H.R. 1707 (111th): Helping HANDS for Autism Act of 2009
The text of the bill below is as of Mar 25, 2009 (Introduced). The bill was not enacted into law.
H. R. 1707
IN THE HOUSE OF REPRESENTATIVES
March 25, 2009
Ms. Granger (for herself, Mr. Wolf, Mr. Young of Florida, Mr. King of New York, Mr. Crenshaw, and Mr. Burton of Indiana) introduced the following bill; which was referred to the Committee on Energy and Commerce, and in addition to the Committee on Financial Services, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned
To increase housing, awareness, and navigation demonstration services (HANDS) for individuals with autism spectrum disorders.1.
This Act may be cited as the
Helping Housing, Awareness, and Navigation Demonstration Services for Individuals With Autism Spectrum Disorders Act of 2009 or the
Helping HANDS for Autism Act of 2009.I
Autism Navigator Program101.
Autism navigator program
Part R of title III of the Public Health Service Act (42 U.S.C. 280i et seq.) is amended by inserting after section 399DD the following:399DD–1.
Autism navigator program(a)
Authorization of Grant Program(1)
The Secretary, in coordination with the Secretary of Housing and Urban Development and the Secretary of Education, shall establish a demonstration grant program to award grants to eligible entities to enable such entities to develop an autism navigator program to create a more efficient, effective, coordinated use of the health, housing, education, and social service systems for individuals with an autism spectrum disorder.(2)
In this section, the term eligible entity means subject to subparagraph (B), an entity that has—(i)
not less than 2 years experience serving the autism community in an advocacy or service capacity; and(ii)
behaviorist with at least a master’s degree on staff or in a consultation capacity who has experience in applied behavioral analysis;(II)
Board Certified Behavior Analyst on staff;(III)
special educator with training in autism spectrum disorders on staff;(IV)
rehabilitation professional with training in autism spectrum disorders on staff; or(V)
master’s level professional with training in autism spectrum disorders on staff.(B)
Notwithstanding subparagraph (A), the Secretary may determine who qualifies as an eligible entity under this section.(b)
Application for a Grant(1)
An eligible entity that desires a grant under this section shall submit an application to the Secretary at such time, in such manner and form, and containing such information, agreements, and assurances as the Secretary determines to be necessary to carry out this section.(2)
An application submitted under paragraph (1) shall contain an assurance that the applicant will provide ongoing outreach activities while receiving a grant under this section, in a manner that is culturally competent for the population served, to inform the public and the specific community that the autism navigator is serving, of the services under the grant.(c)
Development of Autism Navigator Program(1)
The Secretary shall determine the functions of autism navigators under this section.(B)
Types of functions
The functions of an autism navigator under this section may include—(i)
with respect to an individual with an autism spectrum disorder and such individual’s family—(I)
coordinating and scheduling appointments and referrals, community outreach, assistance with transportation, housing or education arrangements, and assistance with insurance issues and other barriers to care;(II)
case management and psychosocial assessment and care or information and referral to such services;(III)
contact and care coordination of health care, including psychosocial assessment and care, and other community services, provider referrals, financial support and service coordination, including transportation, housing, and education;(IV)
determining coverage under health insurance and health plans for all services;(V)
aiding with health insurance coverage issues; and(VI)
ensuring the initiation, continuation, or sustained access to care prescribed by the individual’s health care providers;(ii)
facilitating partnerships within the health care and advocacy community to assist outreach to the underserved autism community;(iii)
notifying individuals and their families as to autism clinical trials and, on request, facilitating enrollment of eligible individuals;(iv)
anticipating, identifying, and helping individuals with an autism spectrum disorder overcome barriers in accessing and securing appropriate services in a timely manner;(v)
coordinating with State departments responsible for human services, education, health and senior services, housing, community affairs, and labor in providing services to individuals with an autism spectrum disorder and their families;(vi)
identifying caregiver supports for those caring for individuals with an autism spectrum disorder, including mentoring, support groups, community resources, and legal consultation;(vii)
identifying, mentoring, and supporting culturally sensitive caregivers of individuals with an autism spectrum disorder; and(viii)
serving as a reliable, expert resource for advice, support, and direction to access early intervention services under part C of the Individuals with Disabilities Education Act (20 U.S.C. 1431 et seq.), health insurance (public or private), housing programs, financial security programs, Medicare services under title XVIII of the Social Security Act, and Medicaid services under title XIX of the Social Security Act.(2)
Development of program(A)
An eligible entity that receives a grant under this section shall develop an autism navigator program that will recruit, employ, train, assign, and supervise autism navigators.(B)
Duration of grants
A grant provided under this section shall be—(i)
for a period of not more than 5 years; and(ii)
subject to annual approval by the Secretary and subject to the availability of appropriations for the fiscal year involved.(C)
No limitation on number of grants
Nothing in this paragraph shall be construed to limit the number of grants that may be made to an eligible entity.(3)
An autism navigator program developed under paragraph (2) shall reach out to appropriate physician offices and treatment centers to encourage such physicians and centers, respectively, to refer individuals with an autism spectrum disorder to such program, which will offer autism navigation services described in this subsection.(4)
Training and preparation
An autism navigator program developed under paragraph (2) shall train and prepare autism navigators as follows:(A)
Autism navigators shall have direct knowledge of the communities they serve and provide services to such communities in a culturally competent manner.(B)
Autism navigators shall be informed about health insurance systems and other community services, and be able to aid individuals in resolving access issues.(C)
Autism navigators shall have direct knowledge of the unique needs of individuals with an autism spectrum disorder and the current evidence-based practices that are available to such individuals through Federal programs and in the State involved.(5)
An autism navigator program developed under paragraph (2) shall assign autism navigators, in accordance with applicable criteria of the Secretary, for—(A)
managing the care of individuals with an autism spectrum disorder; and(B)
assisting such individuals and families of such individuals with navigating the life service continuum.(6)
An autism navigator program developed under paragraph (2) shall provide centralized access for individuals with an autism spectrum disorder to multiple Federal and State activities and programs related to autism spectrum disorders, including such activities and programs carried out by—(A)
the Administration for Children and Families;(B)
the Centers for Disease Control and Prevention;(C)
the Centers for Medicare & Medicaid Services;(D)
the Collaborative Programs of Excellence in Autism;(E)
the Department of Health and Human Services;(F)
the Health Resources and Services Administration;(G)
the Interagency Autism Coordinating Committee;(H)
the National Institutes of Health;(I)
the National Institute of Mental Health;(J)
the Studies to Advance Autism Research and Treatment;(K)
the Department of Housing and Urban Development;(L)
the Department of Education; and(M)
the Department of Labor.(7)
Data collection and report(A)
Each recipient of a grant under this section shall—(i)
collect specific autism data that records navigation services provided to each individual served by the autism navigator program; and(ii)
establish and implement procedures and protocols, consistent with applicable Federal and State laws, to ensure the confidentiality of all information shared by a participant in the program, the participant’s personal representative, and the participant’s health care providers, group health plans, or health insurance insurers.(B)
Disclosure of information
A recipient of a grant under this section may, consistent with applicable Federal and State confidentiality laws, collect, use, or disclose aggregate information that is not individually identifiable.(C)
Each recipient of a grant under this section shall submit an annual report to the Secretary that—(i)
summarizes and analyzes the data collected under subparagraph (A)(i); and(ii)
provides information on needs for navigation services, types of access difficulties resolved, sources of repeated resolution, and flaws in the system of access, including insurance barriers.(d)
The Secretary shall provide, directly or through grants or contracts, for evaluations to determine the effects of the services of autism navigators.(e)
Coordination With Other Programs
The Secretary shall coordinate the demonstration grant program authorized under this section with programs authorized under the Children’s Health Act of 2000 (Public Law 106–310), the Combating Autism Act of 2006 (Public Law 109–416), the Rehabilitation Act of 1973 (29 U.S.C. 701 et seq.), the Medicaid home- and community-based service waivers program under section 1915(c) of the Social Security Act, title XIX of the Social Security Act, and other appropriate programs.(f)
Rule of Construction
Nothing in this section shall be construed to require payment for navigation services or to require payment for other services in cases where such other services are provided free of charge.
Training of first responders in the recognition of autism(a)
Development of Curriculum
The Secretary of Health and Human Services, in coordination with the Director of the Centers for Disease Control and Prevention and in consultation with the heads of other appropriate Federal agencies, shall develop, demonstrate, and disseminate a standard curriculum for the training of first responders in assisting individuals (and their families) with autism and other cognitive behavioral disabilities during potential and actual emergencies.(b)
The Secretary of Health and Human Services, in coordination with the Director of the Centers for Disease Control and Prevention and in consultation with the heads of other appropriate Federal agencies, shall award grants to States and local governments to train first responders (including the police, fire departments, emergency medical technicians, and other paid or volunteer first responders) in providing assistance to individuals with autism and other cognitive impairments in potential and actual emergency situations.(c)
Training carried out under this section shall inform first responders of the risks associated with autism and other cognitive behavioral disabilities, as well as provide instruction in appropriate autism recognition and response techniques.III
Home of Their Own301.
Home of their own(a)
Not later than 90 days after the date of the enactment of this Act, the Secretary of Housing and Urban Development shall convene a task force comprised of appropriate national and State autism advocacy groups, recipients of funds from the Department of Housing and Urban Development for housing for adults with an autism spectrum disorder, and community-based organizations that serve adults with an autism spectrum disorder.(b)
Establishment of Grant Program
The task force described in subsection (a) shall establish a housing demonstration grant program to award grants to entities (including States, localities, public and private partnerships, and community nonprofit and for-profit organizations) to enable such entities to provide a housing program for adults with an autism spectrum disorder, with the goal of providing individualized housing and services to such adults.
Sponsored by: Kay Granger
Sponsor. Representative for Texas’s 12th congressional district. Republican.
The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.
3/25/2009–Introduced. Helping Housing, Awareness, and Navigation Demonstration Services for Individuals With Autism Spectrum Disorders Act of 2009 or the Helping HANDS for Autism Act of 2009 – Amends the Public Health Service Act to direct the Secretary of Health and Human Services to establish a demonstration program to award grants to eligible entities to develop an autism navigator program to create a more efficient, effective, coordinated use of the health, housing, education, and social service systems for individuals with an autism spectrum disorder.
Directs the Secretary to determine the functions of autism navigators, which may include: (1) case management and psychosocial assessment and care; (2) notifying individuals of autism clinical trials; (3) helping individuals overcome barriers in accessing and securing appropriate services in a timely manner; and (4) coordinating with relevant departments providing services to individuals with an autism spectrum disorder and their families.
Requires a navigator program to provide centralized access for individuals with an autism spectrum disorder to multiple federal and state activities and programs related to autism spectrum disorders.
Requires grantees to collect autism data and ensure confidentiality.
Directs the Secretary to: (1) disseminate a standard curriculum for training first responders in assisting individuals with autism and other cognitive behavioral disabilities and their families during emergencies; and (2) award grants to states and local governments for such training.
Requires the Secretary of Housing and Urban Development to provide for a program for adults with autism spectrum disorder with the goal of providing individualized housing and services.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.