…how do we insert somebody with a disability studies background into a design space so they can start asking the hard questions and the right questions so that we can get past this — this frame of mind that only thinks of disability in terms of just accessibility?
We exist as friction. The work that I do; it’s wildly painful.
People are creating interventions to get around actually having to talk to us.
And we burst that bubble.
But the thing is, is when you look at empathy, you realize that — that like other sort of charitable approaches, it’s actually caused just as many problems as the solutions that it’s trying to sort of create.
And so, if you boil it down and look at it step-by-step, you know, the first step is, is cultivating empathy. But to a disabled person, it can feel a little less like empathy and a little bit more like designers are coming in, they’re speaking with us, they’re observing us, they’re taking our life hack welcomes right? Our ingenuity, and then they’re going to sell it back to us as inspirational do good, right? Without ever giving us credit.
Yes! We need disability studies folks in every school and company. We need folks who speak and live the social model of disability on our teams.
I’m disabled and neurodivergent with two disabled and neurodivergent kids. “We exist as friction.” I let forth a “hell yeah” when I heard those words. We exist as friction, and we’re constantly educating others on and hacking our way around structural friction, to the betterment of all.
disabled people, we are the original life hackers, right? Our innovative solutions have changed the world, right? Like, we created the Internet, we created the bicycle, we created the iPhone touch screen, we created audio books and curb cuts. And, you know, just item after item. And, you know, I think that it just demonstrates the value of really existing on the margins.
It’s tiresome work. We could use some help from abled and neurotypical allies working with us and alongside us instead of for us. Develop the lens.
…who is capable of developing this lens? I don’t think as a society we’re there yet, right? Like, we don’t always — we’re not so eager to have our bubble burst. Especially with one of the few things that sort of traditionally makes us feel good about ourselves which is what disabled people call inspiration porn, right?
Where the objectification of our body is used to inspire other people, right? Disabled people make everybody else in society feel better about themselves. And I’m taking that away. Right? And that’s not fun.
Develop the lens by changing our framing from deficit ideology to structural ideology.