The Influence Network Of Autism Speaks That Silenced Autistic People



The Influence Network of Autism Speaks is vast and worldwide. Autism Speaks merged with several other autism organizations to become the loudest voice on autism in the world starting back in 2005.  

The founders of Autism Speaks leveraged their powerful networks to overshadow and silence Autistics who were advocating to be heard. Autism Speaks has been effective in locking out Autistic people in participating in legislation about us and our healthcare, and created a monopoly on Autism that’s still going strong today.

Below is a big list of organizations, companies, celebrities, projects and more that Autism Speaks has influenced with their voice and work over the years.

This list is in progress. I wanted to share it before it was complete in case it might help other activists with their work. Check back for updates.

Autistic activists and advocates, with our real allies, have been working hard for years to be heard over the roar of non-Autistics using every media and platform imaginable to promote “Autism Awareness” while at the same time they silenced Autistic people.

Imagine, if you haven’t experienced it yet, trying to be an Autistic heard over the power of these collective voices and influencers listed below. Damn near impossible, yes … but this year Autistic people have been heard loudly in regards to the ableist and other serious problems with Sia’s movie, “Music.” Major media publications and news sites have written articles about the situation worldwide. It’s an incredible feat to have such attention on Autistic people, the Autistic community and our fight for civil and human rights.

Unfortunately, Sia is just one in a long, long line of celebrities who have supported autism myths, the tragedy narrative and failed to connect with the actual Autistic community that is comprised of Autistic people and our true allies – and instead supported the propaganda and blue light of Autism Speaks.

It’s my hope that many of these celebrities, organizations and companies aren’t fully vetted on the harms of Autism Speaks and their work and are open to expanding their understanding of Autistic people. I also suspect some celebrities have been persuaded by some industry giants, who are also on the Autism Speaks board, to participate in these campaigns.

Below is a list of celebrities, companies, organizations, media publications and more that have participated or been involved in the Autism Speaks influence network going back to 2005.

Autistically,

Eve Reiland

Note: This list is still being created and updated. I’m working on updating this list and rerouting the links to the archives on each person collated on the site. It appears many of these stories have been removed from the internet and are now available on wayback machine, or I’ve already got them posted here. Last Updated: March 24, 2022.

Founding Family & Friends | Board Members Via Mergers | Board Members, Advisors & Staff | Celebrity Influencers | Media Influencers







Professionals

A

Ted Abel, Ph.D

B

David Baskin, M.D.
Dr. Emanuel DiCicco-Bloom
Judy Burkow
Dr. Linda Brzustowicz

C

Keen-Ah Cheon
Sophia Colamarino, Ph.D
Dr. Jose Cordero


D

Dr. Stephen Dagar
Dr. Katherine Lyon Daniel

E

F

Dr. Harvey Finberg
Dr. Barbara Firestone
Eric Fombonne

G

David Geffen
Peter Gerhardt
Daniel Geschwind, M.D., Ph.D.
Dr. Julie Gerberding
Dr. Gary W. Goldstein
CT Gordon
Roy Richard Grinker

H

Susan Hyman

I

Dr. Thomas Insel





J

Dr. Chris Plauche Johnson

K

Dr. Alice Kau
Soo-Jeong Kim
Young Shin Kim
Dr. Ami Kli
Yun-Jon Koh

L

Eugene Laska
HyunKyung Lee
Eun-Chung Lim
Dr. W. Ian Lipkin
Bennett L. Leavethal

M

Dr. Carlos Marcin 
Peter McGuffin
Peter Mundy, Ph.D.

NO

P

Dr. Cathy Pratt

QR

S

Dr. Irwin Smigel
Dong-Ho Song
Dr. Carole Samango-Sprouse
Dr. Laurie Stephens

T

Roberto Tuchman
Dr. Eric London

UV

W

Dr. Edward Weinstein
Dr. Michael Wigler

XYZ



A

ACT Today!
ADCouncil
Advancing Futures for Adults with Autism (AFAA)
Advertising Education Foundation
Agency for Persons with Disabilities (APD)
Albert Einstein college of Medicine
All Stars Helping Kids
Alliance for the Wild Rockies
American Academy of Arts and Sciences
American Academy of Pediatrics
American Association for the Advancement of Science
American Foundation For AIDS Research
AAFA American Image Awards
Anderson Foundation for Autism
Autism Baby Siblings Research Constortium (BSRC)
Autism Coalition
Autism Genetic Resource Exchange (AGRE)
Autism Genome Project (AGP)
Autism Spectrum Disorder Research Program (ASDRP)
Autism Research Unit at Pfizer
Autism Response Team (ART)
Autism Science Foundation (ASF)
Autism Society of America
Autism Tissue Program (AIT)
Autism Treatment Network
Association for the Help of Retarded Children
B

Barry R. Feinstein Graduate School of Cinema
Boys & Girls Clubs of America
British Medical Research Council

C

Canadian Institutes for Health Research
Centers for Disease Control (CDC)
Centre for Interdisciplinary Research and Collaboration in Autism (CIRCA)
Chicago Police Department
Children’s Hospital Los Angeles
Children’s Brain Research Foundation
Cleaveland Clinic Center for Autism
Clinical Trials Network (CTN)
CTAM Education Foundation at Harvard
CombatAutism Coalition
Cure Autism Now
Champions of Caring
Ed Asner Family Center (TEAFC)
CLIMA
Cold Spring Harbor Laboratory (CSHL)







D

Dan Merino Foundation
Dana Foundation
Damon Runyon Cancer Research Foundation
Devereux Millwood Learning Center

E


Elizabeth Glaser Pediatric AIDS Foundation
Eva’s Heroes

F

First Signs Inc.

G

Genome Canada
George Washington University Institute for Ethnographic Research
Global Autism Public Health (GAPH)
Green Infectious Disease Laboratory
Guess Foundation

H

Health Occupations Students of America (HOSA)
Hilibrand Foundation
HollyRod Foundation
Hollyrod4kids

I

Interactive Autism Network (IAN)
Interagency Autism Coordinating (IACC)
Innovative Technology for Autism (ATI)
International Meeting For Autism Research (IMFAR)
International Society for Autism Research
iCare
ISSAC

J

Johns Hopkins University

K

Kennedy Krieger Institute

L

Laura Pels Foundation
Levitt University
Love Our Children USA

M

Make A Wish Foundation
March of Dimes
Marcus Autism Center (Emory University)
McCarton School
McLean Hospital
MegaFest Woman of Purpose
Miami Children’s Hospital
Michael J. Fox Foundation
McKinsey & Company
Motion Picture and Television Fund Foundation
MSSNG
Mount Sinai School of Medicine

N

National Autism Association
National Autism Database
National Academy of Medicine
National Council on Severe Autism (NCSA)
National Defense Council (NRDC)
National Institute of Health
National Institute of Mental Health
National Lekotek Center
NJ COSAC The New Jersey Center for Outreach
New York Dream Center
New York Presbyterian Hospital
New York Center for Autism Charter School
New York Stock Exchange (NYSE)
Next Gen Coders Program
Nick Lachey Foundation
Organization for Autism Research (OAR)
P

Palm Beach Atlantic University
Princeton Autism Technology (PAT)
Project Sunshine
Pfizer

Q

R

Rena Hort Mann Foundation
Robert Wood Johnson Medical School
Rock And Roll Hall of Fame
Rutgers University

S

Safe Minds
Saint Joseph’s University
Sarah Lawrence College
Save The Children
Schaffer Autism Report
School of Medicine UCLA
Society for Neuroscience
Southwest Autism Research and Resource Center
Spark! For Autism
Stand Up To Cancer
Stavros Niarchos Foundation
St. Jude Children’s Research Hospital
T

Talk Autism
Toddler Treatment Network 
Toys “R” Us Children’s Fund
The American Academy of Pediatrics
The Dan Marino Foundation
The Doug Flutie Junior Foundation
The Gilles Brewer School
The Guess? Foundation
The Help Group
The Marcus Foundation
The Marcus Institute
The Melinda and Bill Gates Foundation
The National Autism Association
The New Jersey Center For Outreach and Services for the Autism Community (COSAC)
The Suzanne Wright Foundation
The Truist Foundation
The Walton Family Foundation
The Yellow House Operations, LLC

Q

Quadrant Biosciences





U

UC Mind Institute
UMDNJ
United Nations
United Nations: Public Information/Non-Governmental Section | Brief: Autism: Raising Awareness, Changing Attitudes
United States Department of Defense
Universidad de Zulia
University of Massachusetts Medical School
University of Michigan “Your Child”
University of Pennsylvania
University of Rochester
University of Washington
Unlocking Autism
U.S. Leaders Council of Cordaid
W

We Are Lions
Williams Point of Hope Foundation
Wilson
World Health Assembly
World Health Organization
Wyeth

X

Y

YMCA
Yale School of Medicine
Yale Child Study Center

Z

LEGISLATION, POLITICIANS, STUDIES, INITIATIVES & MORE (INFLUENCERS & INFLUENCED)



9 responses to “The Influence Network Of Autism Speaks That Silenced Autistic People”

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