Archived: Autism Speaks | Help Get Autism Insurance Benefits in California! | Circa Oct 17, 2008 #NotAnAutisticAlly

Note: Links are original to the email and probably don’t work.

Dear California Autism Advocate,  

Are you frustrated that insurance companies continually shove their responsibility onto the taxpayers by leaving families, school districts and regional centers to provide treatment for children with autism?

Are you tired of having to pay privately for speech therapy, occupational therapy or intensive behavioral therapy such as ABA?

Do you believe health insurers should cover medically necessary, evidence based treatment for subscribers with autism spectrum disorders?

Do you believe health insurance companies should be held accountable for delivering services for the premiums they collect from our families?

Are you ready for California to have an autism mandate like the ones currently available in seven other states across the country?

If you answered yes to any of these questions, we have answers for you!

The Department of Managed Health Care has formed an Autism Workgroup which includes family members and advocates.  Recent decisions from the final State appeals process are in favor of families and against insurance companies. We are gearing up to introduce new and stronger legislation next year in the State of California to end autism insurance discrimination once and for all.


1. VISIT the website and register to receive advocacy alerts.  This will ensure that you receive the most updated information on the CA autism insurance reform initiative as quickly as possible.

2. VISIT A WORKSHOP! The CA Blue Ribbon Commission will host it’s next workshop on this topic at the Elihu Harris State Building, 1515 Clay Street, Room 2 (Second Floor) in Oakland on Saturday, October 25th from 10:00 A.M to 2:00 P.M. We would love you to attend, especially if you live in Northern California. Parent advocates will be on hand to answer specific questions and help you file paperwork for claims, appeals, and grievances.

3 VISIT AN AUTISM VOTES BOOTH AT AN UPCOMING WALK! If you live in Southern California, please visit our Autism Votes booths at the upcoming San Diego Walk on November 1 or our Orange County walk on November 16.

4. FORWARD this email to your family, friends, neighbors, teachers, therapists and co-workers…anyone who lives in the state of California that would be interested in helping you work to end insurance discrimination for children with autism in our state. 

For more information on autism insurance reform legislation in California, visit  


Your California Autism Speaks Chapter Advocacy Team:

Robert Blitz
Chapter Advocacy Chair – San Diego

Kristin Jacobson
Chapter Advocacy Chair – Bay Area & All California

Stan Landes
Chapter Advocacy Chair – Los Angeles

John Matthias
Chapter Advocacy Chair – Sacramento

Jen Quincer
Chapter Advocacy Chair – Orange County

Mark Woodsmall
Chapter Advocacy Chair – Southern California

To prevent mailbox filters from deleting mailings from California Chapter Advocacy Team, Autism Speaks, add to your address book.


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism. was an initiative created by Autism Speaks to advocate and lobby for Federal and State legislation that would increase funding for autism research and force insurance companies to cover Applied Behavioral Analysis (ABA). They did this while excluding Autistic people. #NothingAboutUsWithoutUs

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