Advocates & Activists Culture & Community

#TakeTheMaskOff – Autism, Epilepsy & med shaming. Real Talk. – YouTube

Published on Jul 26, 2018

I had to pull over because the hot flash I was having was making me feel so unwell I was going to get sick.
As I struggled through the hotflash I found myself feeling such gratitude for my medication. I would 100% have had a seizure on that day if not for my life saving medication.
So I decided to show what happens to me and to make a plea for people to stop shaming life saving meds, and to make this world less blinky. On July 23, 2018 an international campaign was launched called “TakeTheMaskOff. (link below)
I knew only a bit about it but as I worked my way through my hotflash I thought it was a perfect opportunity to see me, to truly see ME. I am Autistic and I am epileptic.
Epilepsy, seizure disorders and migraines are co-occurring conditions for those who have autism, like myself. Autistic and Neurodivergent people have several co-occuring conditions. I am also dyslexic, dyspraxic, have PTSD, Sensory and Auditory Processing disorders.
So what many decide is Autism can often actually be an Autistic person expressing one or more co-occurring conditions. I am not completely maskless here.
I am on the side of the road and needing to get myself home so I needed to maintain a level that would not put me in danger with Police or others.
But this is unscripted and in the moment and hopefully will help others in some way or another.
Autistic people need to take our maks off. The weight of them are suffocating and it kills us.
Not being dramatic. Autistic people make up 1-2% of ALL humanity and we account for 7-15% off ALL suicides. We’ve been shouting it as loud as we can.
It’s not because we’re Autistic. It’s how society is treating and portraying us, that is creating this horrendous statistic.
We need to be able to take out masks off, and be safe. We need acceptance.

By Eve Reiland

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