AS-NIMH Autism Genetics Research in Special Populations
Attendee List
Deputy Executive Director for Research
Coordinator, National Communication Development Program
Prince Salman Center for Disability Research
Riyadh, Saudi Arabia
Phone: (9661)488-4401, ext: 170
Fax: (9661) 488-4628
Email: heidi@pscdr.org.sa
Medical Director, Autism Diagnostic Clinic,
Saudi Autism Society,
Consultant, Pediatric Neurologist
Director, Pediatric Neurology Fellowship Program,
King Faisal Specialist Hospital and Research Center,
Riyadh, Saudi Arabia
Phone: +966-1-464-7272 ext. 32772
Fax: +966-1-442-4763
Email: maldosari@kfshrc.edu.sa
Southwest FDN for Biomedical Research
Department of Genetics
P O Box 760549
San Antonio, TX 78245-0549
Phone: (210) 258-9690
Email: almasy@darwin.sfbr.org
Associate Professor
Dept of Biochemistry, College of Science
King Saud University
P.O Box 8913 Riyadh 11492
Saudi Arabia
Phone +9661 4800908
Fax +9661 4881928
E-mail: altassanna@hotmail.com
Oxford University
Department of Psychiatry
Park Hospital for Children
Old Road, Headington
Oxford OX3 7LQ, UK
Phone: 011 01865 226 515
Email: anthony.bailey@psych.ox.ac.uk
Department of Medical Genetics
Schneider Children’s Medical Center of Israel
Rabin Medical Center Kaplan 14
Petah Tikva 49100 Israel
Phone: 972 3 937 7659
Fax: 972 3 937 7660
Email:LinaB@clalit.org.il
Department of Molecular and Human Genetics
Baylor College of Medicine
One Baylor Plaza, Rm 600D
Houston, TX 77030
Phone: (713) 798-4795
Email: abeaudet@bcm.edu
Director
Division of Neuroscience & Basic Behavioral Science
National Institute of Mental Health/NIH
6001 Executive Boulevard, MSC 9645, Rm 7204
Bethesda, MD 20892
Phone: 301.443.3563
Fax: 301.443.1731
Email: lbrady@mail.nih.gov
Department of Psychiatric Genetics
National Institute of Psychiatry, Mexico
Calz Mexico Xochimilco 101
Col San Lorenzo Huipulco
Email: camare@imp.edu.mx
Massachusetts Inst. Of Technology
Broad Institute
77 Massachusetts Avenue
Cambridge, MA 02139
Business: (617) 252-1931
Email: mjdaly@broad.mit.edu
Associate Professor
University of Pittsburgh
Department of Human Genetics
A300 Crabtree Hall, GSPH
130 Desoto Street
Pittsburgh, PA 15261
Phone: 412.246.6642
Email: devlinbj@msx.upmc.edu
Consultant Pediatrician& Head of Rehabilitation Department
Shafallah Center for Children with Special Needs
69 Lusail Street, West Bay Area
P.O. Box : 4251, Doha – Qatar
Phone: 011 974 4956227
Email: zakaria_s2002@hotmail.com
Director
Shafallah Genetics Medical Center
69 Lusail Street, West Bay Area
P.O. Box : 4251, Doha – Qatar
Phone: (00974) 495-6666
Email: elshantih@gmail.com
University of Texas Health Science Center, San Antonio
7703 Floyd Curl Drive
San Antonio, TX 78229
Business: (210) 562-5109
Email: escamillam@uthscsa.edu
NIH/NIMH
5312 Hampden Lane
Bethesda, MD 20814
Phone: 240-478-4928
Email: sfoote@mail.nih.gov
UCLA Department of Neurology
710 Westwood Plaza
Los Angeles, CA 90095
Business: (310) 206 6814
Email: dhg@mednet.ucla.edu
Clara Lajonchere
Cure Autism NOW/Autism Speaks
5455 Wilshire Blvd., Suite 715
Los Angeles, VA 90036
Business: (323) 297 4715
Email: clara@agre.org
Division of Neuroscience and Basic Behavioral Science
National Institute of Mental Health
6001 Executive Blvd., Room 7190, MSC 9643
Bethesda, MD 20892-9643
Rockville, MD 20852 (for courier/express mail service)
Tel: (301)443-9869
Fax: (301)402-4740
Email: tlehner@mail.nih.gov
Principal Scientist and Chairman
Department of Genetics, Research Centre
King Faisal Specialist Hospital and Research Centre
MBC: 03 P. O. Box 3354
Riyadh 11211 Kingdom of Saudi Arabia
Phone:966 1 442 4263
Mobile:966 050 325 4624
Fax: 966 1 442 4585
Email:meyerb@kfshrc.edu.sa
Executive Director
DC Office of Research Advancement
University of Southern California
701 Pennsylvania Ave., N.W., Suite 540
Washington, DC 20004
Tel: 202.824.5861
Fax: 202.824.5880
Email: moldin@usc.edu
Massachusetts General Hospital
Department of Psychiatry
WACC 812
15 Parkman Street
Boston, MA 02114
Phone: 617.724.6300, Mailbox 134-0376
Fax: 617.726.7541
emorrow@partners.org
Western Psychiatric Institute & Clinic
3811 O’Hara Street #439
Pittsburgh, PA 15213
Business: (412) 246 6353
Email: nimga+@pitt.edu
Cold Spring Harbor Laboratory
Cold Spring Harbor Laboratory
1 Bungtown Rd.
Cold Spring Harbor, NY 11724
Phone (516) 367-8377
Fax (516) 367-8381
Email: sebat@cshl.edu
Yale University
P.O. Box 208047
47 College Street, Suite 203
New Haven, CT 06520
Business: (203) 785-2511
Email: matthew.state@yale.edu
University of California, San Diego
9500 Gilman Drive
La Jolla, CA 92093-0934
Business: (858) 822-2464
Email: mtsuang@ucsd.edu
Beth Israel Deaconess Med Center
Department of Neurology
4 Blackfan Circle, NRB 266
Boston, MA 02115
Business: (617) 667-0813
Email: cwalsh@bidmc.harvard.edu
Associate Director
Developmental Medicine Center
Children’s Hospital
300 Longwood Avenue
Boston, MA 02115
Phone: 617.355.5195
Fax:617.730.0252
Email: Janice.Ware@childrens.harvard.edu
Howard Hughes Medical Institute, BIDMC
Department of Neurology
Harvard Medical School
77 Avenue Louis Pasteur, NRB 266
Boston, MA 02115
Lab: 617-667-0891
Fax: 617-667-0815
Email: syoo@bidmc.harvard.edu
Note/Warning:
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.
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