Institutions serving people with developmental disabilities have been hard hit by the coronavirus, but no one knows how widespread the issue is and advocates say that needs to change.
The Trump administration implemented rules in May mandating that nursing homes report COVID-19 infections directly to federal officials and notify residents and their families of such cases. But, despite numerous outbreaks, no similar rules apply to other types of institutional settings.
“We do not know what outbreaks have looked like at (intermediate care facilities for individuals with intellectual disability), psychiatric facilities or even group homes,” said Alison Barkoff, director of advocacy at the Center for Public Representation. “We hear reports, we see reports in the media, but there is no federal requirement that these be reported. It’s really just what makes the news.” […]