[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Advisory Panel Releases First Federal Strategic Plan for Autism Research
The Interagency Autism Coordinating Committee (IACC), a federal government advisory panel, has released its first blueprint for autism research. The IACC Strategic Plan for Autism Spectrum Disorder Research will advise federal agencies and Congress on needs and opportunities for research investigating autism, a complex developmental disorder that affects 1 in 150 children.
“This plan will help fill the gaps between what we know about autism and what we need to do to help affected families and communities,” said Thomas Insel, M.D., chair of the IACC and director of the National Institute of Mental Health, part of the National Institutes of Health. “This document marks a significant achievement in that it is the product of a truly collaborative effort involving the IACC, scientists, advocacy groups and the public.”
In establishing the IACC, the Combating Autism Act of 2006 mandated that the body develop and annually update a strategic plan for autism research. The IACC, composed of both federal and public members, developed the plan through an extensive process engaging a wide range of federal agencies and public stakeholders. The IACC convened four scientific workshops to identify research opportunities as well as expert workgroups to recommend research objectives. The committee also sought extensive public input on ASD research priorities through means such as town hall meetings and Requests for Information. The resulting plan reflects a diversity of views and the breadth of research that will be required to address the needs of people with ASD and their families.
Autism is a complex developmental disorder characterized by repetitive behavior and pervasive impairments in language and the ability to relate to others. It is often grouped with related disorders, such as Asperger’s syndrome and pervasive developmental disorder, all of which may be referred to collectively as autism spectrum disorders (ASD). The underlying causes of ASD are unclear and currently, there is no cure for the disorders. Prevalence of ASD has increased more than ten-fold over the past two decades, according to estimates from the Centers for Disease Control and Prevention (CDC) in 2007.
The IACC strategic plan is organized around six critically important questions for people with ASD and their families regarding diagnosis, the biology of autism, risk factors, treatments and interventions, services and supports and questions about issues faced by adolescents, adults and seniors with autism and their families. Each question is followed by a brief discussion of what is currently known and what more is needed through research. The plan then states an aspirational goal and describes research opportunities and objectives in each area. Each objective includes a professional judgment budget estimate, provided by programmatic and agency experts.
Recommendations in the strategic plan include objectives to: develop new diagnostic tools; complete longitudinal and comprehensive studies of the biological, clinical and developmental profiles of children; identify genetic and environmental risk factors; conduct clinical trials of interventions; and assess the efficacy and cost-effectiveness of evidence-based services for people with ASD of all ages in community settings.
Over the next year, the IACC will monitor the implementation of the strategic plan and update the document for its annual release.
The National Institute of Mental Health (NIMH) mission is to reduce the burden of mental and behavioral disorders through research on mind, brain, and behavior. More information is available at the NIMH Web site.
The National Institutes of Health (NIH) – The National’s Medical Research Agency – includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. It is the primary federal agency for conducting and supporting basic, clinical, and translational medical research, and it investigates the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit the NIH Web site.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.