Archived | Autism Speaks Central Valley Newsletter | Circa August 12, 2009 #NotAnAutisticAlly

(Links are original and most likely don’t work.)

Central Valley Walk Now for Autism Speaks via Wed, Aug 12, 2009, 12:41 PM
to Genevieve
August 2009 
 2009 Central Valley Walk Now for Autism

Modesto Junior College – West Campus
Saturday, October 17, 2009   

Ready…Set…Walk Now for Autism Speaks!

Central Valley Walk Now for Autism Speaks needs YOU! Every 20 minutes another child is diagnosed with autism. A cure must be found. Come out and join the fast-growing, family friendly community committed to finding a cure for autism at Central Valley Walk Now for Autism Speaks on Saturday, October 17th at Modesto Junior College, West Campus. Whether it is your first or seventh Walk Now for Autism Speaks experience, we are here to support you, providing you with fundraising tips and team building tools. The money you raise makes a difference in the fight against autism, funding essential scientific and biomedical research.

Register now and start your fundraising to support the mission of Autism Speaks.

At press time, here are our current totals:Total amount raised to date – $ 27,136Number of Teams Registered – 77Number of Walkers Registered -308How Much Money Can You Raise? Think BIG!

• Start Today -set your personal fundraising goal and see how easy it is to exceed! Your enthusiasm and commitment to finding a cure for autism is infectious; so remember. .. If you don’t ask, you won’t receive! Use the simple online template, “My Personal Page” at, to design a personal web page in less than 10 minutes, upload your address book and send emails to potential donors.

• Double Your Fundraising – A matching gift is when a company matches what an employee donates and in some cases they will match your personal fundraising total. Check to see if your company has a matching gifts program and always remind your donors to do the same. In some cases companies will match 2 to 1… You can triple your fundraising!

• Build a Corporate Team – Corporate teams are large and powerful fundraisers, encouraging employees to collaborate, donate and attend Walk Now for Autism. Do you work for a corporation that wants to form a Corporate Team? Do your friends or spouse work for a corporation that could form a Corporate Team? Contact us and we’ll get you started! It’s simple!

Fundraising Incentive

To start off this year’s Walk Fundraising Incentives we have a $50 gift card to The Men’s Wearhouse for the individual who raises the most money online between August 15th and 30th. Good luck!

Fundraising By the Numbers

Times may be tight, but if you set your goal based on a number that is important to you, it will be simple to explain why fundraising is so important to you!

Please help us reach our goal of $280,000 by setting a personal goal, or supplementing your existing goal, with one that is meaningful to you. Here are a few examples:• $1 for every day your family has been affected by autism (how many days has your family been affected?)

• 26,280 – The number of people who will receive a diagnosis this year.
o A nickel per person: $1,341

o A dime per person: $2,682• 1,400 – the number of participating families in Autism Speaks’ AGRE database, which provides biological samples for an unprecedented resource of phenotype and genotype information, made readily available to scientists for research and analysis

o $2 for each multiplex family in the database: $2,800• 760 – the number of speech therapy appointments the average family affected by autism makes each year (3 per week)

o $50 for each appointment: $7,800•

Do you have a loved one who is transitioning into adult services?

The 18th and 21st birthdays bring extra special meaning – set a dollar goal for $1800 or $2100 ($100 for each year that has led to this new venture)• Set your goal to raise at least $150 to symbolize hope for the day when all 150 children will be free of an autism diagnosis (currently 1 in 150 children is diagnosed with autism)

Get creative with your goals. It is a great way to explain the importance of continuing research and helps others understand why you are passionate about your personal goal.

2009 Grand Club

Individuals who raise $1,000 automatically become members of this exclusive club. Encourage all your team members to reach a personal/individual fundraising goal of $1,000 and on Walk day each individual can enjoy:

• Public recognition
• Commemorative pin
• Special perks on Walk day
• Other surprises throughout Walk season!

Congratulations to our current members of the Grand Club:

Brandon Rodrigues, Clinton McCauley, and
 Marianne Russo!Local Events

Don’t miss our sponsor, Carlos Vieria Racing on August 29th at the Madera Speedway for the Race and Ride for Autism! 

A 100 lap western late model main event and motorcycle show. Proceeds will benefit Central Valley Walk Now for Autism. Click here for a flyer or visit for more information.  

August 19: Team CVAP Round Table Pizza Fundraiser Night from 4-8pm at the 2401 Orangeberg Ave. location in Modesto. Please click here for the required flyer. 

August 28: Central Valley film premiere of “Cages”

 – Team Streeter Family & Friends presents the showing of “Cages” at the State Theater in Modesto at 7:00 pm to benefit the Central Valley Walk Now for Autism Speaks. Tickets are $10 each. Please e-mail if you’d like to purchase or sell tickets. If you sell tickets, $9.50 per ticket will be credited to your walk team! Click here for a flyer. 

September 18: Crosby, Stills and Nash Concert at the San Jose Civic Auditorium

September 19: Crosby, Stills and Nash Concert at the Ironstone Amphitheatre in Murphys

General and Benefit Ticket purchases benefit Autism Speaks. Please visit and for more information. 

September 19: Autism Awareness Day at California’s Great America. 

Celebrate a day of fun at a special discount price. Price includes park entrance & all-you-can-eat picnic. Be sure to stop by and say hello at the Autism Speaks booth! For more information please visit:

 Facebook Become a Fan of the Central Valley Walk Now for Autism Speaks on Facebook!
Receive the latest updates on Autism Speaks and the Central Valley Walk Now for Autism Speaks activities and chat with other fans by joining today! Facebook is a valuable social networking tool – let’s use it to spread the word about autism awareness and the Central Valley Walk Now for Autism Speaks.

 Advocacy A Thank you from Autism Votes:

Thank you so much for all of your hard work over the last few weeks as you have continued to call, email, and fax Speaker Pelosi’s office. 


House Speaker Nancy Pelosi has heard you loud and clear! We are now in a very constructive dialogue with the Speaker’s office about the importance of ending autism insurance discrimination.

Thank you again for your patience, your perseverance and for recruiting your friends and family to make these calls.

Parents, Caregivers, Teachers, Providers, Researchers, Doctors and paraprofessionals, make sure your voice is heard and sign up online to the Autism Votes website to stay informed on National & Local legislation. 

Family Services 

With Back to School around the corner, here are Back to School resources, updates, and tips for families available on our

 Family Services page:

School Community Tool Kit – this free online resource includes topics to promote awareness in your child’s school: general education teachers, bus drivers, lunch and recess aides, custodians, office staff, security officers, nurses, principals, and peers.

Community Connections – ease the transition back to school with practical suggestions to help young people with autism and their families. 

Learn about Student Clubs for Autism Speaks – formed and led by middle and high school students (

The Autism Acceptance Book: Being a Friend to Someone with Autism, by Ellen Sabin – this interactive book uses narrative, activities, conversation starters and journal exercises to help children ages 6 to 12 learn more about autism and encourages them to be kind, compassionate and helpful through their actions.    


An Autism Speaks environmental sciences grant provided support for a symposium on autism at the 49th annual Society of Teratology meeting held on June 29, 2009. Teratology is the branch of biology concerned with how the developing fetus is affected by environmental agents, among other topics.

The theme of this year’s meeting was “genetic and environmental interactions on maternal and child health,” with more than 250 toxicologists from industries, academia and governmental agencies in attendance. Although scientists in this area have long appreciated that certain compounds administered prior to or during pregnancy can have long-term detrimental consequences, this was the first time autism was highlighted at this very influential meeting.

For more information, please click here.


At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.

We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.

Autism Speaks. It’s time to listen. 778-3840


Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid. 

ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.

The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t workIn study after repeated study: ABA (conversion therapy) doesn’t work. 

What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.

The ‘cure’ for Autistics not born yet is the prevention of birth. 

The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome. 

This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.

Fact: You can’t cure Autistics from being Autistic.

Fact: You can’t recover an Autistic from being Autistic.

Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.

[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]

Fact: Vaccines Do Not Cause Autism.

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