Autism Speaks, Autism Society of America, Bradley Whitford, Tom Insel, Bob Wright, Marguerite Colston and other Autism organizations and influencers speak at the Autism Treatment and Research Hearing about controversial therapies in 2007.
Autistics weren’t included.
There was a lot happening back in 2007. In the United States, the Combating Autism Act had just been signed in Dec. of 2006. Some months later there was a Senate hearing to talk about the funding needs of this act, and where that money should be allocated.
This is where the Autism Wars go from ugly to OMFG. Not long after this hearing, an article is published about the Wright family having a falling out over their views on autism. This family fight affected every Autistic on the planet. It’s still affecting us today. More on that later. I’ll share about this in an upcoming wake. Bake. Caffeinate. Episode.
At the hearing, Dr. Tom Insel talked about autism research initiatives the the National Institutes of Health (NIH) and various statistical analyses associated with research.
He was followed by a panel of parents who testified about their experiences with autistic children and treatments for the disease.
APRIL 17, 2007
Autism Treatment and Research
Witnesses testified about the prevalence of autism and policy implications for health care in the U.S. Among the topics they addressed were combating autism, available treatments, research into the disease, and coordinating a federal response to the problem.
View Original Testimony Video : https://www.c-span.org/video/?197628-1/autism-treatment-research
In this clip:
The 2007 Autism Hearing That Didn’t Include Autistics But Did Include NIMH’s Dr. Tom Insel & ABA Fail Rate Pt. 4
Dr. Thomas Insel, Director of the National Institutes of Mental Health (NIMH) states his testimony at the 2007 Autism Treatment and Research Hearing in the United States.
Thankfully, Insel didn’t refer to autism as a disease, and elaborated that autism is a neurodevelopmental disorder. He gets really iffy about the vaccines – autism link though. He states scientists no longer debate nature vs. nurture because both are at work, and that’ s the same approach with environment and genetics argument. They influence each other. This only fans the flames with the pseudoscience crowd with Insel’s less than definitive answer. To be clear: Vaccines do NOT cause autism. This Andrew Wakefield theory was debunked as a lie and elaborate fraud by Brian Deer already in 2004.
It appears that Insel is straddling the fence here to keep both the ‘gene hunter’ cure movement and the ‘vaccines cause autism’ pseudoscience movement appeased.
Insel did not speak to Autistics and we’re not included in this hearing about us.
However, Insel is noted for his work with Harry and Laura Slatkin, Jim and Marilyn Simons, and Bob and Suzanne Wright in 2003. They met at dinner and Insel gave them insight on how to approach autism. These folks went on to launch their own autism organizations: NYCA/NEXT for Autism, Autism Speaks and SFARI.
The influence of both the parent-led cure movement and the parent-led pseudoscience movement can be seen and heard in the language here. Insel echos Jenny McCarthy’s speech pattern when he states ABA will help “not all children with autism, but some children with autism” speech and then states ABA is successful in 25% to 30% of Autistic children.
From this testimony, what Dr. Insel is really saying is: ABA has a failure rate of 70 – 75%.
Yes, the Director of NIMH stated ABA’s fail rate as a ‘success.’ So, by Insel’s statement, ABA doesn’t work for MOST Autistic children.
In fact, ABA is a very controversial ‘therapy’ being pushed as the great savior. ABA with non-Autistic children would be considered child abuse. Yet there’s no conversation here about putting Autistic toddlers and young children in 40-hours a week of ABA. The absurdity of putting a baby through essentially a full-work week in an attempt to re-wire their brain isn’t mentioned. Nor is there any conversations about the outcome for Autistic children who weren’t re-wired successfully with their therapy or their outcomes.
This is the only hope offered with a 60,000 a year price tag to vulnerable parents. Later studies will show the effects of ABA on young Autistics with the high rates of PTSD and other lifelong trauma-related conditions. Also, ABA encourages Autistic masking and that leads to Autistic burnout. Autistic Burnout is incredibly dangerous and a life-threatening issue for Autistics that is not well understood by scientists yet.
With this this fail rate, insurance companies were forced to cover ABA as ‘medically necessary.’ The autism prevalence language used in 2007 is now used as a prediction for profit the Autism Market – and the Autism Market is booming in 2021 with the profits is in the billions.
Insel also speaks to autism being autisms – as in more than one. This is inaccuracy that statement floods the ‘autism community’ and still confuses parents today. There is autism and co-morbidities. Often the descriptions used for autism by parents and others are describing a co-morbidity of autism – not autism itself. You can’t ‘cure’ or ‘treat’ autism, but many co-morbidities can be helped or treated. We know now that conditions, like Ehlers Danlos Syndrome (EDS), can be rare in the neurotypical population but are common in the Autistic population.
Adam Pockriss – firstname.lastname@example.org/212.843.8286
Julia Tomkins – email@example.com/212.843.9223
FOR IMMEDIATE RELEASE
FORMER NIMH DIRECTOR
DR. THOMAS INSEL NAMED TO AUTISM SCIENCE FOUNDATION BOARD OF DIRECTORS
NEW YORK, NY (November 9, 2017) – The Autism Science Foundation (ASF), a not-for-profit organization dedicated to catalyzing innovative autism research, today announced the appointment of Thomas R. Insel, M.D., president and co-Founder of Mindstrong Health, to its Board of Directors. Dr. Insel is the Former Director of the National Institute of Mental Health (NIMH) and led mental health initiatives at Google X Life Sciences (now Verily Life Sciences).
“Tom is one of the world’s leading authorities in neuroscience and has been a strong and respected voice advocating for excellence and urgency in the field of autism research,” said Alison Singer, president and co-founder of the Autism Science Foundation.
“His insight has been invaluable as a member of our SAB, and we are delighted that he will be playing an expanded role in helping to chart the course for our organization and its research agenda.”
Most recently, Dr. Insel co-founded Mindstrong Health, an innovative startup that is redefining behavioral healthcare by developing technologies to diagnose and treat brain disorders. Its technology will give patients and providers a method to objectively and continuously measure mood, cognition, and behavior both at home and at work, delivering insights not possible with traditional clinical, neuropsychological, and imaging techniques.
“I am pleased to take on this new role as an ASF board member because I support the mission and the results-oriented approach of this impressive organization,” said Dr. Insel.
“This is an exciting time for ASF as it continues to expand its influence and deepen its reputation as a critical funder of innovative autism research and I am thrilled to be a part of it.”
From 2002 until 2015, Dr. Insel led the National Institute of Mental Health (NIMH) where he focused on serious mental illnesses with a defining theme of disorders of brain circuits, including schizophrenia, bipolar illness, and major depressive disorder. He established autism as a major area of focus for NIMH and led a large increase of NIH funding for autism science. Under Dr. Insel’s leadership, NIMH became a leader in global mental health, working closely with the World Health Organization and the Global Alliance for Chronic Disease.
After ending his 13-year tenure at the NIMH, Dr. Insel moved on to start the first mental health program within Google X Life Sciences (now Verily Life Sciences), which seeks to develop technologies for early detection and treatment of health problems. Formerly, Dr. Insel was Professor of Psychiatry at Emory University, where he was the founding Director of the Center for Behavioral Neuroscience.
Dr. Insel has served on the Autism Science Foundation’s scientific advisory board since February 2016.
About the Autism Science Foundation:
The Autism Science Foundation (ASF) is a 501(c)(3) public charity. Its mission is to support autism research by providing funding to scientists and organizations conducting autism research. ASF also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. To learn more about the Autism Science Foundation or to make a donation,
Archived | United States Autism Treatment & Research Hearing: Statement by Dr. Thomas R. Insel | Circa April 17, 2007 #NotAnAutisticAlly
AutisticHistory #Autism #ActuallyAutistic #NotAnAutisticAlly #LightItUpGold #LegislationWithoutRepresentation #DisabilityRights #NothingAboutUsWithoutUs
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.