with autism with an array of services such as speech, behavioral strategies and socialization therapy before his or her 5th birthday can drastically reduce the number of supports that child will need throughout life. Maryland’s health insurers balk at covering the costs of these empirically proven therapies, which not only address behavior and communication but also increase a child’s ability to learn.
By continuing to listen to insurance company lobbyists lamenting the added costs associated with even limited coverage for evidenced-based early intervention services, Maryland lawmakers have done a disservice not only to the children and families in need of more services than public agencies can provide, but it has also done a disservice to the general public. The General Assembly has failed to recognize the added economic costs to its citizens who will be asked, through additional taxation and other means of revenue generation, to support the growing tidal wave of adults who will need additional supports because they did not obtain a more favorable outcome through early intervention.
Finally, data from four states that have benefited from insurance coverage for more than two years — South Carolina, Illinois, Florida and Arizona — suggest that the annual additional premium costs related to the provision of therapy coverage per policy-holder is about $4 per year, far below the insurance industry’s initial projections. For what appears to be a negligible effect on premium cost, autism insurance reform holds the promise of significantly improving the lives of thousands of Maryland’s children.
As the executive director for Community Services for Autistic Adults and Children (CSAAC), I have seen what a difference early intervention can make in the life of a child with autism. Of all of the supports that are provided at CSAAC for children and adults, our early intervention program is the “game-changer.” With early intervention, fewer children will go to state-funded non-public schools; fewer adolescents will end up in state-funded group homes; fewer adults will need lifelong funding through the Developmental Disabilities Administration; fewer parents of children with autism will end their relationships in divorce; and more children will attain “best outcomes” — profoundly changing their lives and the lives of those around them for the better.
Ian Paregol is the executive director of Community Services for Autistic Adults and Children (www.csaac.org), a Montgomery County-based nonprofit that operates an Intensive Early Intervention program for ages 18 months to 7 years, two non-public schools, 52 community residences for children and adults and a supported employment program for adults. His email is firstname.lastname@example.org.
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.