By John Pring on 4th November 2021
Autistic campaigners protested for hours outside the research centre at the centre of a £3 million study that they believe could be used for the purposes of eugenics.
They were forced to protest outside the entrance, beside a main road, after managers locked the main gate.
Protesters (pictured) who spoke outside the main gates warned that the Spectrum 10K study “could potentially be used to eradicate us” and was treating autistic people like “lab rats”.
There was also anger among many of the activists after Professor Sir Simon Baron-Cohen, who is heading the research, warned them in advance that police officers and police dogs would be present during the protest.
He had told one of the organisers that the University of Cambridge and NHS, which have offices in the building where his research centre is based “have had to take advice from the police to protect their property, staff and patients in the event that a protester decides to do something unlawful”.
Emma Dalmayne, chief executive of the autistic-led group Autistic Inclusive Meets, who helped organise the action, said the warning that police would attend had been a “deliberate scare tactic”.
“He was hoping, I believe, to put people off protesting.” …
By Mark Eadie
September 7, 2021
Wow! Could we be on the verge of a Eureka moment? Cambridge University has launched Spectrum 10k, the UK’s largest study of autism, involving 10,000 participants. Researchers aim to “investigate the genetic and environmental factors that contribute to autism and related physical and mental health conditions to better understand wellbeing in autistic people”.
What’s more, their work is being endorsed by charities supporting autistic people, while celebrities, including Paddy McGuinness, who has three autistic children, and Chris Packham, who is autistic, are giving it their backing.….
Study aimed at collecting DNA from 10,000 autistic people and their families has drawn criticism for failing to consult the autism community.
By Katharine Sanderson
September 27, 2021
A large, UK-based study of genetics and autism spectrum disorder (ASD) has been paused, following criticism that it failed to properly consult the autism community about the goals of the research. Concerns about the study include fears that its data could potentially be misused by other researchers seeking to ‘cure’ or eradicate ASD.….
Kieran Rose, an advocate for autistic people and a member of the Boycott Spectrum 10K group, says he is worried that the research could lead to a prenatal screening test for ASD or related conditions. “A genetic study would be terrifying for lots of autistic people; there’s a long-established and well-known history around eugenics and disability,” adds Fletcher-Watson.
Sunday 29 August 2021
Autistic advocates have expressed concerns over a University of Cambridge study, over fears that the research into “genetic and environmental factors that contribute to the wellbeing of autistic individuals and their families” amounts to “eugenics”.
Branded “the largest study of autism in the UK”, Spectrum 10K – which also involves researchers from the Wellcome Sanger Institute and the University of California Los Angeles (UCLA) – looks to collect questionnaire responses and DNA samples from 10,000 autistic people.….
By Rachel Charlton-Dailey Updated on October 24, 2021
On September 10, 2021, the researchers behind Spectrum 10K announced a pause on both further study recruitment and analysis of any data collected so far. The pause will be used to listen to and address concerns from the autism community.
- Spectrum 10K is the largest study of autistic people in the United Kingdom.
- For the study, researchers will use an online survey and DNA samples to evaluate the biological and environmental factors that may contribute to autism.
- Autistic people and advocates have raised concerns about how the DNA samples could be used in the future.
There needs to be a lot more autistic voices and representation at the table where decisions about us and our community are made.— JASPER WILLIAMS
BY ANGIE VOYLES ASKHAM, LAURA DATTARO / 18 OCTOBER 2021
For Spectrum 10K, the time from launch to limbo was less than three weeks: An online outcry from autistic self-advocates forced the researchers behind the effort — the largest autism genetics study to date in the United Kingdom — to pause their project indefinitely in September. …
By Gemma Gardner – Published: 18:17, 29 October 2021
A protest has been held outside the Autism Research Centre today (Friday, October 29) over a £3m University of Cambridge study.
Emma Dalmayne, chief executive of autistic-led group Autistic Inclusive Meets who was part of today’s protest, told Cambridge Independent: “They still have no safeguarding guarantee for that DNA, so anybody will be able to access it.
“£3m has been fed into this project when it could have been better used to support autistic people. There’s so much more they could have done with that money. There are people that need support now, why waste the money on finding out what caused us instead of using it to support us – we’re already here.”
Spectrum 10K has been consistently criticised since its announcement in August.
Spectrum 10K, a study into factors contributing to autism and autism-related health conditions, was paused on 27 September 2021 in response to backlash from the autistic community. An open letter of concerns regarding the study has since been released by Boycott Spectrum 10K, a campaign led by members of the autistic community.
BY RACHEL ZAMZOW / 4 NOVEMBER 2021
The August launch of the U.K.-based autism research project Spectrum 10K sparked a firestorm of negative comments about the study’s aims from autistic people and their allies. The researchers have paused the project while they seek more guidance from autistic community members.
“They’re backtracking and backpedaling furiously, and it was completely avoidable,” says Sarah Douglas, who is autistic and has advised several autism researchers across the United Kingdom. Projects like Spectrum 10K should involve autistic people from the start, she says.
20 September 2021
By Sylvie Armstrong
A major autism study has been paused over ethical concerns.
The Spectrum 10K study was launched last month aiming ‘to investigate genetic and environmental factors that contribute to the wellbeing of autistic individuals and their families’. The study has now been paused in response to concerns expressed by some autistic people and campaigners, about an alleged lack of transparency regarding the project’s aims, and about the possibility of resulting data being used in an attempt to cure or eradicate autism altogether.
Autistic campaigners to protest over study that sparked ‘eugenics’ fears
By John Pring on 16th September 2021
Autistic campaigners are to protest outside a University of Cambridge autism research centre over a £3 million study they fear could be used to find a cure for autism, or even to attempt to eradicate it altogether through pre-natal screening.
Their campaigning efforts have already persuaded the researchers to pause work on the project, which was aiming to collect DNA samples from 10,000 autistic people across the UK.
Cambridge scientists are to consult autistic people amid fears that their research may be used to eradicate autism
A controversial study, which set out to collect genetic data from 10,000 autistic people, has been paused following growing concerns from the autistic community.
The Spectrum 10k study, led by Professor Simon Baron-Cohen and a team of scientists at Cambridge University working with researchers from the Wellcome Sanger Institute and the University of California Los Angeles, set out “to investigate genetic and environmental factors that contribute to the wellbeing of autistic individuals and their families”.
More With #BoycottSpectrum10k
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.