Archived: Autism Speaks | Northern California June Newsletter | Circa June 2009 #NotAnAutisticAlly



Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.



Note: Links are original and probably don’t work anymore.

June 2009 

Northern California June Newsletter

NORTHERN CALIFORNIA’S WALK NOW FOR AUTISM EVENTS
Thank you for your continued support of our community Walk Now for Autism events. 

Upcoming:
Sacramento – October 4th at Raley Field
www.walknowforautism.org/sacramento

Central Valley – October 17th at Modesto Junior College, West Campus
www.walknowforautism.org/centralvalley

Past:
Bay Area – took place May 30th at History Park in San Jose. You can view photos herewww.walknowforautism.org/bayarea

Sonoma – took place April 18th at Infineon Raceway in Sonoma
www.walknowforautism.org/sonoma

NORTHERN CALIFORNIA EVENTS

June 12: Sacramento RiverCats Autism Awareness Night
7 pm at Raley Field in Sacramento. Click here to download the flyer.

June 15: San Francisco Giants Autism Awareness Night
7 pm at AT&T Park in San Francisco. Designated section for Autism Speaks’ ticket holders, special home plate ceremony before the game, and a Will Clark commemorative t-shirt are all included in ticket package. Click here to download the flyer.

August 29: Race & Ride for Autism at Madera Speedway
Presented by Team 51FIFTY & Carlos Vieira Racing Inc. A 100 lap western late model main event and motorcycle show. Click here for a flyer or visit www.51fiftyracing.com for more information.

September 18: Crosby, Stills and Nash Concert at the San Jose Civic Auditorium 

September 19: Crosby, Stills and Nash Concert at the Ironstone Amphitheatre in Murphys
General and Benefit Ticket purchases benefit Autism Speaks. Please visit http://www.crosbystillsnash.com and www.guacfund.org for more information.

September 25: Cherry Island Golf Classic Benefitting Autism Speaks 
Cherry Island Golf Course in Elverta. Registration Deadline: September 20, 2009 (RSVP early!) For more information, click here and here.

JOIN US ON FACEBOOK
 Become a fan of Autism Speaks and our local communities on Facebook – get the latest information, find local events, see photos and connect with others in the community.

The direct links to the individual pages are available by clicking on the name below: Autism SpeaksBay AreaCentral ValleySacramentoSonoma

FAMILY SERVICES UPDATE – AFAAAdvancing Futures for Adults with Autism – AFAA Initiative

AFAA, a national consortium of leading autism organizations, has united to set national priorities, transform public policy and Service Programs for adults on the autism spectrum. Throughout 2009, AFAA will collect information, develop strategic solutions and advance the national agenda. Click here to view the one-sheet. 

SCIENCE UPDATES IAN
When researchers and parents aren’t connected, autism research can’t advance. That is why the Interactive Autism Network (IAN) was created – to build a bridge between those affected by ASD and researchers in the field. IAN, sponsored by Autism Speaks, invites individuals and their families to share information in a secure setting to become part of the largest online autism research effort in the United States. The data collected facilitates scientific research and empowers community leaders to advocate for improved services and resources.

To learn more about this innovative project, visit http://IANproject.org

EARLI STUDY
A network of leading autism researchers from three regions across the country launched one of the largest research studies of its kind to investigate early risk factors for Autism. The network, called the Early Autism Risk Longitudinal Investigation (EARLI), will follow a cohort of up to 1,200 pregnant women who already have a child with autism. The study is considered one of the best-equipped to discover biological markers and environmental risk factors for autism due to its elevated autism risk pregnancy cohort, wide ranging data collection with extensive bio-sampling, length of time it follows pregnant women and their babies, and multi-disciplinary team of expert investigators.

Under the study, researchers at four network field sites in three regions across the nation will study possible environmental risk factors and their interplay with genetic susceptibility during the prenatal, neonatal and early postnatal periods. The project will also investigate early biological indicators of autism. The EARLI Study is one of eleven National Institutes of Health Autism Centers of Excellence projects nationwide.

For the full press release, please click here or visit http://www.earlistudy.org for more information.

AUTISM VOTES

Uniformed Services With Autism (USA) Heroes Act (H.R. 1600)
Autism Speaks applauds Senator Kristen Gillibrand’s (D-NY) introduction of the Uniformed Services with Autism (USA) Heroes Act, a senate companion bill to H.R. 1600. The legislation would require expanded coverage by TRICARE — the Department of Defense’s health care program for members of the uniformed services and their families — of medically necessary autism therapies for military dependents who have autism.Current law limits TRICARE coverage of autism therapies, such as Applied Behavior Analysis (ABA) therapy, for dependents of active duty service members and places a $3,000 monthly cap on a child’s treatment program. The USA Heroes Act will remove the dollar cap and increase accessibility of ABA and other essential, medically necessary autism treatments by extending benefits to retirees. 

The USA Heroes Act also serves as a template for states who are currently seeking to institute autism insurance reform, as well as the federal autism insurance reform effort.

For more information, please visit: www.autismvotes.org.

TUNE IN: Autism Speaks Featured on Top Chef Masters

Tune in to the premiere of BRAVO’s new reality show, Top Chef Masters, on Wednesday, June 10 beginning at 10:00 p.m. and see 24 world-renowned chefs compete for the chance to win $100,000 for the charity of their choice. Chefs Wylie Dufresne of wd~50 and Christopher Lee of Aureole, both past participants in Autism Speaks to Wall Street: A Celebrity Chef Gala, have selected Autism Speaks as their charity of choice should they be crowned Top Chef Master. 

Click here to learn more about the show and to find your local TV listing. 

MISSION

At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.

We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.

Autism Speaks. It’s time to listen.

Sincerely, 
Autism Speaks
Northern California Communitywww.autismspeaks.org

Mailing Address:
Autism Speaks
c/o: Bay Area Walk
5455 Wilshire Blvd., Suite 2250
Los Angeles, CA 90036  
US 

Contact Name: Northern California Office
Telephone Number: 707-778-3840



Note/Warning:

Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.


The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.


Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.


[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]


Fact: Vaccines Do Not Cause Autism.




State-By-State Legislation To Force Insurance Companies To Cover ABA

Alabama
Alaska: HB 187
Arizona
Arkansas SB 913 HB 1315
California S 819 HR 2413
Colorado SB 09-244 SB 244
Connecticut CB 301
Delaware
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana

Maine LD 1198
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico SB 39
New York: S. 2366, A. 6001
North Carolina
North Dakota
Ohio HB 1
Oklahoma

Oregon HB 3000
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming

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