Listening To You: The Newsletter for AGRE Families
Autism Genetic Resource Exchange
A Successful Year for AGRE
AGRE has expanded the collection of clinical data and genetic material to include over 600 families. As a result, AGRE is now the world’s largest autism gene bank that is made available to researchers through the world. Ten years ago, a family collection fro the genetic study of autism was little more than a dram of the family members and scientists who started Cure Autism Now. Their goal has always been to help scientists to find genes that would leave to new therapies, and perhaps even a cure, for individuals diagnosed with autism spectrum disorders.
In November, Clara Lajonchere, Ph.D., AGRE Program Director, was invited to attend a conference on autism genetics by Foundation Autisme, a parent advocacy group in Paris, France. The conference was sponsored by IntegraGen, a French biotech firm, that has purchased AGRE samples in the past.
CAN and AGRE are excited about the potential partnerships with organizations like Foundation Autisme in Europe and abroad.
2005: Looking Ahead
Over the last eight years AGRE’s primary mission has been to support autism researcher in their investigations. As a result, researchers have made remarkable progress in identifying several chromosomal regions associated with the disorder. Researchers know that autism is not caused by one gene, but believe it is the result of the interaction of many genes. Because of the complexity of the disorder and differences in individual symptom profiles, AGRE will continue to spearhead autism research.
AGRE’s Key Objectives for 2005:
- Continue commitment to recruit families with two or more children diagnosed with autism, PDD, or Asperger’s Disorder. Recruiting additional families will build the resource to its largest capacity, thereby increasing adequate statistical power for genetic analysis.
- Increase public and private partnerships. These collaborations will position AGRE to further support new investigators, aid in rapid replication of new findings, and facilitate the immediate applications of the latest tools and technologies.
- Expand data collection to broaden available to researchers worldwide. Creating a centralized repository of the latest findings in genetics, will aid researchers interested in the field to ask the right questions and avoid duplication of efforts.
More With AGRE
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.