Archived | Autism Coalition: Message From Kevin Murray, Former Board President | Circa October 2005 #NotAnAutisticAlly

Autism Coalition & Autism Speaks Not An Autistic Ally
Screenshot of letter written by Kevin Murray on the merger of Autism Coalition with Autism Speaks in 2005. Full text below.

In 1998 a group of parents recognized the power of coordinated fundraising, awareness, and advocacy initiatives and formed the Autism Coalition for Research and Education.

Our charter was not to set the agenda for the autism community but to help focus and refine it. Our primary goal was to raise funds to accelerate biomedical and applied research and to work with existing organizations to find the cause, treatments, and cure for our children.

At the time, autism was relatively unknown to the public, and we felt it was imperative to raise awareness about this disorder and advocate for those who couldn’t advocate for themselves. To be successful we realized coordinating the efforts of the many hard-working pioneers in the autism community was essential. We proposed to strengthen our common cause through concerted effort. 

Our grassroots efforts quickly took off, thanks to the incredible support of many dedicated friends. We have come a long way; to date the Coalition has been fortunate to sponsor the autism community’s largest single fundraising events, including the “Night of Too Many Stars,” which was aired nationally on NBC.

Our success has allowed us to be an early sponsor of important pilot research studies, bringing new talent into the field of autism and to be integral in the development of the autism legislation that later became part of the Child Health Care Act, which authorized the establishment of Centers of Excellence for autism research and treatment.

We initiated the creation of an annual symposium, the Autism Organization Leaders Council, which is attended by the country’s major advocacy groups such as CAN, NAAR and ASA. This platform has been instrumental to opening the dialogue in the autism community and has led to larger fundraising and advocacy initiatives. We have come a long way, but with the dramatic increase in the incidence rate to 1 in every 166 children, we still have far to go and are still missing valuable pieces to the puzzle of autism. 

In keeping with our mission and with enormous pride, we are pleased to support the launch of Autism Speaks.

It is a logical next step and our best chance to add those critical missing pieces. With the creation of a national patient network, researchers of all disciplines will have open access to an enormous set of critical comprehensive data on subjects of all ages and types. This will most certainly reduce the high cost and speed the pace of research and lead to real answers for our children.

With the guidance and energy of Autism Speaks Co-Chairs Suzanne and Bob Wright, and with your help, the Autism Speaks campaign will turn the tide on this mysterious epidemic.

We would like to offer our sincere thanks to Bernie Marcus, Phil Geier, and of course to Suzanne and Bob, and to all those with the incredible foresight to begin this campaign for our children’s future. Autism needs to be understood and heard, please take time to listen!

The Autism Community Is Not The Autistic Community

* The “autism community” is not the Autistic Community. The autism community was created by non-Autistic led organizations and includes mostly parents, professionals and their friends. Most of what the world knows about autism is sourced from the non-Autistic “autism community.”

More With Autism Coalition

More in 2005


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism.

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