Archived | Autism Speaks – NIMH Autism Genetics Research in Special Populations Attendee List | Circa October 2007 #AutisticHistory #NotAnAutisticAlly

AS-NIMH Autism Genetics Research in Special Populations

Attendee List

Heidi Alaskary

Deputy Executive Director for Research

Coordinator, National Communication Development Program

Prince Salman Center for Disability Research

Riyadh, Saudi Arabia

Phone: (9661)488-4401, ext: 170

Fax: (9661) 488-4628

Email: heidi@pscdr.org.sa


Mohammed Aldosari

Medical Director, Autism Diagnostic Clinic,

Saudi Autism Society,

Consultant, Pediatric Neurologist 
Director, Pediatric Neurology Fellowship Program,

King Faisal Specialist Hospital and Research Center,
Riyadh, Saudi Arabia
Phone: +966-1-464-7272 ext. 32772
Fax: +966-1-442-4763
Email: maldosari@kfshrc.edu.sa


Laura Almasy

Southwest FDN for Biomedical Research 

Department of Genetics

P O Box 760549

San Antonio, TX 78245-0549

Phone: (210) 258-9690

Email: almasy@darwin.sfbr.org


Nada Al-Tassan

Associate Professor

Dept of Biochemistry, College of Science

King Saud University 

P.O Box 8913 Riyadh 11492 

Saudi Arabia

Phone +9661 4800908

Fax +9661 4881928

E-mail: altassanna@hotmail.com


Anthony Bailey

Oxford University

Department of Psychiatry

Park Hospital for Children

Old Road, Headington

Oxford OX3 7LQ, UK

Phone: 011 01865 226 515

Email: anthony.bailey@psych.ox.ac.uk


Lina Basel-Vanagaite

Department of Medical Genetics

Schneider Children’s Medical Center of Israel 

Rabin Medical Center Kaplan 14 

Petah Tikva 49100 Israel

Phone: 972 3 937 7659

Fax: ​972 3 937 7660

Email:​LinaB@clalit.org.il


Arthur Beaudet

Department of Molecular and Human Genetics

Baylor College of Medicine

One Baylor Plaza, Rm 600D

Houston, TX 77030

Phone: (713) 798-4795

Email: abeaudet@bcm.edu


Linda Brady

Director

Division of Neuroscience & Basic Behavioral Science

National Institute of Mental Health/NIH

6001 Executive Boulevard, MSC 9645, Rm 7204

Bethesda, MD 20892

Phone: 301.443.3563

Fax: 301.443.1731

Email: lbrady@mail.nih.gov


Beatriz Camarena

Department of Psychiatric Genetics

National Institute of Psychiatry, Mexico

Calz Mexico Xochimilco 101

Col San Lorenzo Huipulco

Email: camare@imp.edu.mx


Mark Daly

Massachusetts Inst. Of Technology

Broad Institute

77 Massachusetts Avenue

Cambridge, MA 02139

Business: (617) 252-1931

Email: mjdaly@broad.mit.edu


Bernie Devlin

Associate Professor

University of Pittsburgh
Department of Human Genetics
A300 Crabtree Hall, GSPH
130 Desoto Street
Pittsburgh, PA 15261 

Phone: 412.246.6642

Email: devlinbj@msx.upmc.edu


Zakaria El-Sayed

Consultant Pediatrician& Head of Rehabilitation Department

Shafallah Center for Children with Special Needs

69 Lusail Street, West Bay Area
P.O. Box : 4251, Doha – Qatar

Phone: 011 974 4956227

Email: zakaria_s2002@hotmail.com


Hatem El-Shanti

Director

Shafallah Genetics Medical Center

69 Lusail Street, West Bay Area
P.O. Box : 4251, Doha – Qatar

Phone: (00974) 495-6666

Email: elshantih@gmail.com


Michael Escamilla

University of Texas Health Science Center, San Antonio

7703 Floyd Curl Drive

San Antonio, TX 78229

Business: (210) 562-5109

Email: escamillam@uthscsa.edu


Steve Foote

NIH/NIMH

5312 Hampden Lane

Bethesda, MD  20814

Phone:  240-478-4928

Email:  sfoote@mail.nih.gov


Daniel Geschwind

UCLA Department of Neurology

710 Westwood Plaza

Los Angeles, CA 90095

Business: (310) 206 6814

Email: dhg@mednet.ucla.edu


Clara Lajonchere

Cure Autism NOW/Autism Speaks

5455 Wilshire Blvd., Suite 715

Los Angeles, VA 90036

Business: (323) 297 4715

Email: clara@agre.org


Thomas Lehner


Division of Neuroscience and Basic Behavioral Science
National Institute of Mental Health
6001 Executive Blvd., Room 7190, MSC 9643
Bethesda, MD 20892-9643
Rockville, MD 20852 (for courier/express mail service)
Tel: (301)443-9869
Fax: (301)402-4740
Email: tlehner@mail.nih.gov


Brian F. Meyer

Principal Scientist and Chairman

Department of Genetics, Research Centre

King Faisal Specialist Hospital and Research Centre

MBC: 03 P. O. Box 3354

Riyadh 11211 Kingdom of Saudi Arabia

Phone:​966 1 442 4263

Mobile:​966 050 325 4624

Fax: 966 1 442 4585

Email:​meyerb@kfshrc.edu.sa


Steve Moldin

Executive Director

DC Office of Research Advancement

University of Southern California

701 Pennsylvania Ave., N.W., Suite 540

Washington, DC 20004

Tel: 202.824.5861

Fax: 202.824.5880

Email: moldin@usc.edu


Eric Morrow

Massachusetts General Hospital

Department of Psychiatry

WACC 812

15 Parkman Street

Boston, MA 02114

Phone: 617.724.6300, Mailbox 134-0376

Fax: 617.726.7541

emorrow@partners.org


Vishwajit Nimgaonkar

Western Psychiatric Institute & Clinic

3811 O’Hara Street #439

Pittsburgh, PA 15213

Business: (412) 246 6353

Email: nimga+@pitt.edu


Johnathan Sebat

Cold Spring Harbor Laboratory

Cold Spring Harbor Laboratory

1 Bungtown Rd.

Cold Spring Harbor, NY 11724

Phone (516) 367-8377

Fax (516) 367-8381

Email: sebat@cshl.edu


Matthew State

Yale University

P.O. Box 208047

47 College Street, Suite 203

New Haven, CT 06520

Business: (203) 785-2511

Email: matthew.state@yale.edu


Ming Tsuang

University of California, San Diego

9500 Gilman Drive

La Jolla, CA 92093-0934

Business: (858) 822-2464

Email: mtsuang@ucsd.edu


Christopher Walsh

Beth Israel Deaconess Med Center

Department of Neurology

4 Blackfan Circle, NRB 266

Boston, MA 02115

Business: (617) 667-0813

Email: cwalsh@bidmc.harvard.edu


Janice Ware

Associate Director

Developmental Medicine Center

Children’s Hospital

300 Longwood Avenue

Boston, MA 02115

Phone: 617.355.5195

Fax:617.730.0252

Email: Janice.Ware@childrens.harvard.edu


Seung-Yun Yoo

Howard Hughes Medical Institute, BIDMC

Department of Neurology

Harvard Medical School

77 Avenue Louis Pasteur, NRB 266

Boston, MA 02115

Lab: 617-667-0891

Fax: 617-667-0815

Email: syoo@bidmc.harvard.edu



Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.


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