The Costs of Autism – Latest Report (note: not available at this time)
Nikken Europe, part of the global company that promotes wellness through its life enhancing product range, has found a unique way of supporting Autism Speaks.
With every sale of Nikken’s magnetic sports bracelet, a donation is made to Autism Speaks. Since the launch of the bracelets in the summer, they have been selling like hot cakes and to date, a fabulous £33,766 has been donated to Autism Speaks.
We are extremely grateful to Nikken for their generous support.
Research into Autism is severely under-funded. New Philanthropy Capital Report on Autism and Recommendation of Autism Speaks.
Sarah Brown hosts Number 10 reception for Autism Speaks (Note: Included below)
The All-Party Parliamentary Group on Autism aims to account for the difference between the policies we debate in Parliament and what we hear about the impact of those policies from parents, professionals and people with autism.
Read their key findings of this report and MP recommendations (view below)
A life less ordinary – People with autism, a guide for donors & funders
Charity Insight: “Only 6% of adults with autism are in full-time employment “
autism west midlands runs ASpire, an employment programme that helps people with autism find and keep a job.
2007, 96 pages.
Adrian Fradd & Iona Joy
Did Einstein have autism ?
In 2003, two autism specialists from Oxford and Cambridge argued that the famous physicist demonstrated three primary characteristics of autism—obsessive interests, social difficulties and problems communicating.If he did have autism, Einstein represents just one end of the vast autistic spectrum. This complex condition, with no clear cause or standard treatment, is estimated to affect around one person in every hundred, with people with autism ranging from prisoners to PhD students.
NPC’s latest report, A life less ordinary, explores the issues surrounding autism and the lives of the people it affects.
The report suggests practical ways donors can help, from funding innovative research to helping children learn skills to cope with the difficult transition to adulthood. We highlight charities changing the lives of people with autism, including:
Research Autism, which funds research into improving the quality of life for people with autism. Recently, the charity developed a screening instrument for use in prisons, to identify inmates who may have autism and need specialist support.
Prior’s Court, which runs a residential school for children with autism. Each child has a personalised time-table of activities, which is adapted as they grow older to increase their independence and vocational skills.
By funding the work of successful charities, donors can help to increase knowledge about the condition and enhance the lives of people with autism.
Take a look at NPC’s associated charity recommendations or contact NPC for more information.
NUMBER 10 DOWNING STREET RECEPTION
On September 11th, Mrs Sarah Brown, wife of Prime Minister Gordon Brown, hosted her first charity reception at No.10 Downing Street – and it was for Autism Speaks.
A wonderful event, guests included those who have supported the charity significantly – either by giving funds, raising funds or volunteering on our behalf. There were a number of parents of children with autism, as well as a cohort of senior researchers.
Mrs Brown showed a high level of interest in autism and the work of Autism Speaks and we were delighted that she took the time to talk personally to almost all of those present.
The Prime Minister later joined the reception and our Chair of the Trustees, Dame Stephanie Shirley, was able to secure a commitment to regular update meetings on autism One intrepid fundraiser secured a personal contribution from Gordon Brown for his trek across the Gobi Desert!
Everyone present thoroughly enjoyed the reception. and the chance to see behind that wonderfully shiny front door. It was also a good opportunity for researchers, parents and key supporters to network and become more acquainted with each other.
ALL PARTY PARLIAMENTARY GROUP ON AUTISM KEY FINDINGS
- Almost half (44%) of officials and 70% of councillors were not aware of the autism exemplar chapter of the NSF.
- l Only 35% of officials and 10% of councillors said their authority uses the autism exemplar chapter of the NSF.
- l Authorities with a named manager responsible for autism were far more likely to be aware of the autism exemplar and to use it.
- l Awareness amongst councilors was much lower than amongst officials.
- Around half of officials said they keep a count of the number of children with autism and the total number of disabled children.
- l Over 20% do not share information on children with autism with any other agencies.
- No respondents said that all staff in health, social care or education were trained in autism.
- l Only 4% said that all children with a need for speech and language therapy included in a statement of special educational needs (SEN) receive the full provision.
- Funding was by far the biggest constraint to implementing the NSF: 73% of all respondents said it was a big constraint; no officials and only one councillor said it was not a constraint.
- The second largest perceived constraint was the presence of other, more urgent priorities.
What MPs can do
MPs can take a number of actions to support the work of the All-Party Parliamentary Group on Autism (APPGA) and drive forward the implementation of the Children’s NSF. Contact the Clerk to the APPGA on 020 7903 3769 or email firstname.lastname@example.org for further information.
Join the APPGA
Sign up to the APPGA manifesto
Become a ‘manifesto champion’ and drive forward one of the objectives in the APPGA manifesto
Take the following actions in your constituency:
- Ask the Ministers responsible how they will ensure that the Comprehensive Spending Review will deliver for people with autism.
- Convene a meeting with the local authority, primary care trust (PCT) and local voluntary groups to discuss joint working in provision of autism services.
- Ask your local authority and PCT whether they use the autism exemplar chapter of the NSF, and how they use it.
- Ask local agencies whether they collaborate to ensure a multi-agency assessment is available for children with suspected autism.
- Ask whether local agencies maintain a database on the number of children with autism, and the total number of disabled children, that is routinely shared with other agencies.
- Ask whether your local authority provides a key worker service for families of children with autism, and how it decides who receives the service. Is the Early Support Programme used to provide integrated support after a diagnosis?
- Ask your local authority how training in autism and disability is delivered and cascaded. Many local and national voluntary organisations are able to provide autism training.
- Ask what arrangements are in place for joint working in relation to speech and language therapy. Does the local authority work with schools and PCTs to ensure that therapy is delivered where there is a need, regardless of statements?
- Ask whether councillors in your area are engaged in the development of services for children and adults with autism and disabilities more generally.
- .Ask whether your local authority has appointed a named manager with responsibility for autism. Tell them about the benefits of this approach suggested by this survey.
- .Ask whether and how the Children’s National service framework is incorporated into your local authority’s Children and Young People’s Plan.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.