[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
The Month in Review: Autism Speaks September 2011 Impact
October 4, 2011
One of the big challenges we have as an organization is showing the impact we have across the four pillars of our mission: Science, Family Services, Advocacy and Awareness. In fact, so much is going on that we are going to aggregate some of the most important happenings once a month.
If you know of things going on that we aren’t including, please SHARE them by leaving a comment! We want to know what you think is important.
- New toolkit launches We began our fall rollout of Autism Speaks Autism Treatment Network (ATN) tool kits, beginning with “Should My Child Take Medication for Challenging Behavior?” and “Taking the Work Out of Blood Work,” the latter in both provider and family versions. We held a related webchat, September 14 as well (follow the link for the transcript).
- Science Pressents… We presented ATN-supported research on autism and attention deficit and hyperactivity disorder (ADHD) at the annual conference of The Society for Developmental and Behavioral Pediatrics. The study’s findings – that ADHD symptoms ADHD Symptoms in children with autism are common, problematic and likely undertreated – made national headlines.
- European Approval On September 13, we received final approval of the European Union Autism Innovative Medicine Initiative (EU-AIMS, a historic Autism Speaks-European Union collaboration to develop new medicines for the treatment of autism. The largest public private partnership of its kind in Europe, EU-AIMS will allow Autism Speaks to establish an international biorepository for research and to integrate our wealth of clinical information with global databases.
Want to dig into Autism Speaks science even further? Visit the science section of our website, and read the latest blog posts from the science department.
- Just for Grandparents We launched our Family Support Tool Kit for Grandparents on September 15. The kit includes topics like:
- Reaction to the Diagnosis
- Your role as a Grandparent
- Support for Your Grandchild
- Support for Your Family
- Taking Care of Yourself
- FAQs from Grandparents
- Grandparent Stories
- New Health and Wellness toolkit launched On September 29 we launched a new on-line tool kit called Health and Wellness. This new content is featured on the Autism Speaks website and includes the benefits of exercise for people with autism as well as information about nutrition and sleep. The photographs used in the slide show were submitted from our Facebook community members! Send us more!!
- Family Services Committee Meeting On September 15 and 16 the Family Services Committee met to review the top scoring applications for the Family Services Community Grants. The committee looked for applications that increase the services for people with autism, as well as to expand the field of service providers. Other factors considered during the review process were innovation and creativity, ability to address the needs of the underserved, replicability, clarity of the proposal, qualifications of the organization, well documented budget and sustainability. As a result of this meeting recommendations will be made to the Autism Speaks board of directors for approval during the December board meeting.
- President Obama signed the Combating Autism Reauthorization Act into law, this was Autism Speaks’ top legislative priority this year.
- Autism Speaks joined with California Senate President Pro-Tem Darrell Steinbergat a series of rallies urging Gov. Jerry Brown to sign an autism insurance reform bill into law. The effort received a boost in late September when the Los Angeles Times urged the Governor to sign the bill in an editorial
- Michigan has become the primary target for autism insurance reform as a new legislative campaign gears up to enact a bill into law
Want to get more involved with Autism Speaks advocacy efforts? Sign up to become an advocate on www.autismvotes.org or text “AVotes” to 30644 to be added to our mobile alert list.
- Hacking Autism As part of a collaboration on the “Hacking Autism” initiative with HP and the Flutie Foundation, Autism Speaks participated in the World Maker Faire at the New York Hall of Science on September 17 and 18. “Hacking Autism” was launched in June 2011 to seek new ideas for technology applications beneficial to people with autism. At Maker Faire, seven app ideas were announced as finalists to be built by volunteer software developers at the HP Hackathon in October. In addition announcing the “Hacking Autism” finalists, Autism Speaks used the popular tech convention as a platform to disseminate information about its mission and raise autism awareness. Catch up by reading our blog post on Collaboration, technology and making things.
- Parents Magazine “Wishes” Autism Speaks worked with Parents to develop a “wish” for autism that we would like to see come through within the next decade that will be featured in the October issue of the magazine. On September 15, Autism Speaks and Parents both posted the wish – that every child is screened early for autism – on their social networking sites and asked families to share their wish for autism.
- World Focus on Autism For the fourth year in a row Autism Speaks brought together more than 20 first spouses and esteemed dignitaries, including 15 ministers of health, from more than 30 countries around the globe for the Fourth Annual World Focus on Autism. The event was held on September 20at The McCarton School in New York City. We encouraged those in attendance to support our international efforts, including Autism Speaks’ Light It Up Blue campaign in celebration of World Autism Awareness Day, and our Global Autism Public Health (GAPH) initiative. This annual breakfast event, supported by Mrs. Ban Soon-taek, wife of United Nations Secretary-General Ban Ki-moon, is part of Autism Speaks’ ongoing effort to raise global awareness and share best practices for countries, communities and families struggling with autism. See an article highlighting the event published in the Wall Street Journal here.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.