???: … clearly/authentically in their own medium. Actions speak loudly; rather than explaining why you did what you did years ago, I would be curious how it can be made right more tangibly.
Thank you for apologizing. Unfortunately, your piece and that video advertisement are still being shown (and will continue being shown) all over the world and it’s still utterly soul-crushing and fear-mongering, which only further fuels the false rhetoric that ASD only has one evil destructive face.
As we always say, “If you ‘ve met one Autistic person, you’ve met one Autistic person”.
What can be done to balance things now with the piece still out there being shown to people and making them feel like monsters and burdens?
What can be done in the now to bring hope to parents and actual individuals who are being diagnosed?
???: Autism is an umbrella term for an entire neurological state of being, mind and body.
It is a term covering a wide range of people. It is a term that includes a person’s self – what some might call their soul.
You probably understand this to some extent, with your own children. All we know scientifically is that is 80%+ genetic. So your next revelation may be an even more surprising one.
Please stop wishing people out of existence. It’s a false binary if you think it’s “cure autism” or “ignore all actual medical issues”. And if an autistic person is saying you’re being too black and white … you really, really, probably are.
If you want help finding places for your autistic children to be accepted and develop culturally and communicatively try autistic-run ones. Many welcome non-autistic folk but might help you see a world that is actually able to cater to the beauty of autistic people, whilst accommodating and not ignoring disabilities and struggles.
Online, this is an amazing (albeit demanding) space for non-autistic parents to get advice from autistic adults re: autistic kids
Theresa Green: If you was truly sorry for the absolutely awful “poem” you made, you would have said so without this evident pontificating.
I for one wont’ forgive you. If knowing you put the evil out that is “I Am Autism” keeps you up at night, good. Your suffering will NEVER amount to the suffering you have helped inflict on so many autistic children.
Mike VQ: How was this post buried until now? Anyway, you are not forgiven because this isn’t even an apology.
Your story is merely damage control. Autism Speaks has done so much to taint how society perceives us.
Yeah everyone has a rough life and realizes mistakes, but you are clearly still carrying the same paradigm as you did before your realizations: You’re speaking from your experience with autism rather than how an autistic person experiences it.
Your words … they say a lot, yet they mean as much as a broken record.
Brigid Ellen Roche Powell: Glad you got 2 AuTist children. However, Autism Speaks does NOT speak for me. I will speak for myself. When I can.
Laura Anderson: Wow this is definitely not an apology. At all. You’re still not listening to us an saying we can’t understand, when we understand just fine — we just happen to think that you are wrong and are continuing to oppress autistic people.
Forget this entire nonsense, I don’t accept what you have to say.
Whitney Lee Geertsen: I Agree it was a non apology. Still not getting what autism is and isn’t. Epilepsy is NOT Autism. IBS is NOT Autism. Curing Autism will not cure co-existing conditions only makes things worse for autistic people.
Courtney Eli-Suders: Sincere question: Is this the first public apology or has your piece made news again?
It is by no means a newly-produced work, and yet, we still witness the pain and fear it continues to leave in its wake.
Was anything done before now to “make it right?”
None of this is meant harshly or sarcastically; I’m legitimately asking here. Out of curiosity.
—> What about writing something new to represent Autism ore as the unique and remarkable spectrum that it is and speak more humanely of the fellow humans you spoke about in your original piece?
What about the love, beauty, and inspiration that is also included in our sometimes-painful journey that so many others speak of when referring to their children and loved ones with ASD?
You know the saying, “Let the punishment fit the crime”. I feel many (both on and off the Spectrum) would receive an apology more readily in actions rather than a social media post as, after all, an artist tends to speak and be hard more clearly, authentically in their own medium.
Actions speak loudly, rather than explaining why you did what you did years ago, I would be curious how it can be made right more tangibly.
Thank you for apologizing. Unfortunately your piece and that video advertisement are still …
Maxfield Sparrow: That is not only not an apology, it is aggressively attacking. How dare you assume what others can and cannot understand?
How arrogant of you to say that only you understand the true nature of autism. How infantilizing of Autistic adults do you have to be to presume we don’t have the competence to understand that every Autistic person is unique?
And look how much *you* don’t understand when you assume we are only fighting for the rights and well-being of people identical to us!
In actuality, sir, that is what you have done an continue to do: wear blinders and refuse to understand he perspective of people who are not like you or your sons.
If that was supposed to be an apology, you’ve failed miserably. I can’t speak for any Autist but myself, but I do no accept that “non-apology” as anything but you assuaging your own guilt over taking a public action that you now realize has harmed your child. You still don’t care about anyone beyond the confines of the four walls of your home.
As I am one of those paradoxically dismiss as too articulate to understand, I’m sure my opinion doesn’t actually matter to you, but if you thought you were apologizing to those of us who were deeply offended by your writing and fought hard against it, you have missed the mark every bit as much now as you did when you penned that pornographic pack of lies called “I Am Autism.”
Maqqi Mucoi Amolngatti Au: am hugging you Max. Thank you for this.