Archived | Autism Speaks: Central Valley Walk January Newsletter | Circa January 7, 2010


Central Valley Walk Now for Autism Speaks modesto@autismspeaks.org via sm1.kintera.com Jan 7, 2010, 2:57 PM
to Genevieve
     Get Involved . Support Autism Speaks

Happy New Year from Autism Speaks Central Valley!

With the New Year comes new opportunities to raise awareness of our mission at Autism Speaks; to change the future for all who struggle with autism spectrum disorders.

Our organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Thank you for your continued support of our mission and we look forward to a wonderful 2010.

“To welcome in 2010, I’m going to invest $20.10 to Autism Speaks, yes invest. Invest in the future of our loved ones with Autism. Not a lot of money, but if everyone that can, does the same we can change the future. Happy New Year to all!” -Billie McCauley, parent and Autism Speaks Northern California Volunteer

Click here to join Billie in welcoming 2010 with a donation.

Your support is needed now, more than ever…  Increase in Autism Prevalence

The CDC recently announced that 1% or 1 in every 110 children has been diagnosed with autism, including 1 in 70 boys. This represents a staggering 57 percent increase from 2002 to 2006, and a 600 percent increase in just the past 20 years.

Other significant findings include that a broader definition of ASDs does not account for the increase, and while improved and earlier diagnosis accounts for some of the increase, it does not fully account for the increase.

Thus, a true increase in the risk for ASD cannot be ruled out. Even though parents typically express concerns about their child’s developmental progress before age three, the average age of diagnoses is not until 53 months, although diagnoses are occurring earlier than found in the 2002 study.

The report uses the same methodology that produced the CDC’s 2007 prevalence findings of 1 in 150 children with autism.

Read more about the CDC’s report here.

  Advocacy

U.S. Senate Passes Health Care Reform Bill Containing Provision For Autism Insurance Reform and Cures Acceleration Network

We applaud the members of the U.S. Senate for passing an overall health care reform bill that contains provisions for autism insurance reform, as well as the funding to accelerate the scientific discovery of autism treatments and cures.

The provision will prohibit discrimination in benefits against people with autism by including behavioral health treatments as part of the essential benefits package.

Read the full story here.

  Science

Pediatrics Gastrointestinal Consensus Statement & Recommendations Provide First Step Toward Needed Guidelines for Children with Autism

We applaud the consensus statement and recommendations for the evaluation, diagnosis, and treatment of gastrointestinal (GI) disorders in children with autism spectrum disorders (ASD) released online in Pediatrics as one step in advancing physician awareness of unique challenges in the medical management of children with autism.

These consensus recommendations recognize that health care practitioners severely lack solid information to guide care of children with autism and GI problems and there is a need for more research data, including genetic research, as a prerequisite to develop evidence-based guidelines specific to autism.

For more information please click here.

  Family Services

Advancing Futures for Adults with Autism (AFAA) is a national consortium seeking to create meaningful futures for adults with autism that include homes, jobs, recreation, friends, and supportive communities.

On November 13, 2009, over 1,000 Americans came together across 16 sites and online to create a policy agenda for addressing the needs of adults with autism.

These individuals, including adults with autism, family members, community leaders, service providers, and elected officials, came together out of a shared sense of concern and a deep shared commitment to create meaningful futures for adults with autism throughout the country.

The Town Hall, co-hosted by Autism Speaks, consisted of four major group discussions on cross-cutting issues, housing, employment and community integration for adults with autism. Each participant had a voice in determining the priorities of the national agenda to advance the futures of adults with autism. 

Click here to see the Participant’s Guide for the discussions that took place during the Town Hall.

Click here to see the Preliminary Report that includes the discussions and opinions of the over 1,000 participants.

What’s Next?

The outcomes from the AFAA Town Hall Meeting will be compiled into a final report, to be posted on the web by January of 2010.

The report will take the results and combine them into a single document so we can fully take advantage of the great input generated at the Town Hall sites.

This statement will serve as a national agenda from which an action plan will be devised. The conversation will inform and educate participating stakeholders in both public and private sectors.

The Autism Congress in 2010 will set forth recommendations for new public policy and changes to existing policy that will improve the lives of adults with autism.


  Autism Speaks is listening!!!

Upcoming Events

2/2/10: San Joaquin County SELPA presents “Autism: Advanced Social Story Implementation” 

Tips and Tools
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More TipsWith your support,
we will transform a community of
heartbreak into a community of hope

Get Involved in your Local Community.

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