Archived | Autism Speaks: 2005 & 2006 Highlights | Circa December 2006 #NotAnAutisticAlly


Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.


Autism Speaks History
Highlights Include Media Exposure, Mergers, Unprecedented Fundraising and Growing Scientific Grants Program

Autism Speaks passed its two-year anniversary on February 25, 2007.

Find out more about the highlights of our incredibly busy first two years by clicking on the links below. We are proud of what we’ve been able to accomplish and look forward to continued successes in the years ahead.

Autism Speaks Logo

The Autism Speaks 2006 Annual Report and 990 form are available via download, in PDF format.

2006 Highlights

In 2006, Autism Speaks and the National Alliance for Autism Research (NAAR) merged, creating the world’s largest autism advocacy organization. Autism Speaks and Cure Autism Now (CAN) announced in November 2006 their intent to merge. 

Science

Autism Speaks funded $20 million worth of autism research in 2006 in four categories: Pilot Study Awards, Fellowship Awards, Augmentation and Bridge Awards, and for the first time ever, awards were given for early treatment research. A grant also funded the development of the Interactive Autism Network (IAN) Community Project which will launch in 2007. 

• Less than a decade ago, autism was typically diagnosed at ages 3 or 4. Through the Autism Speaks-funded Baby Siblings project autism is now routinely diagnosed at 24 months with many diagnosed at 18 months. Early diagnosis leading to early intervention is critical to gain maximum benefit from existing therapies.

• The Autism Tissue Program (ATP) is one of the most important research endeavors undertaken by Autism Speaks and has made over 60 research projects possible using post-mortem tissue since its start in 1998. Recently, Dr. David Amaral published a ground-breaking study in the Journal of Neuroscience which reported a change in cell number in a region of the autistic brain that may contribute to deficits in behaviors, including processing of emotions and fear. 

Autism Speaks-funded scientists at Yale University found that children with autism, when observing a social interaction such as conversation or play, failed to focus on social cues, many of which are seen in facial expressions. Further funded research revealed that the part of the brain used for face recognition is not activated when an individual with autism sees a face.

• The Autism Speaks-funded Autism Genome Project brought together nearly 170 of the world’s leading researchers for the largest study ever conducted to find the genes associated with autism. Phase 1 of the project identifying new regions of the genome that may harbor susceptibility gene was recently completed and preliminary results will be published in Nature Genetics, one of the world’s most prestigious research publications.

• Through Autism Speaks-funded neuroscience research, scientists are learning how genetic susceptibility could translate into disorder. Studies on the ENGRAILED2 and neuroligin family of genes, for instance, are yielding possible disease mechanisms that could serve as targets for intervention and drug development. 

Awareness

Autism Speaks was selected by the Ad Council to participate in a 3 year public service announcement campaign to increase awareness of autism. The campaign was launched in April. After only six months, the campaign has already received $31.1 million worth of donated media placement (vs. the Ad Council average of $28 million/year). 

Autism Speaks launched the world’s most comprehensive web site on autism. According to Yahoo and Google, Autism Speaks’ website is the most visited website on the topic of autism. The site now averages 120,000 unique users each month – and the number of unique users has more than quadrupled since the beginning of 2006.

Autism Speaks produced the documentary “Autism Every Day” to highlight the impact of autism on real families. A portion of the film has been shown on TIVO, Imus in the Morning, The Martha Stewart Show, and Good Morning America. The full-length film will debut at Sundance in January 2007 as a special screening.

Autism Speaks has received media coverage in a range of major print publications and national and local broadcast outlets, from Good Housekeeping and Town and Country magazines to ABC’s Good Morning America,” The “Martha Stewart Show” and “The View.”

Autism Speaks participated in the final two episodes of The Apprentice raising autism awareness with an audience of over 13 million viewers.

Together with the CDC, gave presentations at dozens of medical conferences to improve physicians, nurses, Head Start day care providers, and others awareness of the early warning signs of autism. 

Legislative Advocacy

Autism Speaks has advocated effectively for the federal Combating Autism Act, which was signed by President Bush in December. The bill authorizes nearly $1 billion over the next five years to combat autism through research, screening, early detection and early intervention. 

Autism Speaks led the successful effort to secure $7.5 million targeted for research on autism spectrum disorders in the Fiscal 2007 Defense Appropriations Bill. Previously, Department of Defense funded research had applied to only to breast, prostate and ovarian cancers and a handful of others.

Autism Speaks is working closely with federal, state and local governments, as well as with the U.S. military to increase access to autism treatment and education, and to improve insurance coverage policies with regard to autism treatments. 

Walks 

• Autism Speaks held 53 Walks for Autism Research this year, across the US, as well as in the United Kingdom and Canada. These events raised over $12 million for autism research and gave families struggling with autism an opportunity to gain knowledge and companionship. In 2006, approximately 100,000 people attended Autism Speaks walks. 

Special Events

Autism Speaks held several major fundraising events, including a benefit concert with Jay Leno, Natalie Cole, and Tom Brokaw as the Master of Ceremonies, an event with the NFL, and a gala featuring Tony Bennett. The next concert will feature Bill Cosby and special guest Toni Braxton. Other fundraisers included golf tournaments such as the Third Annual LA Celebrity Golf Challenge at Riviera Country Club, the First Annual Golf Classic at Deepdale Golf Club, and the Eighth Annual Celebrity Golf Challenge at Winged Foot Golf Club. 

• Autism Speaks ran in-store promotional/fundraising events with TJ Maxx, Modell’s, Bloomingdales, and Build-A-Bear Workshop

Autism Speaks was the beneficiary of several events hosted by other organizations including Comedy Central’s Night of Too Many Stars, the American Century Golf Championship, and a concert with Dennis Miller.


2005 Highlights 

Raising Public Awareness 

Autism Speaks created a media blitz on behalf of autism awareness in its first year through regular appearances in a variety of media venues, including The ApprenticeThe ViewAccess HollywoodThe Don Imus ShowThe Big Idea with Donny Deutsch, and more. Our launch in February 2005 coincided with a weeklong series devoted to autism on the NBC News networks, including segments on The Today Show, MSNBC, CNBC, and NBC Nightly News with Brian Williams. All told, these segments reached 40 million viewers. As a result, more Americans than ever are aware of autism and its many challenges. 

In addition, Autism Speaks began work on on its high-profile public service campaigns with the Advertising Council. The campaign, which was created pro bono by BBDO, focused on raising awareness of autism and on the importance of early intervention.

Unprecedented Fundraising 

In its first year, Autism Speaks raised an unprecedented $40 million through donations and fundraising events. These events included the L.A. Celebrity Golf Challenge at the Riviera Country Club in Pacific Palisades, CA, in March; the N.Y. Celebrity Golf Challenge at the prestigious Winged Foot Club in Mamaroneck, NY, in July; and “One Night Only: Concert for Autism Speaks,” which featured Jerry Seinfeld and Paul Simon in concert at the Kodak Theater in L.A. in September. We were also honored that the American Century Golf Championship chose Autism Speaks to be the recipient of its fundraising efforts at last year’s tournament in Lake Tahoe in July. 

Advancing Autism Science 

Autism Speaks made an important first step in its efforts to advance innovative autism research by funding the development of a national autism database/ Autism Speaks made an initial three-year commitment to the project, beginning with an award of $2,266,000 for the first year. Kennedy Krieger Institute, one of the nation’s leading treatment centers for autism and other developmental disorders, will develop the open, interactive database. 

The national online autism database will serve as a shared resource to centralize registration of families and individuals with autism spectrum disorders and connect them with researchers, parents, and other individuals with autism throughout the country and the world. 

Autism Speaks also initiated its first grant program, which is targeted at established scientists new to the field of autism at leading medical and research institutions. The Dana Foundation assisted in administering this first round of grants. The objective of this grant program is to encourage established scientists in a variety of disciplines to take on the challenge of autism and begin to answer questions that will lead to better diagnosis, prevention, and treatment of this disorder. 

Advocacy on Behalf of Families 

While Autism Speaks worked on a number of issues important to the autism community, our main focus was on lobbying Congress to enact the Combating Autism Act, which was passed last year. This landmark legislation authorizes significant federal funds annually over the next five years to combat autism through epidemiological research, screening, intervention, and education efforts. On behalf of all the families and individuals struggling with autism spectrum disorders, Autism Speaks worked together with many other autism advocacy groups to get this legislation enacted. 

Merging with ACRE, NAAR 

Autism Speaks completed two mergers in its first year, creating a powerful national organization devoted to autism with chapters across the United States, Canada, and the U.K. The first merger, with the Autism Coalition for Research and Education (ACRE), was finalized on August 1, 2005.

ACRE was founded in 1998 by a group of parents with a primary focus on raising funds to accelerate biomedical and applied research on autism and on raising awareness. ACRE’s co-founder, Kevin Murray, is now a member of Autism Speaks’ board of directors. 

On January 31, 2006, Autism Speaks and the National Alliance for Autism Research (NAAR) completed their merger, bringing together two of the leading organizations engaged in the battle against autism. 

NAAR was founded in 1994 by Karen and Eric London to encourage, fund, support, and facilitate biomedical research related to autism. Autism Speaks will adopt NAAR’s distinguished scientific advisory board and also its scientific advisory committee. It will also maintain and expand NAAR’s international Walk for Autism Research grassroots fundraising program and its international affiliates.

Autism Speaks will continue to place a high priority on raising awareness of autism, as well as on raising funds and supporting research, including NAAR’s Autism Tissue Program and all previously announced research programs. For more about NAAR-initiated research.

Source: http://web.archive.org/web/20071215020350/http://www.autismspeaks.org/about_us.php#2005



Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.




Explore Autistic History


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