AUTISM SPEAKS: TERMS AND CONDITIONS OF FUNDING
Autism Speaks’ Terms and Conditions for 2006 and 2007 AwardsAutism Speaks’
Research and Mentor-Based Fellowship Awards
All Awards granted by the Autism Speaks are subject to the terms and conditions described herein. Deviations from the policies described herein are valid only if stated in writing and approved by the Director of Scientific Review of Autism Speaks. All research undertaken with Autism Speaks’ grant funds is the sole responsibility of the Principal Investigator of the grant. Both the Principal Investigator and Sponsoring Institution are responsible for insuring that all research activities are conducted in a safe, responsible and ethical manner.
Grant Period and Payments
An investigator may request support only for the period of time (usually one, two or three years), specified in the governing research announcement. Autism Speaks typically makes awards in one year increments. Although Autism Speaks intends to fund subsequent years of multi-year Awards, the Principal Investigator acknowledges and accepts that the subsequent years of funding requested in the original grant application are contingent on the timely submission of annual non-competitive progress and financial reports that are satisfactory to Autism Speaks, and on the availability of funds to Autism Speaks. The funding period for each research project will start on or about the date specified in the governing announcement, or an alternative date approved by the Autism Speaks Director of Scientific Review. Grant payments will be disbursed to the Sponsoring Institution on an annual basis, usually in the month following acceptance of the terms and conditions of the award and receipt all necessary documentation specified in the award notification.
Research and Fellowship Proposals
The Principal Investigator agrees to commence the research or fellowship project described in the Proposal on or about the time that the first grant payment is received by the Sponsoring Institution. If the Principal Investigator is unable to commence the project at the time of the first grant payment, the Director of Scientific Review should be immediately notified, after which Autism Speaks may, at its discretion, choose to terminate the grant. Funds provided by the grant are for the purposes of conducting the research described in the Proposal (as modified by agreement between the PI and Autism Speaks as a condition of the award) and may not be used for any other purpose without the express written consent of Autism Speaks Director of Scientific Review. An amount equal to no more than 10% of the direct costs allocated for the project shall be used for indirect costs (Sponsoring Institution’s overhead) unless otherwise specified in the research announcement. Allowable expenses by category shall be specified in the budget included in the Proposal submitted to Autism Speaks. Funds that are unexpended or uncommitted at the termination of the grant shall be remitted to Autism Speaks within sixty days.
Fellowship Stipend and Research Allowances
2006 Pre-Doctoral Fellowships: Stipends range from $21,000 to $24,000 depending upon years of prior training. A $5,000 research allowance is provided to partially cover fringe benefits, research and related costs, and professional travel. The sponsoring institution’s indirect costs are covered by this fellowship award.
2006 Post-Doctoral Fellowships: Stipends range from $35,000 to $53,000 depending upon the number of years of the fellow’s relevant post-doctoral and/or clinical experience. A $6,000 research allowance is provided to partially cover fringe benefits, supplies and travel. The sponsoring institution’s indirect costs are covered by this fellowship award.
2007 Pre-Doctoral Fellowships: Stipends range from $22,000 to $26,000 depending upon years of prior training. A $6,000 research allowance is provided to partially cover fringe benefits, supplies and travel. The sponsoring institution’s indirect costs and tuition reimbursement are not covered by this fellowship award.
2007 Post-Doctoral Fellowships: Stipends range from $35,000 to $55,000 depending upon the number of years of the fellow’s relevant post-doctoral and/or clinical experience. A $6,000 research allowance is provided to partially cover fringe benefits, supplies and travel. The sponsoring institution’s indirect costs and tuition reimbursement are not covered by this fellowship award.
Annual Progress and Financial Reports
Funding for the subsequent years of a multi-year award is contingent upon the timely submission and approval of a non-competitive progress and financial report through the online Autism Speaks Grants Administration System. An initial progress report and financial report are due no later than ten (10) months from the date of official award notification, and every 12 months thereafter for the life of the award. . The Annual Progress Report shall include a description and/or findings of the Research Proposal to date as well as any unanticipated problems or substantial deviations from the research aims outlined in the original Proposal. An interim financial report signed by the responsible administrative official at the Sponsoring Institution must accompany each progress report. Detailed instructions for completion of progress and financial reports are provided on the Grants Administration System web site.
The Principal Investigator shall be responsible for notifying the Autism Speaks Grants Administrator of any significant problems that will delay the progress of the project for more than six months. Failure by the Principal Investigator to notify Autism Speaks of a project delay may delay or cancel subsequent funding increments.
Final Progress and Financial Reports, and No-Cost Extension
The Principal Investigator shall be responsible for submission of a Final Progress Report through the online Autism Speaks Grants Administration System no later than sixty days after the termination of the grant. The Final Progress Report should clearly describe (a) the objectives and significant findings of the research, (b) future directions suggested by the research, (c) any proposals resulting from the Autism Speaks-funded research that are being submitted to the NIH or other similar funding agency to continue or expand the scope of the work, and (d) a list of manuscripts in preparation, submitted, in press or published reporting the results of the Autism Speaks supported research. A Final Report of Expenditures signed by the responsible administrative official at the Sponsoring Institution should accompany the Final Progress Report along with a refund of any unexpended funds awarded by Autism Speaks. Refund checks should be sent to the attention of the Autism Speaks Grants Administrator.
An investigator may request a one-time, six-month no-cost extension at least sixty (60) days prior to the termination date of an award in order to complete necessary work (including data analysis and preparation/submission of manuscripts for publication). A progress and financial report with the request and justification for the six-month no-cost extension must be submitted through the online Autism Speaks Grants Administration. The final progress and financial reports will be due 60 days after the termination of the no-cost extension.
Proposals from an investigator with an outstanding final progress report sixty days after the completion of an Autism Speaks funded project will not be accepted for review unless and until the outstanding final progress report is submitted to and approved by Autism Speaks. The Principal Investigator should be aware that Autism Speaks, at its discretion, may provide copies of interim and final Progress Reports to any Autism Speaks Research Partners that are supporting the Principal Investigator’s Award, and also may use all or portions of the Final Progress Report for public dissemination, such as a report in its newsletter and other similar publications.
Competing Renewal Applications
An application for competing renewal of a previously funded grant will be accepted for review only as specified in the original research announcement. Submission of a final progress report and financial report for the terminating grant are still required as described above. In addition, a competing renewal application should include in the research plan a summary of the significant findings and results from the previously funded grant and their relationship to the renewal application (not to exceed two pages).
Publication Policy and Resultant Funding
It is expected that the Principal Investigator will notify Autism Speaks of future research awards resulting in whole or in part from the Autism Speaks research award using the online Grants Administration System or by email to firstname.lastname@example.org. It is expected that the results of research supported by Autism Speaks will be published as rapidly as possible in reputable and recognized scientific journals, consistent with acceptable standards of scientific excellence and peer review. The responsibility for publication lies exclusively with the Principal Investigator and the results of any work supported through Autism Speaks may be published without prior review by Autism Speaks. Any publication or funds leveraged arising in whole or in part from an Award funded by Autism Speaks shall acknowledge funding support by Autism Speaks and any Autism Speaks Research Partner that co-sponsored the Autism Speaks Research Award. As soon as manuscript is accepted for publication (whether during the term of the award or after it has expired) a copy of the final manuscript along with the name of the journal and expected date of publication MUST BE submitted to the web-based Autism Speaks Grants Administration system. Immediately upon publication, a pdf file of the published manuscript should be submitted to the Autism Speaks Grants Administration system.
Discoveries and related regulatory approvals made under Autism Speaks’ sponsorship are the property of the Sponsoring Institution or Principal Investigator conducting the research; provided, however, that Autism Speaks shall have the right of royalty-free use for noncommercial purposes of such discoveries. The Sponsoring Institution and Principal Investigator are responsible for insuring that complete public disclosure of all commercially usable information is made as soon as practical. The Principal Investigator and Sponsoring Institution are also responsible for notifying Autism Speaks of the filing of any letters of patent application for any discovery resulting from research funded by Autism Speaks.
Termination of the Award
An award may be terminated or canceled by Autism Speaks upon 30 days written notice to the Principal Investigator and Responsible Administrative Official at the Sponsoring Institution if, in the sole discretion of Autism Speaks, (a) the Principal Investigator is unable to carry out the research for any reason or to conduct the research in a timely manner, (b) the Principal Investigator or any member of his/her research team is found by an institutional investigation to have committed scientific misconduct or fraud, (c) the Principal Investigator has failed to comply with any of the terms and conditions of this award, (d) Autism Speaks determines that the Principal Investigator has received funding from another source that duplicates or significantly overlaps the Autism Speaks award during the term of the award or (e) awarded funds are not being used for the purposes originally outlined in the Proposal. In the event of cancellation or termination, all unexpended funds as of the termination/cancellation date must be returned to Autism Speaks within 45 days of such written notice.
Transfer or Retirement of the Principal Investigator
If prior to the termination of the grant, the Principal Investigator’s employment, affiliation or other relationship with the Sponsoring Institution is terminated for any reason, the grant will be terminated and all unexpended or uncommitted funds shall be returned to Autism Speaks within 45 days. Research awards may not be transferred to another individual working at the Sponsoring Institution and may not be transferred to any other institution without the prior written consent of Autism Speaks Director of Scientific Review. If the transfer of a grant is approved, a de-obligation letter will be initiated by the Autism Speaks Grants Administrator reflecting the amount of funds to be returned to Autism Speaks within thirty (30) days of receipt of the letter.
Ownership of Equipment
Title to all equipment purchased with Autism Speaks’ funds shall vest in Autism Speaks for the duration of the Research Award and for a period not to exceed sixty days from the termination date of the award. During this time, Autism Speaks may, upon receipt of a written request, direct the transfer of title to the equipment to the Sponsoring Institution, the Principal Investigator or to a third party. After such time, title to the equipment shall automatically revert to the Sponsoring Institution.
To the extent allowed by United States federal, state and trust law, the Sponsoring Institution agrees to defend, indemnify and hold Autism Speaks , its officers, trustees, employees and agents harmless from and against any and all damages, claims, liabilities or demands which may be made or asserted by reason of: (a) any injury or loss to persons or property sustained for whatever reason whatsoever by the Sponsoring Institution, Principal Investigator or its or their officers, employees, agents, subcontractors, patients, visitors or other individuals who may be involved in the research outlined in the Proposal of the Award application, and (b) any injury or loss to persons or property sustained for any reason whatsoever by any person caused by or otherwise attributable to acts of omission or commission of persons performing work pursuant to the research project.
The Principal Investigator and Sponsoring Institution are responsible for notifying Autism Speaks immediately and in writing of any institutional investigation into the conduct of the Principal Investigator or any member of his/her research team, including, in the case of research involving human subjects, any suspension or termination of IRB approval or of research at such Sponsoring Institution, and for keeping Autism Speaks informed on a timely basis of the progress and outcome of any investigation.
For research involving human subjects, the Sponsoring Institution shall certify that the proposed research project has been reviewed and approved in writing by an accredited university or medical school Institutional Review Board (IRB) constituted in accordance with current regulations promulgated by the United States Department of Health and Human Services (HHS) and approved by HHS, or by the Association for the Accreditation of Human Research Protection Programs (in the absence of an HHS approved university or medical school IRB).
Legally acceptable informed consent must be secured from all human subjects taking part in any research funded in whole or in part by Autism Speaks in accordance with and to the extent required by current regulations promulgated by the United States Department of Health and Human Services and approved by HHS.
IRB certification should be documented by submitting a copy of the institutional letter of approval, which identifies the Principal Investigator, project title and date of approval, and is signed by the IRB Chair or equivalent responsible institutional official.
Prior IRB certification for another project cannot be substituted, but can be officially amended to include the proposed project.
IMPORTANT: In the event of an award, funds will NOT be released unless and until proof of IRB certification is received.
Proposals from investigators at non-US institutions must adhere to ethical standards for the protection of human subjects that are at least equivalent to US standards, and to the legal requirements of the country of origin. Certification of ethical standards review and approval should be documented by submitting a letter (signed by the Principal Investigator, and if possible, a responsible institutional or governmental official), which cites all relevant approval and license numbers and dates required by the country of origin, including a short description of the substance and scope of each relevant license or approval and how it applies to the Principal Investigator and the proposed project. In the absence of an official ethical review board (or equivalent) or legal requirements, the PI and Sponsoring Institution must agree in writing to adhere at minimum to the World Medical Association Declaration of Helsinki: Ethical Principals for Medical Research Involving Human Subjects.
For research involving animals, the Sponsoring Institution shall ensure compliance with applicable chapters of the Public Health Service Animal Welfare Policy, the NIH Manual for Grants and Contracts, and any and all requirements of the Sponsoring Institution concerning animal welfare. Certification by the Institution Animal Care and Use Committee (IACUC) or equivalent should be documented by submitting a copy of the institutional letter of approval, which identifies the Principal Investigator, project title, and date of approval, and is signed by the IACUC Chair or equivalent responsible institution official. Prior IACUC certification for another project cannot be substituted, but can be officially amended to include the proposed project. IMPORTANT: In the event of an award, funds will NOT be released unless and until proof of IACUC certification is received.
Proposals from investigators at non-US institutions must adhere to ethical standards for the care of use of animals for research purposes that are at least equivalent to US standards and to the legal requirements of the country of origin, and must so certify in writing.
The Principal Investigator and the Sponsoring Institution are responsible for ensuring that the research project described in the Research Proposal is not simultaneously sponsored or funded by any other entity or organization. The Principal Investigator agrees to notify Autism Speaks immediately if support for the research project is obtained from another funding source during the term of the Autism Speaks award. Any funds awarded by Autism Speaks may be withdrawn should funding be received for the same purposes from other sources.
As a condition of a research or fellowship award, the Principal Investigator agrees that a representative of Autism Speaks may visit the laboratory conducting the Autism Speaks sponsored research during the term of the award and upon reasonable prior notification.
Any notices or other communications among Autism Speaks , the Principal Investigator and the Sponsoring Institution shall be sent by US Mail, certified mail, return receipt requested, or by overnight courier, and addressed to Autism Speaks at 99 Wall Street, Research Park, Princeton, NJ 08540 Attention: Susan Kravitz, Grants Administrator, and to the Principal Investigator and the Sponsoring Institution at such address as appeared on the Research Proposal submitted to Autism Speaks or to such other address as shall have been specified in writing to the other parties and delivered in accordance with this section.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.