Archived | Interactive Autism Network (IAN): Moving Autism Research Into The Future (Spark! & Autistica) | Circa March 19, 2019 #NotAnAutisticAlly

MOVING AUTISM RESEARCH INTO THE FUTURE

Date Last Revised: June 30, 2019

Date Published: March 19, 2019

After 13 years, the Interactive Autism Network (IAN) has closed. Thanks to all of the families, researchers, community members, and staff who have done so much to advance knowledge about autism spectrum disorder (ASD).

The IAN Community website will be available to view through 2021, but we will not be updating the site.

IAN is partnering with SPARK, and some of IAN’s staff members are working with the SPARK team, while others are moving on to other projects.

We encourage you to learn about and participate in ASD research through the following projects that offer long-term research opportunities:

UNITED STATES

SPARK

IAN  partnered with SPARK to build a research community of tens of thousands of individuals with autism and their families.

SPARK participants are asked to share medical and genetic information with scientists and agree to be contacted about other research studies.

The information participants share with SPARK researchers powers important new autism research that aims to advance the understanding of autism and provide meaningful information and resources to the community.

The entire U.S. autism community is invited to participate in SPARK.

LEARN ABOUT SPARK


* The “autism community” is not the Autistic Community. The autism community was created by non-Autistic led organizations and includes mostly parents, professionals and their friends. Most of what the world knows about autism is sourced from the non-Autistic “autism community.”


OUTSIDE OF THE UNITED STATES

(Links here are original)

AUSTRALIA

The Autism Register

CANADA

Autism Spectrum Disorders — Canadian-American Research Consortium (ASD-CARC)

IRELAND

Irish Autism Registry

UNITED KINGDOM

Autism Spectrum Database-UK (ASD-UK)

Autistica Discover Network

WORLDWIDE

If you do not see a research registry or project in your country in this list, we recommend that you contact a local autism advocacy organization. They may be able to direct you to research in your area.


More with Interactive Autism Network …



Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.


Explore Autistic History


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