[Note: Shared for #AutisticHistory archive purposes. This is NOT An Autistic Ally.]
Suit alleges autism care routinely denied
SANTA MONICA, Calif. Kristie Sepulveda-Burchit and her husband knew something was wrong when their son Aidan was about 2. But it would take doctors nearly a year to figure out Aidan is autistic. The difficulty with the diagnosis turned out to be nothing compared to the battle the family has waged ever since with their insurance company.
“Well, it was like, ‘Well, we don’t handle that, our medical authorization side doesn’t handle that.’ Then they shot you over to behavioral health, who said ‘We don’t handle that, let me put you on through top of the chain here,’ who said ‘We don’t handle that,'” explained Sepulveda-Burchit.
Wednesday, the group /*Consumer Watchdog*/ sued the /*California Department of Managed Health Care*/, alleging the agency and its director have allowed private health insurers to refuse to provide health care to autistic children like Aidan.
“The department responsible for overseeing many of the state’s insurance companies has been siding with insurance companies and denying access to necessary autism care,” said Jerry Flanagan, Consumer Watchdog.
Flanagan says insurers like Blue Cross, Kaiser and Blue Shield once relied on a panel of independent doctors to evaluate autistic children to determine whether a treatment called Applied Behavioral Analysis (ABA) was appropriate.
But when the panel continued to recommend the companies fund ABA, they allegedly persuaded the state agency to allow their own employees to do the evaluations. The result: ABA treatments are now routinely denied.
The insurers contend ABA is experimental, or educational, but not medical. Kate Mouvious, whose son is also named Aidan, was diagnosed with autism when he was 2 and a half years old.
“It’s not just one treatment, it’s not chemotherapy, it’s not targeted,” said Mouvious.
“There are so many things you have to try and throw at autism and see what works. ABA is one of those things that works.”
Parents suspect insurers are just trying to protect their bottom line from high long-term costs. But they say state law requires they fund the care even if they don’t like it.
“Autism is a medical diagnosis and they should fund it,” said Sepulveda-Burchit.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.