DECONSTRUCTION OF AUTISM SPEAKS | TOWN & COUNTRY: AUTISM’S ANGELS | PT. 3

Published August 2006

Deconstruction of the Autism Speaks” is a new series I started in honor of “the month” in April 2021 on InternationalBadassActivists.org. This series will continue all year. This breakdown article from Town & Country will be included there as well. 

Each article in this series will take an Autism Speaks press release, or an article, and use my Autistic perspective to break it down and illustrate the patterns I notice. These articles will be tagged “Deconstruction of Autism Speaks” and added to the Autistic History archives.


  • First, the article will be quoted and my brief observations noted. 
  • Second, the comparison breakdown table of ‘what they say’ and ‘what I see.’
  • Third, the summary with some Autistic perspective and insight. 

This article was originally published on Autistic Fashion & Divergent Style.

Bob and Suzanne Wright, founders of Autism Speaks.

QUOTE

Autism Speaks

For Bob and Suzanne Wright, the first response to the riddle of autism was to raise awareness – and dollars. They founded Autism Speaks in 2005, their decision fueled by seeing their daughter Katie struggle to cope as her son, Christian, lost his 800-world vocabulary and displayed horrific tantrums, and by witnessing medical science’s helplessness. “We went to Columbia University Medical Center for a complete diagnosis, which took several days and cost $10,000,” says Bob. “They said, ‘We’re sorry; we can’t find a medical abnormality that we can treat.’ Almost as the good news, they added, ‘Many of these children develop medical problems, and we’ll be happy to treat those if that happens.’

“We were shocked,” he says. “As we learned more, we realized we’re in an epidemic – people are wandering around looking for help, and doctors are saying, “There isn’t much research, and, sorry, you can’t get insurance reimbursement for this.’”

BREAKDOWN

  • Autism Speaks, founders Bob Wright & Suzanne Wright
  • First response to riddle of autism for Wright’s is to raise awareness
  • Autism Speaks founded in 2005
  • Katie Wright, daughter of Wrights, has an Autistic son, Christian
  • Christian lost his 800-word vocabulary, displayed horrific tantrums
  • The Wrights witnessed medical science’s helplessness with their Autistic grandson
  • Wrights took grandson to be evaluated at Columbia University Medical Center
  • Wrights paid 10,000 out of pocket for the diagnosis 
  • Wrights said, “they said, ‘We’re sorry, we can’t find a medical abnormality we can treat.’”
  • Wrights said, “many of these children develop medical problems, and we’ll be happy to treat those if that happens. 
  • The Wrights were shocked that there was no medical treatment for autism. 
  • The Wrights realized they were in an ‘epidemic’
  • Wrights state people were wandering around looking for help, and doctors are saying sorry.
  • There’s no insurance reimbursement for medical costs 

QUOTE

After the Wrights started to speak openly about their grandson, Home Depot cofounder Bernie Marcus (who is a longtime childhood-disabilities philanthropist) jump-started the new organization with a $25 million donation.

The two aims of Autism Speaks are to raise autism awareness hugely by shining a megawatt spotlight on it and to fund scientific and biomedical research. Build awareness, say the Wrights, and the funding will come. “Out of the $29 billion NIH budget, autism gets only $102 million,” says Bob. “AIDS gets $2.9 billion, and breast cancer gets $700 million, as they should, but people need to understand that this is the most prevalent childhood developmental disorder in the United States. 

BREAKDOWN

  • Wrights spoke openly about their Autistic grandson. This got attention of Bernie Marcus, childhood disabilities philanthropist
  • Bernie Marcus donated $25 million to help launch Autism Speaks.
  • Two aims of Autism Speaks: raise autism awareness, fund scientific and biomedical research
  • Build ‘awareness’ and the funding will come
  • Autism gets $102 million a year in the NIH budget. AIDS gets $2.9 billion. Breast cancer gets $700 million. 
  • Autism is the most prevalent childhood developmental disorder in the United States.

QUOTE

In its first year, Autism speaks raised more than $40 million — as well as untold levels of awareness. After the Today show aired a five part series called “Autism: The Hidden Epidemic,” Bob and Suazanne were invited to speak on the show. Suzanne has discussed the issue on The View, as has Bob in an interview with Charlie Rose. The couple have also been guests multiple times on Don Imus’s radio show. This year, Autism Speaks launched a three-year public-service ad a campaign in partnership with the Advertising Council. (One full-page ad features a ponytailed little girl playing the piano and reads: “Odds of a child performing at Carnegie Hall: 1 in 73,000. Odds of a child being diagnosed with autism: I in 166.”)

BREAKDOWN

  • In first year, Autism Speaks raised more than $40 million 
  • In first year, Autism Speaks raised untold amount of awareness
  • Today Show aired 5-part series called: Autism: The Hidden Epidemic
  • Bob and Suzanne Wright were invited to the Today Show
  • Suzanne Wright discussed Autism on The View
  • Bob Wright interviewed on Charlie Rose
  • Both Wright’s have been guests on Don Imus’s Radio Show
  • Autism Speaks partnered with Ad Council for three years public service announcements campaign
  • Odds of a child performing at Carnegie Hall: 1 in 73,000. Odds of a child being diagnosed with autism: 1 in 166 

QUOTE

Last February, in a major step, Autism Speaks merged with NAAR, a nonprofit organization that funds scientific research on autism. “One big goal is to search for biomedical causes so that we can develop treatments,” says Goldstein. As chair of the Autism Speaks scientific-affairs committee, he oversees research programs such as the ongoing Baby Sibs Project, which monitors the neurological development of infant siblings of Autistic children; he’s also managing Autism Speaks’s launch of the Interactive Autism Network, a national registry and database that helps connect families with one another and with researchers. 

The Wrights are now lobbying for the Combating Autism Act, which would authorize nearly $1 billion for research over the next five years. “Not enough studies are done on children with autism to draw conclusions about its causes, and that’s extremely frustrating to parents,” says Bob. While he urges families to get involved in raising consciousness, he also acknowledges a sad truth: “Autism is a 24/7 problem. The children have to be looked after all the time, and the parents tend to be exhausted and broke. They don’t have the time or the resources to do many things, so we are trying to speak for them. 

BREAKDOWN

  • Wrights are lobbying for Combating Autism Act
  • Combating Autism Act would authorize nearly $1 billion for research over a five year span
  • Bob Wright says not enough studies are being done on autism
  • Goldstein says one big thing is to search for biomedical causes so treatments can be developed.
  • Goldstein chairs Autism Speaks scientific-affairs committee and oversees programs like Baby Sibs Project
  • Baby Sibs Project monitors the neurological development of infant siblings of Autistic children
  • Goldstein also managed Autism Speaks launch of the Interactive Autism Network
  • Interactive Autism Network (IAN) is a national registry and database that helps families connect with one another and researchers
  • Wrights are now lobbying for the Combating Autism Act
  • Act would authorize nearly $1 billion for research over the next five years
  • Bob Wright says, Not enough studies are done on children with autism to draw conclusions abou t its causes, and that’s extremely frustrating to parents
  • Autism is a 24/7 problem
  • Autism means children have to be looked after all the time
  • Parents of Autistic children tend to be exhausted and broke
  • Parents of Autistic children don’t have the time or resources to do many things
  • Bob says they are trying to speak for them (the parents of Autistic children)

QUOTE

BREAKDOWN

  • Funding frontier science: Jim and Marilyn Simons were also catalyzed by Tom Insel’s (NIMH) advice
  • Jim and Marilyn Simons have pledged $138 million for autism research over a five year span
  • First Simon’s Foundation first grant was $13 million for a 5-year genetics study by Michael Wigler, Ph.D. And Jonathan Sebat, Ph.D. From Cold Spring Harbor Laboratory
  • Cold Spring Harbor Laboratory is home to James Watson, a DNA decoder
  • Cold Spring Harbor do genome scans of Autistic children’s nuclear families and compare them to normal genomes to seek autism-linked mutations
  • Wigler and Sebat are studying DNA procured by L.A.’s Cure Autism Now (CAN)
  • CAN was founded by film producer Jon Shestack and his wife, Portia Iverson
  • Couple went public about their son’s autism diagnosis
  • CAN funded research to create a gene bank
  • First giant eureka moment that will make the big pharma feel there’s something there something there hasn’t come yet. But until then everyone agrees that early diagnosis and intervention, the earlier, the better, are the keys to a brighter prognosis

QUOTE

NYCA: Building From The Ground Up

After the Slatkins decided to create the school, Laura joined forces with Ilene Lanier, an employment attorney who set on son, Ari, aged ten, is autistic, to research and write the school’s charter application. It was a tedious, two-year process, but it paid off. Last September the NYCSA Charter School, on the second floor of P.S. 50, on East 100th Street in Manhattan, opened its doors to its first class: four boys, aged five through nine, with moderate to severe autism. (Adding about one new student per month, the school will reach its full capacity, twenty-eight, by 2008.) A sad but not unexpected irony is that neither David nor Aris is a student at the school (Ari didn’t win a place through the lottery, and David was never entered), nor is there much chance that either child will gain admission in the future. Davis is now enrolled in a school in Queens; Ari is being homeschooled. For its founders, the NYCA Charter School is truly a labor of love.

The school undoubtedly meets a need: some fifty families applied for the first twelve openings, says Lanier, who having resigned her partnership at the law firm to care for Ari and help launch the school, is now president of its board. In contrast to their public schools’ special-education classes, the NYCA Charter School has a one-to-one teacher-student ration for its ABA curriculum, which its advocates say is optimal for most autistic children. “The instructors rotate among the kids every half-hour or so to ensure tha t a child learns to generalize, which is one of the autistic children’s challenges,” Lanier says, “A child with autism might learn something from you, but if he doesn’t practice it with other people or at home, he might never apply it in a more general way.” The one-on-one ABA approach, in which a teacher guides a student through a series of steps to learn social, educational and life skills (anything from making eye contact or sitting quietly to saying hello or learning numbers and reading), can be grueling, but it is undoubtedly effective at drawing autistic children out of their isolation. The students also interact with the typically developing students who throng P.S. 50’s downstairs halls and classrooms, reflecting the NYCA vision of giving autistic children the education they need while integrating them into the larger community as much as possible.

“We’ve married public education and a state-of-the-art-school, but it’s very expensive methodology,” says Laura Slatkin. (The city spends about $62,000 a year on each NYCS student.) “Our next question is, How do we educate 4,500 children in a cost-effective manner and maintain the program’s quality?

Illness Lanier and Laura Slatkin are not alone in their crusade for top-quality schooling for autistic children: on Long Island, the Child Development Center of the Hampton’s (CDZCH), for children from birth through age five, was founded in 1996 by Dawn Zimmerman Hummel, who son, Jon, now sixteen, is autistic. In 2000 Hummel added the CDCH Charter School for grades K – 8. With 210 students enrolled, the CDCH is now raising money for an impressive new preschool facility. And two veterans in the field, the Eden Institue and the Alpine Learning Group — founded in 1975 and 1988, respectively, and long considered the gold standard in autism education and services – will soon launch capital campaigns to develop new programs. In the past decade, the number of schools devoted to autistic children has mushroomed.

  • Laura Slatkin joined forces with Illene Lanier, an employment attorney who has an Autistic son.
  • Lanier researched and wrote the school’s charter application, a two year process
  • NYCA Charter School in Manhattan opened to it’s first class of four autistic boys ages 5 – 9 with ‘moderate to severe’ autism.
  • The school will add one new student per month until a maximum student capacity is at 28 by 2008.
  • Neither parent’s sons won the lottery to attend the school. Autistic children are in other school and homeschooled. For founders, NYCA is truly a labor of love 
  • Lanier resigned from law firm to care for her Autistic son and help launch the school. Lanier is now president of the school board.
  • One-to-One teacher-student ratio for it’s ABA curriculum – advocates say this is optimal for most autistic children
  • Instructors rotate every half-an-hour or so to ensure the Autistic child learns to generalize: one of the Autistic child’s challenges.
  • ABA approach: teacher guides student through series of steps to learn social, educational and life skills (anything from making eye contact or sitting quietly to saying hello or learning numbers and reading.)
  • ABA can be grueling, but is effective at drawing Autistic children out of their isolation.
  • Autistic students also interact with neurotypical children 
  • NYCA’s vision of giving Autistic students the education they need while integrating them into the larger community.
  • Laura Slatkin speaks to the high-cost per student and wonders how do they educate 4,500 children in a cost-effective manner and maintain the aba program’s quality?
  • Laura Slatkin and Illene Lanier are not alone in their crusade for top-quality schooling
  • Long Island, the Child Development Center of the Hampton’s (CDCH) – geared to children age 0 to five – was founded in 1996 by Dawn Zimmerman Hummel
  • Dawn Zimmerman Hummel is a parent of an Autistic child
  • CDCH Charter School for K – 8 with 210 students
  • CDCH is fundraising for a new preschool facility
  • Eden Institute and Alpine Learning group (founded in 1975 & 1988), long considered the ‘gold standard’ in autism education and services, will launch capital campaigns to develop new programs.
  • In past decade the number of schools for Autistic children has mushroomed.

QUOTE

Crunching the Numbers

No Matter how much is done, everyone agrees that more services are desperately needed. Autism is a lifelong disability. When students “age out” of school at twenty-one, the state no longer pays for educational services — aides, transportation, intensive ABA. Their families must apply to the state disability fund for aid, which, even if granted, falls far short of previous help.

“One thing that no one has taken into account is the vast socioeconomic impact of autism,” says Shestack. “Looking ahead, just as society is hit with the Alzheimer’s crisis, there will also be 1.5 million people with autism who are no longer part of the school system. The burden will fall on the state and federal government. It’s huge. Autism costs society close to $90 billion a year in education and services, and it will just get worse. Right now a lot of it is borne quietly by the families, but that can’t go on forever.”

Autism’s financial toll is truly catastrophic. Therapies for a child with autism can run more than $70,000 a year. Parents take out second and third mortgages, and marriages buckle under the strain: it’s been speculated that the divorce rate among parents of autistic children is 80 percent. Whatever else autism means to parents, it usually means the end of their dreams for a normal life.


BREAKDOWN

  • More services for Autistics are desperately needed everyone agrees..
  • Autism is a lifelong disability
  • When students ‘age out’ of school at 21, the state no longer pays for educational services – aides, transportation, intensive ABA.
  • Families must apply for state disability fund for aid – which is not enough even when granted.
  • John Shestack: One thing that no one has taken into account is the vast socioeconomic impact of autism. Looking ahead, just as society is hit with Alzheimer’s crisis, there will also be 1.5 million people with autism who are no longer apart of the school system.
    • The burden of Autistics will fall on the state and federal government
    • Autism costs society close to $90 billion a year in education and services, and it’ll just get worse
    • The burden of Autistics is now borne quietly by families, but that can’t go on forever
  • Autism’s financial toll is truly catastrophic. 
  • Therapies for autism can total 70K a year
  • Parents buckle under the financial strain and take second and third mortgages
  • Marriages buckle under the stress of raising an Autistic child
  • The divorce rate is 80%
  • Whatever else autism means to parents, it usually means the end of their dreams for a normal life. 

Comparison Table

What They SayWhat I see
Influencers/Influenced

– Town & Country Magazine publishes the article “Autism’s Angels” in August 2006 
– Author: Diane Guernsey

– Audience/Demographic target: Non-Autistic 


+++++++++++

Interviewed/Included:


– Gary Goldstein, M.D.
– President of Kennedy Krieger Institute

– Michael Wigler, Ph.D.
– Cold Spring Harbor Laboratory

– Jonathan Sebat, Ph.D.
– Cold Spring Harbor Laboratory

– Fred Volkmar, M.D.
– Child Psychiatrist at Yale Child Study Center

– Tom Insel
– Director of National Institutes of Mental Health (NIMH)

– Deedra Blair
– NYCA Board Member
– National Institutes of Health (NIH)

– Ilene Lainer
– parent of an Autistic
– worked to get charter school launched
– President of NYCA Charter School

– Dawn Zimmerman Hummel
– Parent of an Autistic
– CDCH Charter School 


– Bernie Marcus, philanthropist
– Co-founder of Home Depot
– Donated $25 million to Autism Speaks

– Karen Siff Exkorn
– parent of an Autistic
– New York Center for Autism board member
– Author of “The Autism Sourcebook:Everything You Need to Know About Diagnosis, Treatment, Coping and Healing Autism. 
– Autistic son ‘recovered’ after years of intense ABA
– Says recovery rate is 5 – 10%  

– Jon Shestack
– Parent of an Autistic
– Founder of Cure Autism Now (CAN)
– CAN merged with Autism Speaks in 2007


– Portia Iverson
– Parent of an Autistic
– Founder of Cure Autism Now (CAN)
– CAN merged with Autism Speak in 2007

+++++++++++++++++++++++++

– Jim and Marilyn Simons
– Family has been touched by autism
– Simons Foundation

++++++++++


– Bob Wright, co-founder of Autism Speaks
– Grandparent of an Autistic
– Vice Chairman of General Electric (GE)
– CEO NBC Universal


 Suzanne Wright, co-founder of Autism Speaks
– Grandparent of an Autistic

– Katie Wright, founding family member of Autism Speaks
– Daughter of Bob & Suzanne Wright
– Mother of Autistic son


+++++++++

– Laura Slatkin
– Mom to an Autistic child and non-Autistic child
– President of Candela Group



– Harry Slatkin
– Father of an Autistic child and non-Autistic child

– President of Limited Brands
– Founder of Slatkin & Co.
– Now President of Slatkin & Co.
– Owner and chairman of HomeWorx
– Co-founder of Next for Autism
– Creator of NYC Autism Charter School


++++++++++++++++++

– Autism Speaks
– Parent-led organization 

– NYCA
– parent-led organization 

– Cure Autism Now (CAN)
– Founded by Jon Shestack and Portia Iverson
– parent-led organization
– Founded in 1995


– National Alliance for Autism Research (NAAR)

– NIH

– Kennedy Krieger Institute

– Eden Institute

– Alpine Learning Group


– Today Show

– Autism: The Hidden Epidemic

– The View

– Charlie Rose

– Ad Council






























– NYCA

– Cure Autism Now (CAN)

– National Alliance for Autism Research NAAR

– National Institutes of Health (NIH)

– National Institutes of Mental Health (NIMH)

– Kennedy Krieger Institute

– Interactive Autism Network (IAN)

– Ad Council












– Town & Country Magazine publishes the article “Autism’s Angels” in August 2006 
– A company of William Randolph Hearst
– Author: Diane Guernsey

– Audience/Demographic target: Non-Autistic


++++++++


Interviewed/Included:


– Gary Goldstein, M.D.
– President of Kennedy Krieger Institute
– Non-Autistic

– Michael Wigler, Ph.D.
– Cold Spring Harbor Laboratory
– Non-Autistic

– Jonathan Sebat, Ph.D.
– Cold Spring Harbor Laboratory
– Non-Autistic

– Fred Volkmar, M.D.
– Child Psychiatrist at Yale Child Study Center
– Non-Autistic

– Tom Insel
– Director of National Institutes of Mental Health (NIMH)
– Non-Autistic

– Deedra Blair
– NYCA Board Member
– National Institutes of Health (NIH)
– Non-Autistic

– Ilene Lainer
– Non-Autistic parent of an Autistic
– worked to get charter school launched
– President of NYCA Charter School

– Dawn Zimmerman Hummel
– Non-Autistic Parent of an Autistic
– CDCH Charter School 



– Bernie Marcus, philanthropist
– Co-founder of Home Depot
– Donated $25 million to Autism Speaks
– Non-Autistic

– Karen Siff Exkorn
– Non-Autistic parent of an Autistic
– New York Center for Autism board member
– Author of “The Autism Sourcebook:Everything You Need to Know About Diagnosis, Treatment, Coping and Healing Autism. 
– Autistic son ‘recovered’ after years of intense ABA
– Says recovery rate is 5 – 10%  

– Jon Shestack
– Non-Autistic Parent of an Autistic
– Founder of Cure Autism Now (CAN)
– CAN merged with Autism Speaks in 2007


– Portia Iverson
– Non-Autistic Parent of an Autistic
– Founder of Cure Autism Now (CAN)
– CAN merged with Autism Speak in 2007


– Gary Gold Stein, M.D.
– President of Kennedy Krieger Institute
– Non-Autistic

– – – Tom Insel
– Director of NIMH
– Non-Autistic

+++++++++++++++

– Jim and Marilyn Simons
– Non-Autistic family of an Autistic 
– Simons Foundation
– SFARI


+++++++++

– Bob Wright
, co-founder of Autism Speaks.
– Non-Autistic grandparent of an Autistic
– Not an Autistic Ally

– Vice Chairman of General Electric (GE)
– CEO NBC Universal
– Senior advisor at Lee Equity Partners

– Dangerous Influencer
– Silences/and or speaks over Autistic advocates and Autistic people.

  – Suzanne Wright, co-founder of Autism Speaks
– Non-Autistic Grandparent of an Autistic
– Dangerous Influencer
– Silences/and or speaks over Autistic Advocates and Autistic People

– Katie Wright, founding family member of Autism Speaks
– Daughter of Bob & Suzanne Wright
– Non-Autistic parent of Autistic 

++++++++++


– – – Laura Slatkin
– Non-Autistic Mom to an Autistic child and non-Autistic child David and Alexandra

– Founding member of Autism Speaks
– Board of directors from 2005 – 2018

– Founder of NEST Fragrances
– President of Candela Group
– Co-founder of Next for Autism
– Creator of NYC Autism Charter School

– Served on Board of Directors at Columbia University Department of Psychiatry
– Served on Hunter College Autism Research And Policy Board 
– Served on board: Henry Street Settlement House
– Served on board: The New England Center for Children


– – – Harry Slatkin
– Non-Autistic father of an Autistic child and non-Autistic child David and Alexandra

– President of Limited Brands
– Founder of Slatkin & Co.
– Now President of Slatkin & Co.
– Owner and chairman of HomeWorx
– Acquired Belstaff with Tommy Hilfiger and Labelux Group
– Chief Executive Officer of Belstaff
– Co-founder of Next for Autism
– Creator of NYC Autism Charter School

– Contributing editor at Elle Décor Magazine 
– Appears regularly on QVC 
– Guest appearances on such shows as CNNThe Martha Stewart ShowExtra TVE! NewsCNBCABC and Comedy Central.

– Partnered with Weill Cornell Medicine and Columbia University Vagelos College of Physicians and Surgeons to open Center for Autism and the Developing Brain

++++++++++++++++

– National Alliance for Autism Research NAAR

– National Institutes of Health (NIH)

– National Institutes of Mental Health (NIMH)

– Kennedy Krieger Institute

– Interactive Autism Network (IAN)


– Ad Council

– Autism Speaks
– Parent-led organization 

– NYCA
– parent-led organization 

– Cure Autism Now (CAN)
– Founded by Jon Shestack and Portia Iverson
– parent-led organization
– Founded in 1995


– Eden Institute

– Alpine Learning Group


– Today Show

– Autism: The Hidden Epidemic

– The View

– Charlie Rose












Topics/Focus

– Autism Awareness

– Combating Autism Act
– Introduced in 2005
– Signed by President Bush in 2006
– Renamed the Autism Cares Act in 2014


– Early Diagnosis & Intervention
– neuroplasticity
– earlier diagnosis and intervention the better
– goal to test infants at 6 months
– Some Autistic children fully recover
– Autism is not curable


– Applied Behavioral Analysis (ABA)
– 50 hours a week
– overcome cognitive limitations
– overcome behavioral limitations
– Develop along a more ‘normal’ development path


– Interactive Autism Network (IAN)
– Launched in 2006
– Autism Speaks Press Release Announcement in 2007
– 30,000 individual entries now
– Closed to new participants in 2019
– encourages continuing on to SPARK!
– encourages seeking other local registry projects.


– Baby Sibs Consortium






























– Autism Awareness

– Combating Autism Act
– Introduced in 2005
– Signed by President Bush in 2006
– Renamed the Autism Cares Act in 2014


– Early Diagnosis & Intervention
– neuroplasticity
– earlier diagnosis and intervention the better
– goal to test infants at 6 months
– Some Autistic children fully recover
– Autism is not curable


– Applied Behavioral Analysis (ABA)
– 50 hours a week is a full-time job plus overtime for a child.
– overcome cognitive limitations – yeah, no. 
– Behavior is communication. What is the Autistic communicating? Figure that out and understand behaviors and then support the Autistic and needs/accommodations/etc. 
– Autistics have their own developmental timeline and shouldn’t be compared to an NT child’s chart and seen as deficient.
– This is Autistic Conversion Therapy
– All ABA is abuse.

— ABA is expensive and at this time insurances don’t cover the cost.
– Combating Autism Act and other legislation will get passed making insurance companies cover the ‘autism treatment’ ABA and create a billion-dollar-a-year industry.
– 

– Interactive Autism Network (IAN)
– Launched in 2006
– Autism Speaks Press Release Announcement in 2007
– 30,000 individual entries now
– Closed to new participants in 2019
– encourages continuing on to SPARK!
– encourages seeking other local registry projects.


– Baby Sibs Consortium


Marketing & Language Used
– Autism’s Angels article
– Parent perspective of Autism
– Personal perspective of Autism
– Professional perspective of Autism


Included language & marketing:

– Combination Person First Language (PFL) & Identity First Language (IFL)






– Narrative

– early diagnosis, early intervention, ABA, treatment, healing, charter school, home school, “age out”, socioeconomic toll of autism

– Autism’s financial toll is catastrophic, autism is a lifelong disability, divorce rate for parents of autistics is 80%, autism is end of dreams for a normal life, autism riddle, autism awareness, autism-linked mutations, 

– horrific tantrums, medical science is helpless, autism is an epidemic, cope, 

– autism prevalence, autism awareness, cause of autism, autism mystery, compared to aids, cancer 

– Alarming, hyperactive, devastating, hopes/dreams lost, not one of the ‘lucky ones’, vicious, tormented, hidden/dark thoughts, crushing, fillicide, haunted, suffer, painful












































– Autism’s Angels article
– Non-Autistic parent perspective of Autism
– Written for non-Autistic population 
– Written as if Autistic people would never read the article

Included language & marketing:

– Combination Person First Language (PFL) & Identity First Language (IFL).

Note: Autistic Community uses IFL.



– – – Narrative

– Autism Myths, Mystery, Misinformation & Speculation Narrative

– 80% Divorce Rate
– This is a myth 
– Not true
– Parents are responsible for the health of their marriage. If the couple doesn’t know how to support one another and use their life skills to navigate their relationship, stress, with parenting that is not the fault of the child, Autistic or not. That is fully on the shoulders of relationship between the two adults.
– Autistic people marry too, Autistic and non-Autistic partners and have families. 

– Meltdown referred to as horrific tantrum. These are very different events and should not be confused. 

– Severe othering/dehumanizing of autistics


– Tragedy Narrative
– Autism Prevalence
– devastating, crushing, haunted, suffer, painful



– Violence/Fear Narrative
– Autism Prevalence
– What will happen to my child when I die?


– Martyr/Hero Narrative
– Hopes/dreams lost
– Personal pain of parenting an autistic
– New advocates will find a cure for Autism and save thousands of children.
– New advocates are working to pull off the greatest child rescue mission in history
– Advocates determined to take the battle to new heights


– Cure/Eugenics/Treatment Narrative

– Autistic Conversion Therapypromoted as early Intervention/ABA
– ABA is treated like the only hope for ‘recovery’ for an Autistic child
– ABA gives parents hope their Autistic child might be ‘recovered’ too
– article states that only 5 – 10 % of Autistics are ‘recovered’ by ABA
– push for early treatment and grueling hours for toddlers and older. This is equivalent to a full-time job plus overtime. 

– Treat/Cure Autism is goal
– this will reduce the ‘burden’ of overall lifetime costs of an Autistic person


++++++++++++++

– Autistic Culture/Community Connection

– Identity First Language (IFL): Autistic Culture uses IFL.
– Autistic Prop: There are no Autistics interviewed/quoted in a meaning full manner in this article.

Summary

Autism Speaks was founded by Bob and Suzanne Wright in 2005. Their goal in launching the organization was to raise ‘ autism awareness’ and dollars for autism research. 

The Wrights are grandparents of an Autistic. Their daughter, Katie Wright, is mom to Christian. The Wrights state that their grandchild lost his 800-word vocabulary, and had severe meltdowns and other changes as a toddler. This happened after the birth of his sibling, and a move to a new family home. The Wrights ‘witnessed’ medical science’s helplessness, and decided to do something about it.

Wright was not satisfied when doctors told him that there wasn’t a ‘medical abnormality’ his grandson had that they could treat. Wright was further informed that many Autistic children did develop medical problems, and that these could be treated if and when they occurred. This shocked the entire Wright family. There was nothing that could be done for this child? Well, that just wasn’t good enough. 

Bob Wright stated his family went to Columbia University Medical Center for an assessment of his grandson. However, the assessment, diagnosis, and any form of autism treatment wasn’t covered by health insurance. Wright had to pay $10k out-of-pocket to cover the medical expense. The hefty price tag for a diagnosis isn’t one most families can comfortably afford. At that time, most insurance companies didn’t cover any autism-related expenses. Due to the lobbying of Autism Speaks, and their influence network, all states now require insurances to cover these costs, including ABA.

With Medicaid and insurances now covering ABA therapy, the industry has exploded and is now valued at $2.1 billion a year. The ABA market is expected to grow to $2.45 billion by 2025. 

In 2006, the Wrights spoke to others about their grandson’s diagnosis, and soon realized they were in the midst of an “Autism Epidemic.” This NBC executive and his family decided something must be done to avert the impending ‘autistic crisis’ the world just couldn’t afford. The Wright’s predicament captured the attention of philanthropist, and Home Depot founder, Bernie Marcus. He donated $25 million to jump-start the organization, Autism Speaks.

The goals of Autism Speaks were twofold: Raise awareness and raise money for scientific and biomedical research. Bob and Suzanne Wright believed if you built the awareness then the funding would come. And oh my, with their tragedy-narrative brand of ‘autism awareness’ millions upon millions of dollars were indeed raised. 

In the early 2000s, medical professionals told the Wrights that their grandson couldn’t be treated unless he developed a medical abnormality. The Wrights were told Autism is a developmental disability and you could treat many co-morbidities, but you can’t treat autism itself. What the doctors told them then, remains the same now in 2021: You can’t treat or cure autism, but you can treat some co-morbidities and increase the quality of life of the Autistic individual.

To be very clear, if you’re Autistic: You’re born Autistic and you’ll die Autistic. (Well, unless, CRSPR or some other gene editing discovery becomes viable in the future, this is how it is. Born Autistic, always Autistic.) 

Bob Wright states: “Out of the $29 billion NIH budget, autism gets only $102 million. AIDS gets $2.9 billion, and breast cancer gets $700 million, as they should, but people need to understand that this is the most prevalent childhood developmental disorder in the United States.

Fact: Autism is not a disease.

Yes, Bob, autism is a developmental disorder and difference, but it’s not at all like cancer, AIDS or even Alzheimer’s. The comparison to diseases by Autism Speaks founders, and other folks related to this organization, continues today. 

Autism Speaks raised more than $40 million their first year. They also touted they raised ‘untold levels of awareness.’ This ‘awareness’ happened because the Wrights used their power and status to leverage every opportunity to be heard – and drowned out the voices of the Autistic people who were protesting their organization and work to ‘cure’ us. 

The year after they launched, Autism Speaks promoted the 5-part documentary series, “Autism: The Hidden Epidemic.” It aired on the Today Show, and afterwards they ‘invited’ Bob and Suzanne Wright on as guests. Yeah, ‘invite’ is a stretch. Let’s remember Bob Wright is the NBC chairman and CEO until 2007. Prior to NBC, he held several positions at General Electric in the 1960s, 70s and 80s. He served as President and CEO of GE Capital, GE Financial Services from 1983 to 1986, and served as GE’s vice chairman until he retired from that role in 2008. 

Simply stated: If Bob Wright wants his Autism Speaks’ documentary aired on NBC, then Bob Wright gets his documentary aired on NBC. He’s the boss. He’s the bosses boss. 

This is a power and privilege that most Autistics have never had and never will have.

The Wrights were also guests on The View, Charlie Rose, and Don Imus’s radio show.

Autism Speaks went on to partner with the AdCouncil and launched a 3-year public-service ad campaign. The PSA campaign went full-force with the Autism Speaks hallmark tragedy and fear narrative. Autism Speaks is still partnered with the AdCouncil today. That means all PSAs by the AdCouncil regarding autism have been shaped by Autism Speaks parent-led organization, not Autistic people. These PSAs have done much harm to the Autistic community. 

“Odds of a child performing at Carnegie Hall: 1 in 73,000. Odds of a child being diagnosed with autism: 1 in 166.”

PSA by AdCouncil in partnership with Autism Speaks. 

The Wrights’ and Autism Speaks board members’ power and privilege was leveraged, knowingly, at Autistic people’s expense. Our voices were muted, and often silenced, by the uproar of non-Autistic parents, celebrities and professionals speaking the Autism Speaks party line.

Celebrities were part and parcel of Cure Autism Now (CAN) outreach. These star influencers were already hawking the autism tragedy narrative for filmmaker Jon Shestack and his wife, Portia Iverson. When Autism Speaks and CAN joined forces that’s when the star power really exploded. Every famous person speaking about autism was a voice for Autism Speaks, and organizations like them. The harm celebrities have caused the Autistic community with their influence and brand of ‘autism awareness’ is devastating and immeasurable. 

This silencing wasn’t unintentional by the founders and board members of Autism Speaks. It was their goal to be the loudest voice on autism in the nation, and therefore garner the most dollars for research, and leverage the most influence to pass legislation on the autism therapies they promoted and liked. In order to do this, Bob Wright merged Autism Speaks with other autism organizations. The first of these organizations was National Alliance for Autism Research (NAAR) in 2006. Autism Speaks merged with Cure Autism Now (CAN) in 2007.

Now, here’s where we get to the point and goal of the article: The Combating Autism Act.

The Combating Autism Act was introduced in 2005, and signed into action by President George W. Bush in 2006. The bill would authorize almost $1 billion for research over a five-year period. 

“Not enough studies are done on children with autism to draw conclusions about its causes, and that’s extremely frustrating to parents,” said Bob Wright. “Autism is a 24/7 problem. The children have to be looked after all the time, and the parents tend to be exhausted and broke. They don’t have the time or resources to do many things, so we are trying to speak for them.”

Yes, Bob Wright just said that Autism Speaks is trying to speak for tired and broke parents. There’s no mention of any Autistics who already have a voice and were being ignored, belittled, dehumanized, diminished, and silenced by Autism Speaks. Nope, not a chirp there.

The Wrights weren’t the only big-money players in the ‘World of Autism.’ Jim and Marilyn Simons pledged $138 million for autism research over a five-year span. One of the Simon’s Foundation’s first grants was $13 million for a five-year genetic study by Michael Wigler, Ph.D. and Jonathan Sebat, Ph.D. Both professionals were from Cold Spring Harbor Laboratory, home to one of the DNA decoders, James Watson. This research focused on genome scans of Autistic children’s nuclear families and compares them to non-Autistic genomes to seek autism-linked mutations. 

Wigler and Sebat utilized DNA procured by Cure Autism Now (CAN). CAN funded research to collect DNA from families with more than one Autistic child. They collected blood samples to create a gene bank. 

The first giant ‘eureka’ moment that will make the big pharmaceutical companies feel there’s something there has not come yet, but I’m confident that it will.”

Jon Shestack, founder of Cure Autism Now (CAN)

The article states: Until that time arrives, everyone agrees that early diagnosis and intervention – the earlier, the better – are the keys to a brighter prognosis.

Everyone agrees? Who is everyone? Definitely not the Autistic activists that had been protesting the work of Cure Autism Now, Autism Speaks and all of the other cure-driven organizations like them for decades already. Recently, many of these organizations have shifted to ‘inclusion’ and softer marketing around the genetic studies they fund – but they’re all still making choices about us without us. During Autism Speaks’ Reign of Silence, Autistic Elders have continued their activism work, and been busy teaching and educating younger generations about their history, culture and people. 

Today, many Autistic activists are parents of Autistics too. The majority of us have raised our children to take pride in our genetic heritage. Many of our children have grown and are adults now, and autistic self-advocates too. As a parent, I’ve taught my children they are worthy of far better than stigma, othering, hate, conversion therapy and cures. I taught them Autism Speaks idea of autism does not define them. Autism Speaks doesn’t speak for my children. They don’t speak for my family. They don’t speak for me. I’ve taught my children, and any other Autistic possible, they are worthy of far, far better than Autism Speaks, and organizations like them.

You can now hear the roar of Autistics on various social media platforms under the tag #actuallyautistic. 

The entire push of this article is to promote Applied Behavioral Analysis (ABA) and create a false hope for an ‘autism cure’ or some type of ‘autism recovery.’ It’s to tout early diagnosis and early intervention with ‘autism treatments’ like Autistic conversion therapy. It’s to push for the support of the Combating Autism Act of 2006, that was signed four months after the publication of this article – “Autism’s Angels” – in the Town & Country magazine. 

These Autism Speaks-affiliated parents have all spoken to the ‘dark truth’ of their thoughts on fillicide and suicide because they claimed parenting an Autistic was so difficult. These parents justified their ‘honesty’ in the documentaries that were seen worldwide, and they exposed their child’s most vulnerable and private moments to all. This was done for what, autism awareness? 

“Build awareness,” said the Wrights, “and the funding will come. “

So, yes, in this context, these parents’ ‘autism awareness’ campaigns were about raising money to fund research. Research that would promote ABA as the great hope for autism. Research that would continue to look for a vaccine – autism link, years after Andrew Wakefield was proven a fraud and liar. And research that would ultimately find a cure for autism. Mind you a cure for autism would be a test during pregnancy that determined ‘autism risk.’ Preventing the birth of an Autistic child is the cure for autism. This is the same cure society has for Down Syndrome. It’s eugenics 2021.

Fact: Vaccines do not cause autism.

Until the great cure for autism could be found, the only hope for Autistics already born was Applied Behavioral Analysis. Yes, the same ABA that had a failure rate of 90 – 95% as stated in the article. The great hope is that early intervention, the earlier the better, would increase the success rate of ABA with Autistic children. 

The reason Autistics aren’t included in any quotes, or seen in any of this advocacy, is because Autistic activists were kicked to the curb. Autistics fought the use of conversion therapy and definitely didn’t support passing legislation to force insurance companies to cover the cost. 

“With early intervention, we’re seeing many more kids doing much, much better. Right now getting a diagnosis and early intervention for a child of three is a big deal; but eventually, we’re going to get these services at six months. … In March I gave a conference on how to help autistic kids who go to college. Ten years ago, I’d never have thought it would happen.”

Fred Volkmar, M.D. of the Yale Child Study Center

The article goes on to state:

For a handful of children, early intervention has led to the almost unthinkable: actual recovery.

Then in parenthesis immediately after it states:

Although, technically, autism is not curable, a child can advance to the point where he or she no longer meets the clinical diagnostic criteria for the condition.

Yeah, even the article can’t make a straight statement without some sort of circular speak. 

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions. 


Guess what? This ‘autism recovery’ happened for one parent’s child. At least that’s what Karen Siff Exkorn said about her Autistic child. Exkorn was a former management consultant, and the author of the book, “The Autism Sourcebook: Everything You Need To Know About Diagnosis, Treatment, Coping, and Healing.”

Autism Speaks and other cure-motivated organizations were involved with the writing of this book, and they heavily promoted it as well. 

This book would be pushed worldwide to parents. The names printed on the book might look familiar … the foreword of the book is by Fred R. Volkmar, M.D. of Yale University Child Study Center. 

Praise for the book is given by Tom Insel (NIMH), Lee Grossman (Autism Society of America), Karen Margulis London (NAAR), Peter Gerhardt (The Organization for Autism Research), Stephen Shore (author), Karen Simmons (Autism Today), Shelley Hendrix Reynolds (Unlocking Autism), Marianne E. Felice (UMASS Memorial Children’s Medical Center), Ann DiChiara (Foundation for Educating Children with Autism, Inc.). 

Testimonies on the back cover include: Temple Grandin (Autistic author), Suzanne and Bob Wright (Autism Speaks), and Geraldine Dawson (University of Washington Autism Center).

Karen Siff Exkorn described how ABA, several intense years of it, and some other therapies recovered her Autistic son, Jake. Jake was diagnosed at age 2. At age nine, his mom considered him ‘recovered’ or ‘cured.’ Exkorn admits the “recovery rate” is only 5 to 10%. It’s her hope that with research that rate will increase. It was her goal to offer hope – but not false hope. 

Exhorn also sits on the board of the New York Center for Autism. 

Fact: If your Autistic child is now ‘cured’ or ‘recovered’ they were either not born Autistic, or they’re not cured or recovered, and are still very much Autistic.

In September of 2005 the NYCA Charter School opened its doors. The school had a one-to-one teacher ratio for its ABA curriculum. ABA advocates state that ABA is optimal for most Autistic children. Autistic activists state that ABA is conversion therapy and abuse. Autistics state ABA is not optimal for any Autistic.

ABA advocates are funded in some manner or another for their ‘advocacy work.’ Autistic activists are not. 

The article admits ABA can be grueling, but “it’s effective at drawing autistic children out of their isolation.” Hmm, that doesn’t compute. According to this article’s ABA statistics, only 5 – 10% of Autistic students would find benefit. The circular talk in this article is dizzying. Also, the chances of an Autistic developing PTSD or other lifelong trauma-related condition from ABA is far, far more likely than a ‘recovery.’ ABA was not covered by most insurance companies in 2006. Parents had to pay the expense themselves, and the cost was about $62,000 a year. 

This is where the Combating Autism Act and other state-by-state legislation became critical. When legislation was passed in every state, insurance companies were mandated to cover the costs of assessment – and ABA therapy, 

Laura Slatkin and Ilene Lainer state the NYCA Charter School is truly a labor of love.

These folks aren’t the only ones in a ‘crusade’ for top-quality ABA curriculum schools for Autistics. The Child Development Center of the Hamptons (CDCH) was founded in 1996 by a parent of an Autistic, Dawn Zimmerman Hummel. At the time the school was raising funds for a preschool facility. 

Also seeking to raise funds, the Eden Institute (founded in 1975) and the Alpine Learning Group (founded in 1988) would launch capital campaigns to develop new programs. 

Everyone’s agreed, the article states, that no matter how much is done, services are desperately needed. When Autistics ‘age out’ of school at 21, the state no longer pays for educational services, aides, transportation, or intensive ABA. Families must apply to the state for a disability fund, which even if granted, is not a sustainable amount. 

“One thing that no one has taken into account is the vast socioeconomic impact of autism. Looking ahead, just as society is hit with the Alzheimer’s crisis, there will also be 1.5 million people with autism who are no longer part of the school system. The burden will fall on the state and federal government. It’s huge. 

Autism costs society close to $90 billion a year in education and services, and it will just get worse. Right now a lot of it is borne quietly by the families, but that can’t go on forever

– Jon Shestack, founder of Cure Autism Now

The article goes on to state: Autism’s financial toll is truly catastrophic. Therapies for a child with autism can run more than $70k a year. Parents take out second and third mortgages to pay for therapies and their marriages buckle under the strain. 

It states that the divorce rate for parents of Autistics is speculated to be up to 80%. This speculation is fabrication, and an autism myth that still echoes today. The section ends with this cheery message: Whatever else autism means to parents, it usually means the end of their dreams for a normal life. 

Well, with tragedy like that, who doesn’t want to fight those epidemic Autistic kids and prevent them from ruining their parents’ lives? Heck, the autism even caused parents to divorce, and it was going to definitely bankrupt us all. Autism touched everyone. The only hope for these creatures to normalize and be mainstreamed by elementary school was ABA. 

While these spokespeople shared how expensive it was to care for an Autistic child using the therapies they promoted (ABA), they failed to mention the expected profits they would realize from their schools, companies and other entities taking advantage of the exploding ABA market that they created. These parents fail to state that with the passage of the Combating Autism Act of 2006, and then later state-by-state legislation, billions of dollars would be available to fund their schools, ABA services and companies, and more. Billions of dollars. 


The U.S. Autism Treatment Market report on MarketResearch.com states:

The incidence of autism among American children has soared from 1 in 150 in 2000 to 1 in 54 today, and 3.5 million children and adults now live with autism. Yet, few therapies exist to treat this disease—just a few medications and ABA (applied behavioral analysis) programs. 

This is a fragmented $2.1 billion market comprised of for-profit and non-profit providers that serve autistic patients via brick & mortar centers and in-home therapy provided by therapists. Waiting lists are growing and 64% of patients are estimated to have access to insurance coverage.

On December 16, 2020 MarketResearch.com published an article by John Larissa with the headline:

$2 BILLION U.S. AUTISM TREATMENT MARKET IS POISED FOR GROWTH NEXT YEAR

There are 3.5 million children and adults with autism in America. The North American market for autism disorder treatment is expected to grow over the next five years, due to a variety of factors: more widespread awareness of the condition, efforts by advocacy groups, an increase in the number of ABA (Applied Behavior Analysis) treatment programs and centers, more insurance coverage, and new and more effective drugs for the treatment of patients. 

This is a fragmented industry that operates locally, a mixture of for-profit and non-profit organizations.   

The largest players in the field? Autism Speaks, UPMC, Centria Autism Services, The Center for Autism & Related Disorders, the May Institute, Butterfly Effects, Autism Learning Partners, Autism Spectrum Therapies, Chance Light Behavioral Health, and City Pro Group.


The top seven things to know about this sector: 

  • Market value & growth: This is a market valued at $2.0 billion in 2020 that is forecast to grow 4.0% per year to $2.45 billion by 2025. The pandemic did result in a shift to more telehealth services. Treatment programs generate $1.4 billion, while the medications market is worth $627 million.
  • Key forecasts: Treatment center revenues are expected to grow 4.5% per year from 2021 to 2025, outpacing the growth of the autism drugs market, which is forecast to grow 3.0% per year (average annual rate).
  • The need for treatment: The number of autistic children is rising in the United States, at the rate of 6.2% per year. The CDC now estimates that 1 in 54 children born in the U.S. are autistic.
  • More treatment centers: The overwhelming majority of the largest for-profit treatment companies has increased the number of centers they operate, and their revenues, compared to 2017.
  • The autism drugs market: Several medications (Risperdal, Concerta) are still used to treat people with autism, and less costly generics have entered the market, resulting in lower total revenues. There is substantial R&D taking place to develop new and more effective drugs.
  • Health insurance coverage for autism: Insurance coverage of autistic children has improved over the past four years, with 64% now covered (vs. 36% in 2016). All 50 states now cover it.
  • Revenue estimates: The top 9 for-profit chains are estimated to have posted 2019 revenues of $547 million.

On March 5, 2018 MarketResearch.com published an article by John Larissa with the headline: Autism Treatment Programs Are Growing: A $1.8 Billion Market in the U.S.

The U.S. autism treatment market was estimated to be valued at $1.85 billion as of 2016, growing to $1.87 billion last year. Marketdata forecasts 3.9% average yearly growth, to $2.23 billion by 2022. This could be conservative, as insurance coverage is improving. In addition, venture capital firms are starting to take notice of investment opportunities in this market.

The “average” ABA center grosses about $821,000, and many are non-profit organizations. Many programs now have waiting lists and there is a shortage of qualified supervisors.

Nine large multi-site ABA program providers operate an estimated 296 brick & mortar centers and employ thousands of therapists. Together, they account for about $390 million in revenues — a 38% market share of ABA programs.

Revenues of ABA (applied behavioral analysis) programs are estimated to generate $1.07 billion in revenues this year, outpacing sales of prescription drugs used for autism symptoms.

On May 3, 2021 DisabilityScoop.com published an article by Michelle Diament with the headline: New National Care Network To Focus On Autism

A first-of-its-kind network of autism centers across the country is aiming to better address the needs of those with the developmental disability by putting the latest research into practice faster.

The newly launched 20-site Autism Care Network is a “learning health network,” according to Autism Speaks, which is behind the new collaboration.

In addition to treating people with autism in a traditional way, sites will work together to collect data from patients, test treatments and then share best practices among themselves and with other community providers.

At each center, we work directly with children with autism and their families to find out what they need, and through collaboration with providers and researchers across the network, use patient data to learn which treatments work and who they work for,” said Donna Murray, vice president of clinical programs at Autism Speaks. “That information gets back to providers through the network, and centers practice these methods and push that information into their communities to get the right care to the right patient at the right time.”

The Autism Care Network is the latest iteration of what was previously known as the Autism Treatment Network. The new version, however, includes almost twice as many sites and has evolved from being primarily a clinical network to a situation where patient insights drive research that’s then implemented, Autism Speaks said.

“Traditional research takes up to 17 years to be put into practice in a provider’s office,” said Karen Kuhlthau, a professor of pediatrics at Massachusetts General Hospital and director of the Autism Care Network’s research coordinating center. “With patient and family needs driving where we focus our efforts, and a system that lets us answer these questions quickly, the Autism Care Network will accelerate the process of moving best practices identified by research into the clinical setting to deliver more personalized and effective care.”

In addition to Autism Speaks, the Autism Care Network is being funded by the federal Health Resources Services Administration’s Autism Intervention Research Network on Physical Health, the J. Donald and Laurelle Lee Family Foundation and the National Patient-Centered Clinical Research Network.

Clinics that are part of the new network are located at Children’s Hospital Los Angeles, the Children’s Hospital of Philadelphia, Cincinnati Children’s Hospital Medical Center, Massachusetts General Hospital for Children in Lexington, Mass., Nationwide Children’s Hospital in Columbus, Ohio, Holland Bloorview Kids Rehabilitation Hospital in Toronto, the University of Alberta and Glenrose Rehabilitation Hospital in Edmonton, Alberta, the University of California, Irvine in Santa Ana, Calif., the University of Missouri in Columbia, Mo., the University of Pittsburgh Medical Center, Vanderbilt University Medical Center in Nashville, Tenn., the University of Rochester Medical Center in Rochester, N.Y., Phoenix Children’s Hospital, Prisma Health Children’s Hospital in Greenville, S.C., the University of Nebraska Medical Center in Omaha, Neb., the University of Virginia Children’s Hospital in Charlottesville, Va., the University of Wisconsin-Madison, the Hospital for Special Care in New Britain, Conn., the University of Massachusetts Medical School in Worcester, Mass. and MetroHealth Autism Assessment Clinic in Parma, Ohio.


The U.S. Autism Treatment Market

$2 Billion U.S. Autism Treatment Market Is Poised for Growth Next Year

Autism Treatment Programs Are Growing: A $1.8 Billion Market in the U.S.

2 Replies to “DECONSTRUCTION OF AUTISM SPEAKS | TOWN & COUNTRY: AUTISM’S ANGELS | PT. 3”

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.