Autism Speaks Timeline | #NotAnAutisticAlly


note: The “Autism Community” is not the Autistic Community

The Autism Community was created by non-Autistic led organizations and includes mostly parents, professionals and their friends and networks.

Most of what the world know about Autism is sourced from the non-autistic “Autism Community.”


What’s the difference between Autism Advocacy and Autistic Advocacy?

Autism Advocacy (by mostly Non-Autistics) = Cure/Eugenics, ABA/Conversion Therapy, Parent-led organizations, Light It Up Blue, pseudoscience, puzzle pieces & non-Autistic advocates speaking over Autistics.

Autistic Advocacy (by Autistics & Real Allies) = Civil & Human Rights, Stigma reduction, Autistic-led organizations, Light It Up Gold, Red Instead, infinity symbol, Autistic Advocates and our Real Allies.

That’s what I’ve got so far … – Eve


Years:

1990s | 2000 | 2002 | 2003 | 2005 | 2006 | 2007 | 2009 | 2015 | 2016

*Timeline last updated November 29, 2021


1990s

2002

2003

2005

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2006

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2007

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2008

  • 2008 (110th Congress)

    Bills lobbied by: Autism Speaks

    S.2950  Helping HANDS for Autism Act of 2008

    H.R.2370  Financial Security Accounts for Individuals with Disabilities Act of 2007

    S.2743  Financial Security Accounts for Individuals with Disabilities Act of 2008

    S.2741  Disability Savings Act of 2008

    H.R.5658 Duncan Hunter National Defense Authorization Act for Fiscal Year 2009

    H.R.6930 To amend title 10, United States Code, to authorize extended benefits for certain autistic dependents of certain retirees.

    S.3230 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2009

    S.3689 Economic Recovery Act of 2008

    H.R.2642  Supplemental Appropriations Act, 2008

    H.R.7110 Job Creation and Unemployment Relief Act of 2008

    S.3604 Economic Recovery Act, 2008

    H.R.2638 Consolidated Security, Disaster Assistance, and Continuing Appropriations Act, 2009

2009

  • 2009 (111th Congress)

    Bills Lobbied By: Autism Speaks

    S. 819 Autism Treatment Acceleration Act of 2009

    H.R. 3200 America’s Affordable Health Choices Act of 2009

    H.R. 2413 Autism Treatment Acceleration Act of 2009

    S. 493 ABLE Act of 2009

    H.R. 1205 ABLE Act of 2009

    S. 1679 Affordable Health Choices Act

    S. 1679 Affordable Health Choices Act

    S. 706 Helping HANDS for Autism Act of 2009

    H.R. 3293 Department of Education Appropriations Act, 2010

    H.R. 2918 Continuing Appropriations Resolution

    H.R. 1600 To amend title 10, United States Code, to provide for the treatment of autism under TRICARE.

    H.R.3326 Department of Defense Appropriations Act, 2010

    S. 1796 America’s Healthy Future Act of 2009

    H.R. 3590 Patient Protection & Affordable Care Act

    H.R. 3862 Preservation of Access to Care for Medicare Beneficiaries and Pension Relief Act of 2010

    S. 1373 Federal Research Public Access Act of 2009

    H.R. 1707 Helping HANDS for Autism Act of 2009

    S. 914 Cures Acceleration Network and National Institutes of Health Reauthorization Act of 2009

    H.R. 3288 Consolidated Appropriations Act, 2010

    H.R. 1670 Community Choice Act of 2009

    H.R. 2996 Department of the Interior, Environment, and Related Agencies Appropriations Act, 2010

    S. 683 Community Choice Act of 2009

    S. 1169 A bill to amend title 10, United States Code, to provide for the treatment of autism under TRICARE.

    H.R. 1105 Omnibus Appropriations Act, 2009

    H.R. 2 Children’s Health Insurance Program Reauthorization Act of 2009

    H.R. 1 American Recovery and Reinvestment Act of 2009

    H.R. 4247 Keeping All Students Safe Act

    H.R. 2412 Filipino Veterans Family Reunification Act

    S. 3230 NEPA Certainty Act

2010

  • 2010 (111th Congress)

    Bills lobbied by: Autism Speaks

    H.R. 1205 ABLE Act of 2009

    S. 819 Autism Treatment Acceleration Act of 2009

    H.R. 2413 Autism Treatment Acceleration Act of 2009

    S. 493 ABLE Act of 2009

    H.R. 3200 America’s Affordable Health Choices Act of 2009

    H.R. 1670 Community Choice Act of 2009

    S. 683 Community Choice Act of 2009

    H.R. 1707 Helping HANDS for Autism Act of 2009

    H.R. 5756 TRAIN Act of 2010

    H.R. 1600 To amend title 10, United States Code, to provide for the treatment of autism under TRICARE.

    H.R. 4782 Health Care and Education Reconciliation Act of 2010

    S. 1373 Federal Research Public Access Act of 2009

    H.R. 4147 Keeping All Students Safe Act

    S. 1796 America’s Healthy Future Act of 2009

    H.R. 3590 Patient Protection & Affordable Care Act

    S. 706 Helping HANDS for Autism Act of 2009

    H.R.3962 Preservation of Access to Care for Medicare Beneficiaries and Pension Relief Act of 2010

    S. 2860 Preventing Harmful Restraint and Seclusion in Schools Act

    S. 1796 Affordable Health Choices Act

    S. 3800 Department of Defense Appropriations Act, 2011

    S. 1169 A bill to amend title 10, United States Code, to provide for the treatment of autism under TRICARE.

    S. 3686 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2011

    S. 4044 Combating Autism Reauthorization Act of 2010

    H.R. 3081 Continuing Appropriations Act, 2011

    S. 914 Cures Acceleration Network and National Institutes of Health Reauthorization Act of 2009

2011

  • 2011 (112th Congress)

    Bills Lobbied By: Autism Speaks

    S. 1094 Combating Autism Reauthorization Act

    H.R. 2005 Combating Autism Reauthorization Act of 2011

    H.R. 1208 IDEA Fairness Restoration Act

    H.R. 2007 Autism Spectrum Disorders Services Act of 2011

    S. 1128 National Autism Spectrum Disorders Initiative Act of 2011

    H.R. 2288 Caring for Military Kids with Autism Act

    S. 1132 Autism Spectrum Disorders Services Act of 2011

    S. 613 IDEA Fairness Restoration Act

    S. 850 Autism Services and Workforce Acceleration Act of 2011

    H.R. 1540 National Defense Authorization Act for Fiscal Year 2012

    H.R. 2006 National Autism Spectrum Disorders Initiative Act of 2011

    H.R. 2017 Continuing Appropriations Act of 2012

    H.R. 2219 Department of Defense Appropriations Act 2012

    S. 1599 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2012

    H.R. 2608 Continuing Appropriations Act 2012

    H.R. 3423 ABLE Act of 2011

    H.R. 2055 Consolidated Appropriations Act 2012

    H.R 1 Disaster Relief Appropriations Act, 2013

2012

  • 2012 (112th Congress)

    Bills lobbied by: Autism Speaks

    S. 1872 ABLE Act of 2011

    H.R. 2288 Caring for Military Kids with Autism Act

    H.R. 3423 ABLE Act of 2011

    H.R. 4310 National Defense Authorization Act for Fiscal Year 2013

    H.R. 2006 National Autism Spectrum Disorders Initiative Act of 2011

    H.R. 1208 IDEA Fairness Restoration Act

    S. 1128 National Autism Spectrum Disorders Initiative Act of 2011

    S. 3295 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2013

    S. 1132 Autism Spectrum Disorders Services Act of 2011

    S. 613 IDEA Fairness Restoration Act

    S. 850 Autism Services and Workforce Acceleration Act of 2011

    H.R. 3243 Common Sense Deficit Reduction Act of 2011

    H.R. 5856 Department of Defense Appropriations Act 2013

    H.R. 5195 Autism Understanding and Training in School Methodologies for Educators Act 2012

    H.R. 2005 Combating Autism Reauthorization Act 2011

    H.R. 4341 To direct the Secretary of Defense to establish a working group to review TRICARE policy with respect to providing health care to children and determine how to improve such policy, and for other purposes.

    H.J. Res. 117 Continuing Appropriations Solution 2013

    H.R. 8 American Taxpayer Relief Act of 2012

    S. 2467 National Defense Authorization Act for Fiscal Year 2013

    S. 3254 National Defense Authorization Act for Fiscal Year 2013

2013

  • 2013

    Autism Speaks helps launch Autism BrainNet. Autism Speaks’ Autism Brain Tissue Program (ATP) is incorporated.

  • 2013 (Congress 113th)

    Bills lobbied by: Autism Speaks

    S. 313 ABLE Act of 2013

    H.R. 647 Able Act of 2014

    H.R. 1960 National Defense Authorization Act for Fiscal Year 2014

    H.R. 2397 Department of Defense Appropriations Act 2014

    S. 1197 National Defense Reauthorization Act for Fiscal Year 2014

    S. 1284 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2014

    S. 1034 National Defense Authorization Act for Fiscal year 2014

    H.R. 1724 Kids First Research Act of 2013

    H.R. 2019 Gabriella Miller Kids First Research Act

    S. 1259 AGE-IN Act

    H.R. 4310 National Defense Authorization Act for Fiscal Year 2013

    S. 2467 National Defense Authorizaiton Act for Fiscal Year 2013

2014

  • 2014 ( 113th Congress)

    Bills lobbied by: Autism Speaks

    H.r. 647 ABle Act of 2014

    S. 313 ABLE Act of 2013

    H.R. 4631 Autism CARES Act of 2014

    S. 2449 Autism CARES Act of 2014

    H.R. 4870 Department of Defense Appropriations Act 2015

    S. 2410 Carl Levin National Defense Authorization Act for Fiscal year 2015

    H.R. 2019 Gabriella Miller Kids First Research Act

    H.R. 4435 Howard P. ”Buck” McKeon National Defense Authorization Act for Fiscal Year 2015

    S. 2386 Avonte’s Law Act of 2014

    S. 2333 Caring for Military Children with Developmental Disabilities Act of 2014

    H.R. 4630 Caring for Military Children With Developmental Disabilities Act of 2014

    S. 1259 AGE-IN ACT

    H.R. 83 Making consolidated appropriations for the fiscal year ending September 30, 2015, and for other purposes.

    S. 1284 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2014

    H.R. 3547 Consolidated Appropriations Act 2014

    H.R. 2397 Department of Defense Appropriations Act, 2014

2015

  • February 2015

    Autism Speaks Changes Stance on Vaccines and Autism Link

  • 2015 ( 113th & 114th Congress)

    H.R. 647 Access to Life-Saving Trauma Care for All Americans Act

    H.R. 6 21st Century Cures Act

    S. 163 Avonte’s Law Act of 2015

    S. 313 Prevent Interruptions in Physical Therapy Act of 2015

    H.R. 4631 Stop Taxpayer-funded Alcohol Marketing Act

    S. 1558 Department of Defense Appropriations Act, 2016

    H.R. 2685 Department of Defense Appropriations Act 2016

    H.R. 3020 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016

    S. 1177 Every Student Succeeds Act

    H.R. 2029 Consolidated Appropriations Act 2016

    S. 1695 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016

    H.R. 1447 Perkins Modernization Act of 2015

    H.R. 4028 IDEA High Cost Pool Funding Act

    H.R. 4631 Autism Cares Act of 2014

    H.R. 1151 USPSTF Transparency and Accountability Act of 2015

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2016

  • July 29, 2016

    Suzanne Wright, co-founder of Autism Speaks, dies from cancer. She is hailed as the ‘face of autism.’

  • October 2016

    Autism Speaks drops the word “Cure” from it’s mission statement.

  • 2016 (114th Congress)

    Bills lobbied by: Autism Speaks

    H.R. 6 21st Century Cures Act

    H.R. 647 Access to Life-Saving Trauma Care for All Americans Act

    H.R. 4794 ABLE Financial Planning Act

    H.R. 4795 ABLE to Work Act of 2016

    S. 2614 Kevin and Avonte’s Law of 2016

    H.R. 4813 ABLE Age Adjustment Act

    S. 2704 ABLE Age Adjustment Act

    S. 2703 ABLE Financial Planning Act

    S. 2702 ABLE to Work Act of 2016

    H.R. 4919 Kevin and Avonte’s Law of 2016

    S. 1719 RAISE Family Caregivers Act

    H.R. 3099 RAISE Family Caregivers Act

    S. 313 Prevent Interruptions in Physical Therapy Act of 2015

    H.R. 5587 Strengthening Career and Technical Education for the 21 Century Act

    S. 2718 Perkins Fund For Equity and Excellence

    H.R. 4361 Stop Taxpayer-Funded Alcohol Marketing Act

    H.R. 546 ACE Kids Act of 2015

    S. 298 ACE Kids Act of 2015

    H.R. 5926 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017

    S. 2759 Credit for Caring Act of 2016

    H.R. 4708 Credit for Caring Act of 2016

    S. 3040 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017

    S. 3000 Department of Defense Appropriations Act, 2017

    H.R. 5293 Department of Defense Appropriations Act, 2017

    S. 2721 Social Security Caregiver Credit Act of 2016

    H.R. 3377 Social Security Caregiver Credit Act of 2015

    H.R. 1447 Perkins Modernization Act of 2015

    H.R. 34 21st Century Cures Act

    S. 1177 Every Student Succeeds Act

    S. 2427 Disability Integration Act of 2015

    H.R. 1477 Fair Access to Science and Technology Research Act of 2015

    H.R. 8 North American Energy Security and Infrastructure Act of 2015

    S. 1604 Transition to Independence Act

    H.R. 5902 Disability Community Act of 2016

    S. 163 Avonte’s Law Act of 2015

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2017

  • 2017 (115th Congress)

    Bills lobbied by: Autism Speaks

    H.R. 1897 ABLE Financial Planning Act

    S. 817 ABLE Age Adjustment Act

    S. 818 Able to Work Act of 2017

    S. 816 ABLE FInancial Planning Act

    H.R. 1874 ABLE Age Adjustment Act

    H.R. 1896 ABLE to Work Act of 2017

    H.R> 1628 Ameriocan Health Care Act of 2017

    H.R. 2353 Stengthening Career and Technical Education for the 21st Century Act

    H.R. 4508 PROSPER Act

    H.R. 5926 Naloxone Guidelines Act of 2018

    S. 1771 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2018

    S. 3040 Credit Access and Inclusion Act of 2018

    H.R. 1301 Continuing Appropriations Amendments Act, 2018

    H.R. 1 An Act to provide for reconciliation pursuant to titles II and V of the concurrent resolution on the budget for fiscal year 2018.

    H.R. 3199 Improving Access to Higher Education Act of 2017

    H.R. 3219 Make America Secure Appropriations Act, 2018

    H.R. 3921 HEALTHY KIDS Act

    S. 3040 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017

    H.R. 5926 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017

    H.R. 3759 RAISE Family Caregivers Act

    S. 1827 KIDS Act of 2017

    S. 2070 Kevin and Avonte’s Law of 2017

    S. 235 CHOICE Act

    S. 2237 Financial Institutions Examination Fairness and Reform Act

    H.R. 4221 Kevin and Avonte’s Law of 2017

    S. 191 Patient Freedom Act of 2017

2018

  • 2018 (115th Congress)

    H.R. 3325 ACE Kids Act

    H.R. 2353 Strengthening Career and Technical Education for the 21st Century Act

    S. 428 ACE Kids Act of 2017

    S. 2237 Financial Institutions Examination Fairness and Reform Act

    H.R. 4508 PROSPER Act

    H.R. 3199 Improving Access to Higher Education Act of 2017

    H.R. 4221 Kevin and Avonte’s Law of 2017

    S. 2070 Kevin and Avonte’s Law of 2017

    H.R. 5306 EMPOWER Care Acte

    S. 3072 Commerce, Justice, Science, and Related Agencies Appropriations Act, 2019

    H.R. 5952 Commerce, Justice, Science, and Related Agencies Appropriations Act, 2019

    S. 3159 Department of Defense Appropriations Act, 2019

    S. 3158 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2019

    H.R. 6157 Department of Defense and Labor, Health and Human Services, and Education Appropriations Act, 2019 and Continuing Appropriations Act, 2019

    H.R. 7124 Keeping All Students Safe Act

    H.R. 3921 HEALTHY KIDS Act

    S. 3626 Keeping All Students Safe Act

    S. 1827 KIDS Act of 2017

    H.R. 6611 HEADs Up Act

    H.R. 6042 To amend title XIX of the Social Security Act to delay the reduction in Federal medical assistance percentage for Medicaid personal care services furnished without an electronic visit verification system, and for other purposes.

    H.R. 7217 IMPROVE Act

2019

  • 2019 (116th Congress)

    Bills lobbied by: Autism Speaks

    H.R. 1058 Autism Collaboration, Accountability, Research, Education, and Support Act of 2019

    S. 427 Autism CARES Act of 2019

    H.R. 3055 Further Continuing Appropriations Act, 2020, and Further Health Extenders Act of 2019

    Sj. 260 Transformation to Competitive Employment Act

    H.R. 873 Transformation to Competitive Employment Act

    H.R. 2704 Renewable Energy Transferability Act

    H.R. 582 Raise the Wage Act

    H.R. 1342 EMPOWER Care Act

    H.R. 1865 Further Consolidated Appropriations Act 2020

    S. 2584 Commerce, Justice, Science, and Related Agencies Appropriations Act, 2020

    H.R. 2704 Renewable Energy Transferability Act

    Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020

    H.R. 582 Raise the Wage Act

    H.R. 1342 EMPOWER Care Act

    H.R. 1865 Further Consolidated Appropriations Act 2020

    S. 2584 Commerce, Justice, Science, and Related Agencies Appropriations Act, 2020

    H.R. 2470 Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020

    H.R. 4095 Family Care Act of 2019

    S. 548 EMPOWER Care Act

    H.R. 2968 Department of Defense Appropriations Act, 2020

    S. 2474 Department of Defense Appropriations Act, 2020

    H.R. 4378 Continuing Appropriations Act, 2020, and Health Extenders Act of 2019

    S. 1835 21st Century Assistive Technology Act

    H.R. 3253 Sustaining Excellence in Medicaid Act of 2019

    S. 183 AFSFA Act

    S. 634 Education Freedom Scholarships and Opportunity Act

    H.R. 2096 Energy Storage Tax Incentive and Deployment Act of 2019

    H.R. 3070 CAPABILITY Act of 2019

    S. 317 ACE Kids Act of 2019

    H.R. 1662 Cultivating Learning Assistance for Student Success Act

    H.R. 21 Consolidated Appropriations Act, 2019

    H.R. 265 Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2019

    H.R. 267 Transportation, Housing and Urban Development, and Related Agencies Appropriations Act, 2019

    H.R. 989 PARTNERS Act

    H.R. 266 Paycheck Protection Program and Health Care Enhancement Act

    H.R. 3208 REAADI for Disasters Act

    S. 1755 Real Emergency Access for Aging and Disability Inclusion for Disasters Act

    H.R. 1158 Consolidated Appropriations Act, 2020

    H.R. 1226 ACE Kids Act of 2019

    H.R. 1434 Education Freedom Scholarships and Opportunity Act

    H.R. 1625 NEW GIG Act of 2019

    H.R. 648 Consolidated Appropriations Act, 2019

    H.R. 264 Financial Services and General Government Appropriations Act, 2019

2020

  • 2020 (116th Congress)

    Bills lobbied by: Autism Speaks

    H.R. 748 CARES Act

    S 4100 Supporting Children with Disabilities During COVID�19 Act

    S. 3652 All Dependents Count Act of 2020

    H.R. 7308 All Dependent Children Count Act

    H.R. 7308 RISE Act

    H.R. 8523 Supporting Children with Disabilities During COVID�19 Act

    S. 1895 Lower Health Care Costs Act

    H.R. 6800 The HEROES Act

    H.R. 7120 George Floyd Justice in Policing Act of 2020

    H.R. 8406 The Heroes Act

    S. 548 EMPOWER Care Act

    S. 3277 HCBS Infrastructure Improvement Act

    H.R. 1342 EMPOWER Care Act

    S. 1112 Mental Health Services for Students Act of 2019

    H.R. 133 Consolidated Appropriations Act, 2021

2021

  • 2021 (117th Congress)

    Bills lobbied by: Autism Speaks

    S. 2210 Better Care Better Jobs Act

    H.R. 4131 Better Care Better Jobs Act

    H.R. 525 COVID HCBS Relief Act of 2021

    S. 2065 Supplemental Security Income Restoration Act of 2021

    H.R. 3824 Supplemental Security Income Restoration Act of 2021

    S. 151 COVID HCBS Relief Act of 2021

    H.R. 1319 American Rescue Plan Act of 2021

    H.R. 5376 Build Back Better Act

    S. 240 Supporting Children with Disabilities During COVID�19 Act

    H.R. 1460 Nicholas and Zachary Burt Memorial Carbon Monoxide Poisoning Prevention Act of 2021

    H.R.4160 Global Autism Act

    H.R. 4432 Department of Defense Appropriations Act 2022

    H.R. 4505 Commerce, Justice, Science, and Related Agencies Appropriations Act, 2022

    S. 331 ABLE Age Adjustment Act

    H.R. 1219 ABLE Age Adjustement Act

    H.R. 5042 Labor, Health and Human Services, Education, Agriculture, Rural Development, Energy and Water Development, Financial Services and General Government, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2022

    H.R. 838 Supporting Children with Disabilities During COVID�19 Act

    S. Con. Res. 14 A concurrent resolution setting forth the congressional budget for the United States Government for fiscal year 2022 and setting forth the appropriate budgetary levels for fiscal years 2023 through 2031.

    H.R. 1235 Charlotte Woodward Organ Transplant Discrimination Prevention Act

    H.R. 4572 ABLE Employment Flexibility Act

    H.R. 3437 LOANS for Biomedical Research Act

    S. 2108 Work Without Worry Act

    S. 2792 National Defense Authorization Act for Fiscal Year 2022

    H.R. 4003 Work Without Worry Act

    H.R. 4350 National Defense Authorization Act for Fiscal Year 2022



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