[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Autism Speaks Endorses North Carolina Autism Insurance Reform Bills
S.1265/H.1897 Would End Health Care Discrimination Against Children With Autism by Requiring Coverage of Diagnosis and Treatment
NEW YORK, NY (May 20, 2010) – Autism Speaks, the nation’s largest autism advocacy organization, today announced its support for Senate Bill 1265 and House Bill 1897, the 2010 North Carolina autism insurance reform bills. The legislation would require private health insurance companies to cover the screening, diagnosis, testing and treatment of autism spectrum disorder (ASD).
Sponsored in the Senate by State Senator William R. Purcell and in the House by Representative Bob England, M.D., S. 1265/H. 1897 includes coverage up to $75,000 per year for behavioral health treatments, such as Applied Behavior Analysis (ABA) therapy, an evidence-based, medically-necessary autism treatment.
“We applaud and thank Senator Purcell and Representative England for their leadership on this issue of critical concern to thousands of North Carolina families,” said Peter Bell, Autism Speaks executive vice president for programs and services. “Autism Speaks joins North Carolina’s autism community in calling on the legislature to pass S.1265/H.1897 and join the growing number of states that have ended healthcare discrimination against children with autism.”
Most states do not require private insurance companies to cover even essential autism treatments and services. In the absence of coverage, families often pay as much as they can out-of-pocket for services that can cost upwards of $75,000 per year. In the process, many risk their homes and the educations of their unaffected children – essentially mortgaging their entire futures. Nineteen states – Arizona, Colorado, Connecticut, Florida, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Montana, Nevada, New Jersey, New Mexico, Pennsylvania, South Carolina, Texas, and Wisconsin – have passed similar autism insurance reform bills. Bills in Vermont, Missouri, and New Hampshire have been passed by the legislature and await signature into law by the governors.
Pictured above: John Burress, State Senator Linda Garrou, Lorri Unumb, Autism Speaks Senior Policy Advisor & Counsel, and Bob D’Amelio, Autism Speaks North Carolina Chapter Advocacy Chair at a recent hearing on autism insurance reform
The Autism Community Is Not The Autistic Community
More With Autism Votes
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.