Autism Speaks and the National Alliance for Autism Research (NAAR) Complete Merger
February 13, 2006 09:00 AM
|Unanimous Votes by Both Boards of Directors Combine Two of the Leading Research and Advocacy Organizations in the Fight Against the Nation’s Fastest Growing Serious Developmental Disorder|
“We are very confident that the merger will lead to more money being dedicated to the types of scientific projects NAAR has funded for the past 11 years.”
Autism Speaks and the National Alliance for Autism Research (NAAR) have completed their merger, bringing together two of the leading organizations engaged in the battle against autism, it was announced today by Mark Roithmayr, president of Autism Speaks. A memorandum of understanding was first announced in the late fall. The directors of Autism Speaks and NAAR respectively voted unanimously to complete the transaction.
The combined organization will be known as Autism Speaks.
The consolidation of the two charities is based on their joint commitment to accelerate and fund biomedical research into the causes, prevention, treatments and cure for autism spectrum disorders; to increase awareness of the nation’s fastest growing developmental disorder; and to advocate for the needs of affected families. Autism spectrum disorders are diagnosed in one in 166 children, affecting four times as many boys as girls. The diagnosis has increased tenfold in the last decade. The Centers for Disease Control and Prevention have called autism a national public health crisis whose cause and cure remain unknown.
“The completion of this merger marks the tipping point in the autism community, bringing together the best science, collaborative minds and impassioned advocates,” said Roithmayr. “A unified autism community is better prepared to ensure that the general public is aware and responsive to this national healthcare crisis.”
“NAAR’s goal has always been to encourage, fund, support and facilitate biomedical research related to autism, and that remains the primary goal of the newly combined organization,” said Dr. Eric London, co-founder of NAAR and newly named Executive Board Member of Autism Speaks. “We are very confident that the merger will lead to more money being dedicated to the types of scientific projects NAAR has funded for the past 11 years.”
Autism Speaks will adopt NAAR’s distinguished scientific advisory board and also its scientific advisory committee, the latter with Autism Speaks’ Chief Scientific Advisor, Dr. Gary Goldstein, President of the Kennedy Krieger Institute at Johns Hopkins, serving as Chair.
NAAR board members Ann Gibbons, Adrian Jones and Dr. London will join the board of Autism Speaks. Dr. London will also join Autism Speaks’ executive and scientific advisory committees. Dr. Emanuel DiCicco-Bloom, who was a member of NAAR’s scientific advisory board, will become a member of the Autism Speaks board of directors in addition to serving on its scientific advisory committee.
All of Autism Speaks’ current board members will remain in place. Bob Wright will continue to serve as chairman of the board of Autism Speaks and Suzanne Wright will continue to serve as vice chair. Mark Roithmayr will remain as president of Autism Speaks. NAAR CEO Glenn Tringali will assume the newly created position of executive vice president.
Autism Speaks will maintain and expand NAAR’s international Walk for Autism Research grassroots fundraising program and its international affiliates. Autism Speaks will continue to place a high priority on raising awareness of autism, as well as on raising funds and supporting research, including NAAR’s Autism Tissue Program and all previously announced research programs.
Autism Speaks, Inc.
Autism Speaks was co-founded by Suzanne and Bob Wright in February, 2005 in response to the diagnosis of their grandson. Bob Wright is chairman and CEO of NBC Universal and is vice chairman and executive officer of General Electric. The organization’s guiding principles have been to raise public awareness about autism and its devastating effects on individuals, families, and society, and to raise funds to support effective biomedical research in autism. Since its launch in February, 2005, Autism Speaks has raised more than $30 million.
National Alliance for Autism Research (NAAR)
Founded in 1994, NAAR was the first national nonprofit organization in the country dedicated to funding and accelerating biomedical research exclusively for autism spectrum disorders. In 1997, NAAR put biomedical research on the map when it awarded five grants, each totaling approximately $30,000, to pioneering autism researchers. To date, NAAR has committed almost $30 million to fund more than 270 autism research projects, fellowships and collaborative programs worldwide — more than any other non-governmental organization. The research initially funded by NAAR has been leveraged into more than $64.5 million in autism research awards by the National Institutes of Health (NIH) and other governmental funding sources. NAAR’s ongoing funding of pilot projects and collaborative research projects, as well as its advocacy for increased government funding, has made a dramatic impact on the autism research landscape in the United States, Canada and Europe.
Rubenstein Communications, Inc.
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Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.
[Note: Autism is NOT a disease, but a neurodevelopmental difference and disability.]
Fact: Vaccines Do Not Cause Autism.